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Longlisted for the School Library Association's Information Book Award 2017 - 'Over 12' category. Brie's Granddad has always been a serious man, never without a newspaper and knowing the answer to everything. But now he keeps losing track of the conversation, and honestly, Brie doesn't really know how to speak to him. At first, Fred was annoyed that Gramps had come to live with them, it meant he had to give up his room! But then he starts to enjoy watching old films with him and spending time together... although there's the small problem of Gramps calling him Simon. Follow the stories of Brie, Fred, and other young carers as they try to understand and cope with their grandparents' dementia at all stages of the illness. Adapted from true stories, and supplemented with fun activities and discussion ideas, this book for children aged approximately 7-14 cuts to the truth of the experience of dementia and tackles stigma with a warm and open perspective.
The Long Goodbye: Dementia Diaries discusses a disease that is both personal and social for more than five million patients and their families and friends in the United States today. Now that there are medical strategies for preventing and/or curing strokes, heart attacks, even cancer, many more people are going to live into the dementia years in the near future. Although many dementia horror stories circulate in conversation and in the media, they are not the whole story. Creative approaches to loving a dementia patient can make for a valuable learning experience for family and caregivers. In The Long Goodbye Margaret Miles describes her commitment to making--rather than passively suffering--her spouse's dementia experience. Family and friends who accompany patients find embedded in the experience moments of great beauty, hilariously funny incidents, new companions, and life insights. The narrative provides both a travelogue and suggestions for a richly meaningful life passage for all participants. The Long Goodbye seeks to supply a balanced picture of a disease usually represented as unmitigated loss.
How to live a full and rewarding life after a dementia diagnosis. Keith Oliver was diagnosed with young onset dementia at the age of 55. Unaware at the time that dementia could affect people of this age, Keith set out to increase public awareness of the condition and dispel the myths about the illness. Using a unique diary format, this intimate and empowering memoir captures what everyday life with dementia is like, offering both a candid look at its struggles, and a profoundly moving account of Keith's journey to live a full life afterwards.
The true happenings of the time in the life of Nellie May born in April. A little joke we shared with Nellie regarding when she was born. Nellie did not have a happy childhood with a dad who beat her, she went through traumatic times when she had to go in the air raid shelter during the war when she was growing up. She went to a comprehensive school and started work at the age of 14. When Nellie was in her fifties, she liked to have a drink. I remember one day a taxi driver came to our house and asked if Nellie was at home I said no, he said I think I have her in my car (and he had). Looking back, we had some very funny times. Nellie was the life and soul of the party. She was feisty, head strong, not afraid to speak her mind, funny, loving, caring and beautiful she would do anything for anyone. She loved to dance and sing and play the organ. Nellie was in her eighties when she developed the terrible disease dementia, of which these diaries are about to tell. There were sad times but also some happy times. Nellie would always pronounce the word baby as babby as that is how she would say it. These diaries tell of what happened during her time with dementia.
Another Cup of Tea is a book for anyone caring for someone with dementia or Alzheimer's disease. Selected from the diary of a son caring for his Mum in the latter stages of her struggle with vascular dementia. Written often in the midst of long, challenging days and nights. You'll find yourself either laughing, crying or even nodding along in recognition at the ups and downs of their time together. You'll notice how tea often saved the day, how they coped or didn't and perhaps imagine yourself in their shoes, wondering what could happen next and how you'd cope in similar circumstances. As suggested in the foreword, grab Another Cup of Tea and enjoy! Profits from book sales will be shared between Alzheimer's and dementia charities.
Life at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships – that is, the diversity of people living with a dementia – enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved.
The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK
Contributions by Aneesh Barai, Clémentine Beauvais, Justyna Deszcz-Tryhubczak, Terri Doughty, Aneta Dybska, Blanka Grzegorczyk, Zoe Jaques, Vanessa Joosen, Maria Nikolajeva, Marek Oziewicz, Ashley N. Reese, Malini Roy, Sabine Steels, Lucy Stone, Björn Sundmark, Michelle Superle, Nozomi Uematsu, Anastasia Ulanowicz, Helma van Lierop-Debrauwer, and Jean Webb Intergenerational solidarity is a vital element of societal relationships that ensures survival of humanity. It connects generations, fostering transfer of common values, cumulative knowledge, experience, and culture essential to human development. In the face of global aging, changing family structures, family separations, economic insecurity, and political trends pitting young and old against each other, intergenerational solidarity is now, more than ever, a pressing need. Intergenerational Solidarity in Children’s Literature and Film argues that productions for young audiences can stimulate intellectual and emotional connections between generations by representing intergenerational solidarity. For example, one essayist focuses on Disney films, which have shown a long-time commitment to variously highlighting, and then conservatively healing, fissures between generations. However, Disney-Pixar’s Up and Coco instead portray intergenerational alliances—young collaborating with old, the living working alongside the dead—as necessary to achieving goals. The collection also testifies to the cultural, social, and political significance of children’s culture in the development of generational intelligence and empathy towards age-others and positions the field of children’s literature studies as a site of intergenerational solidarity, opening possibilities for a new socially consequential inquiry into the culture of childhood.
People with dementia are uniquely qualified to discuss the challenges of their condition and the features of effective support, but their voices are all too often drowned out in research and debates about policy. It's time for that to change. Dementia Enquirers is an ambitious and novel programme of work which has tested out what it means for people with dementia to lead research and has developed a new 'driving seat' approach to co-research. This ground-breaking book features 26 research projects led by groups of people with dementia, supported by group facilitators and academics, to make their voices heard. Topics include giving up driving, GP dementia reviews, living alone with dementia, and using AI platforms such as smart speakers. The book also describes how people with dementia shaped the entire programme, and addressed head-on issues such as ethics approval processes and complex research language. A key read for anyone involved in dementia support, this research brings the voices of people with dementia to the fore to explore their experiences of researching the condition.