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Volunteers will have a vital role in delivering the services of the future. This book explores volunteering in hospice and palliative care worldwide, analysing how and why volunteering is changing. Key topics discussed include influences of culture, legislation, and the place of volunteering within the multi-professional team.
"Becoming Dead Right" guides readers through the general and "how to" information maze that prepares them for dealing with death. This book is filled with poetry, stories, wisdom, and common sense that can help baby boomers, students, caregivers, and policy makers understand that society can make important changes that can ensure safe, dignified, individualized care at the end of ones life.
Maintaining dignity for patients approaching death is a core principle of palliative care. Dignity therapy, a psychological intervention developed by Dr. Harvey Max Chochinov and his internationally lauded research group, has been designed specifically to address many of the psychological, existential, and spiritual challenges that patients and their families face as they grapple with the reality of life drawing to a close. In the first book to lay out the blueprint for this unique and meaningful intervention, Chochinov addresses one of the most important dimensions of being human. Being alive means being vulnerable and mortal; he argues that dignity therapy offers a way to preserve meaning and hope for patients approaching death. With history and foundations of dignity in care, and step by step guidance for readers interested in implementing the program, this volume illuminates how dignity therapy can change end-of-life experience for those about to die - and for those who will grieve their passing.
This book provides comprehensive, practical guidelines on the responsibilites of those who leade, co-ordinate and manage volunteers in small hospices, large specialist palliative care units, and in general hospitals with palliative care teams. Volunteers are key workers, who often perform difficult and always important work. In the United Kingdom alone, there are thousands of volunteers in hospice work, a small proportion doing work with patients, and the vast majority doing equally valuable work such as driving, sitting with relatives, manning charity shops and telephones. As a result, Europe, Australia, the United States and Canada are very interested in the United Kingdom's use of volunteers. Aimed primarily at Volunteer Service Managers in small hospices, large specialist palliative care units, and in general hospitals with palliative care teams, this book covers volunteer selection, training, supervision and support, and legal and ethical considerations. Information is presented in an easily accessible way, using key points, summary panels and checklists. Contributors, who are all Volunteer Service Managers themselves, have included small, clinical vignettes to bring the text to life. This book withh also appeal to the volunteers themselves.
This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still needs to be explained. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and theirfamilies. However, the science of palliative care is advancing and this new edition will contribute to a better understanding of this specialty. This new edition offers 20 new chapters out of over 120, written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.
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This edited collection discusses the current demographic patterns and notes the rapid and startling spread of AIDS/HIV to new populations—including women, adolescents, the mentally ill, substance abusers, and minorities. In a practical manner, each contributor establishes guidelines for need definition, effective service delivery, and case practice among different population segments. This is a valuable book providing experienced-based direction and hope because of its agenda for AIDS/HIV education and action among those in social work practice. Social work practitioners active among those most directly involved with persons with AIDS/HIV need guidance and support. This volume offers both in a balanced analysis of key issues relating to their practice. The authors clearly and authoritatively establish that the demographics of the AIDS/HIV crisis are undergoing change rapidly and alarmingly. Although there have been significant advances in education about AIDS and modifications in sexual practices among gay men resulting in a lowered rate of new infection, other groups are shown to be evidencing explosive levels of infection. Not only are the population parameters of AIDS defined, but the fundamental issues of social service delivery are addressed as are the special needs of the newly at-risk groups. Women, adolescents, substance abusers, minorities, and the mentally ill are all in the demographic patterns describing AIDS/HIV diffusion. The most compelling AIDS care issues are directly focused on and practical guidance is given to social work practitioners. AIDS/HIV poses a sometimes daunting challenge threatening to overwhelm service providers. This book will be of value due to its sensitive, insightful, experience-based guidance at the level of practice. It will also prove a useful resource for all in the caring professions who will appreciate its timely explanation of the complexities involved in framing effective responses to current and emerging needs associated with AIDS/HIV.