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Questioning developments in human genetic research from the perspective of people with mental disabilities and their families, Reinders (ethics and mental disability, Vrije U., Amsterdam) argues that using terms such as disease and defect to describe conditions that genetic engineering might eliminate, may also be suggesting that disabled lives are deplorable and horrific. Focusing too narrowly on preventing disabled lives, he warns, is at odds with a commitment to including disabled people fully in society. Annotation copyrighted by Book News Inc., Portland, OR
An empowering collection of essays on the author's experiences in the disability justice movement.
In The Future Is Disabled, Leah Lakshmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation? Building on the work of her game changing book Care Work: Dreaming Disability Justice, Piepzna-Samarasinha writes about disability justice at the end of the world, documenting the many ways disabled people kept and are keeping each other—and the rest of the world—alive during Trump, fascism and the COVID-19 pandemic. Other subjects include crip interdependence, care and mutual aid in real life, disabled community building, and disabled art practice as survival and joy. Written over the course of two years of disabled isolation during the pandemic, this is a book of love letters to other disabled QTBIPOC (and those concerned about disability justice, the care crisis, and surviving the apocalypse); honor songs for kin who are gone; recipes for survival; questions and real talk about care, organizing, disabled families, and kin networks and communities; and wild brown disabled femme joy in the face of death. With passion and power, The Future Is Disabled remembers our dead and insists on our future. This updated edition includes a new chapter and afterword by the author.
“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Transformative justice seeks to solve the problem of violence at the grassroots level, without relying on punishment, incarceration, or policing. Community-based approaches to preventing crime and repairing its damage have existed for centuries. However, in the putative atmosphere of contemporary criminal justice systems, they are often marginalized and operate under the radar. Beyond Survival puts these strategies front and center as real alternatives to today’s failed models of confinement and “correction.” In this collection, a diverse group of authors focuses on concrete and practical forms of redress and accountability, assessing existing practices and marking paths forward. They use a variety of forms—from toolkits to personal essays—to delve deeply into the “how to” of transformative justice, providing alternatives to calling the police, ways to support people having mental health crises, stories of community-based murder investigations, and much more. At the same time, they document the history of this radical movement, creating space for long-time organizers to reflect on victories, struggles, mistakes, and transformations.
A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."— Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy’s struggle for equality began early in life. From fighting to attend grade school after being described as a “fire hazard” to later winning a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, Judy’s actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples’ rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann’s memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
In Feminist, Queer, Crip Alison Kafer imagines a different future for disability and disabled bodies. Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a pre-determined limit. She juxtaposes theories, movements, and identities such as environmental justice, reproductive justice, cyborg theory, transgender politics, and disability that are typically discussed in isolation and envisions new possibilities for crip futures and feminist/queer/crip alliances. This bold book goes against the grain of normalization and promotes a political framework for a more just world.
During the late nineteenth and early twentieth centuries, Americans with all sorts of disabilities came to be labeled as "unproductive citizens." Before that, disabled people had contributed as they were able in homes, on farms, and in the wage labor market, reflecting the fact that Americans had long viewed productivity as a spectrum that varied by age, gender, and ability. But as Sarah F. Rose explains in No Right to Be Idle, a perfect storm of public policies, shifting family structures, and economic changes effectively barred workers with disabilities from mainstream workplaces and simultaneously cast disabled people as morally questionable dependents in need of permanent rehabilitation to achieve "self-care" and "self-support." By tracing the experiences of policymakers, employers, reformers, and disabled people caught up in this epochal transition, Rose masterfully integrates disability history and labor history. She shows how people with disabilities lost access to paid work and the status of "worker--a shift that relegated them and their families to poverty and second-class economic and social citizenship. This has vast consequences for debates about disability, work, poverty, and welfare in the century to come.
Lambda Literary Award finalist In 1996, poet Leah Lakshmi Piepzna-Samarasinha ran away from America with two backpacks and ended up in Canada, where she discovered queer anarchopunk love and revolution, yet remained haunted by the reasons she left home in the first place. This passionate and riveting memoir is a mixtape of dreams and nightmares, of immigration court lineups and queer South Asian dance nights; it reveals how a disabled queer woman of color and abuse survivor navigates the dirty river of the past and, as the subtitle suggests, "dreams her way home." Leah Lakshmi Piepzna-Samarasinha's poetry book Love Cake won a Lambda Literary Award. This publication meets the EPUB Accessibility requirements and it also meets the Web Content Accessibility Guidelines (WCAG-AA). It is screen-reader friendly and is accessible to persons with disabilities. A Simple book with few images, which is defined with accessible structural markup. This book contains various accessibility features such as alternative text for images, table of contents, page-list, landmark, reading order and semantic structure.
NATIONAL BESTSELLER • ONE OF USA TODAY'S MUST-READ BOOKS • This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project “Alice Wong provides deep truths in this fun and deceptively easy read about her survival in this hectic and ableist society.” —Selma Blair, bestselling author of Mean Baby In Chinese culture, the tiger is deeply revered for its confidence, passion, ambition, and ferocity. That same fighting spirit resides in Alice Wong. Drawing on a collection of original essays, previously published work, conversations, graphics, photos, commissioned art by disabled and Asian American artists, and more, Alice uses her unique talent to share an impressionistic scrapbook of her life as an Asian American disabled activist, community organizer, media maker, and dreamer. From her love of food and pop culture to her unwavering commitment to dismantling systemic ableism, Alice shares her thoughts on creativity, access, power, care, the pandemic, mortality, and the future. As a self-described disabled oracle, Alice traces her origins, tells her story, and creates a space for disabled people to be in conversation with one another and the world. Filled with incisive wit, joy, and rage, Wong’s Year of the Tiger will galvanize readers with big cat energy.