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The first to address the special needs of the caregiver, this book helps the friend, family member, or health care professional work through their feelings, understand the common stages in caring for the chronically ill, and develop tools for acceptance.
More than a million Americans will be diagnosed with cancer this year. Someone will be introduced to the world of caregiving for each and every new patient. Add thousands of AIDS, stroke, heart disease and Alzheimer's cases and you discover that there is an entire community of caregivers who have many of the same fears and concerns as the patients they care about. Patients become the immediate focus of attention by their medical team and by their families the minute they receive the diagnosis. They are bombarded with information about their disease, about treatment and about support groups. They are offered books and pamphlets and tapes and group sessions. Who is there to help the caregiver? Those who land the job of primary caregiver often have no experience in nursing, no knowledge of the medical jargon, and are prepared with nothing more substantial than their love for the patient. A Caregiver's Journey addresses both the practical and emotional issues facing the family. Many books and pamphlets recognize the caregiver but focus on the patient. This is a practical and helpful guide focusing on the specific concerns of the caregiver.
For 14 years I lived through the insanity of Alzheimer with my wife, from the day of her diagnosis, September 3, 2004. Read for yourself the ups and downs, the crying, the laughter. With God's help, I not only survived and overcome but I was able to build a new life. I believe this can be true for you too. There is hope for the caregiver. You too can have a new purpose for your life after your patient, your spouse or parent or child has transitioned from this life. When my wife died on November 18, 2018, I grieved but I also moved on, you can too.
The Caregiver's Journey: A Roadmap for Navigating Your Path What began as an effort to manage stress through journaling, The Caregiver's Journey chronicles five years the authors spent caring for a loved one who lived hundreds of miles away. Realizing their hard-earned lessons could help smooth the path of those in similar situations, The Caregiver's Journey serves as a roadmap for anyone navigating the role of caregiver. The chronological narrative, interspersed with tips and recommendations, helps readers better understand their path as caregivers, while its 11 Tables and six Appendices expand upon critical topics. * Chapter "Take Aways" Reinforce Tips From The Narrative * Detailed Information About Costs of Care * Coping Tools For Caregiver Fatigue, Stress, And Burnout * Tips For Patient Advocacy During Hospitalizations * Six Appendices Provide Quick Refernce Guidance
A loved one’s terminal illness diagnosis can be terrifying. If we hold onto that fear and carry it into a caregiving role, we will be left exhausted, ill-equipped to cope, and feeling powerless. What’s more, we will find it extremely difficult to be the supportive, comforting presence our loved one needs—and the caring friend we need to be to ourselves to process our grief. Through personal memoir, the author shares how allowing fear to rule her experience of her mother’s illness and death resulted in great difficulty coping. Several years later, when her husband of twenty-one years received the devastating news that he had terminal cancer, she was determined to approach this caregiving experience with love rather than fear. Through self-love and self-care practices, she learned how to manage her emotions, develop resilience, and be fully present to experience the joy and beauty of their final chapter together as well as process the pain of his passing. For the Caregiver will show you how to access the greatest source of strength and power available to you—that found within. You will learn how to practice self-care and self-love through mindfulness, self-talk, meditation, journaling, and movement exercises. By allowing love to empower you, you will gain strong coping skills that will enable you not only get through this difficult time, but to be fully present to enjoy the precious time remaining with your loved one.
Written by Kathryn R. Burke. Illustrated by Bryce Chismire. This book is about people helping people who need help¿that would be you the Caregiver, and the one you care for. You will learn where to find help, who to ask for it and to depend on for practical help as well as help for body, mind, and spirit. Building Your Care Team is based on 20+ years of Caregiving experience, augmented with the stories of so many other Caregivers the author met and worked with going down the road. ¿My Care Teammates helped me,¿ she says, "and I hope together, we can be part of your Care Team, and help you manage this difficult journey. You are not alone." From San Juan Publishing. 212 pages. 140 Illustrations. Color cover. Includes Resources & References, Inspirational Quotes.
Authoritative, comprehensive, holistic, and highly illustrated, The Caregiver's Encyclopedia will help you figure out how to be the best caregiver you can be.
In the United States, as diagnoses of dementia rise concurrent to an aging population, increasing healthcare costs and the availability and affordability of long-term care facilities place additional burdens on family members of those who have dementia. More and more, individuals are caring for long ones - parents, spouses, siblings - at home for longer periods of time, and for many, the burden of caregiving can seem almost as heavy as the disease itself. Weary Joy is written specifically for caregivers. Featuring short chapters, pragmatic information, and prayers that encourage, offer hope, and even share a little humor, Weary Joy will remind readers of God's grace and Jesus' care as they discover ways to develop resilience and endurance to navigate the ups and downs of caregiving.
Packed with practical advice, diagrams, statistics, photos, quizzes, and scannable outlines, this compact guide to caregiving is easy to read and gives you key information at a glance. Get expert knowledge distilled into easy-to-follow steps and apply them immediately to refresh and recharge your caregiving journey. Enjoy having: Trustworthy advice for both seasoned and new caregivers (and everyone in between)A Scale of Burden quiz to assess your current level of self-care12 Signs of Stress & specific steps to manage them (PLUS: 3 happiness boosters for caregivers)How to Build Your Team: step-by-step instructions to get help (and exactly what to say)And much moreCaregiving is draining--emotionally and physically. From changing bandages and diapers, to managing medical appointments and picking up prescriptions, caregiving can feel like an endless journey. But here's the great news: the caregiving experience doesn't have to be like that. When caregiving tasks are shared and caregivers understand how to take good care of themselves too, the whole experience can be much brighter for everyone. Trusted Help for Caregiving from Those Who've Been There In Caregiving: Taking Care of Yourself While Taking Care of Someone Else, award-winning author and speaker, Debbie Barr, writes with compassion and understanding, taking an honest look at the ups and downs of caregiving. She shares the real-life experiences of caregivers and the things they've learned along their journeys. This book will help caregivers like you know how to gather a team to help shoulder the caregiving load. You will be able to: Identify when you're nearing burnoutDiscover the help available to you (and what to say)Take specific action steps to cope wisely and learn to thriveKnow when the caregiving needs to change (and why it DOESN'T mean failure)Key Features of Caregiving: Taking Care of Yourself While Taking Care of Someone Else Caregiving will provide everything you need--from the basics to step-by-step details--to not only get you started on your journey, but to make the most out of your time and talents. Key features include: Reliable--Award-winning author and speaker Debbie Barr unpacks real-life experiences and seasoned advice into trustworthy nuggets of caregiving gold you can carry with you throughout your day. Get refreshed and revitalized with compassion and truths from those who have experienced the emotions and journeys you are going through.Quick and Easy-to-Use--Caregivers rarely feel like they have time for themselves, so this guide has been designed with a busy schedule in mind: packed with concise summaries, scannable outlines and visuals, and distilled step-by-step instructions, you can absorb everything you need with as little or as much time as you have.Practical--Whether you need to apply a self-care routine, build a care team to support your loved one in need, or make a big change in your care plan, get concise step-by-step instructions (including exactly what to say) and start immediately!Flexible--A little or lots of time. Brand new or seasoned caregiver. Short- or long-term care. Regardless of your situation, this handy minibook has practical applications for everyone.Caregiving is never just about the person needing the care; it's about the caregiver too. You will come away from this book encouraged and equipped to face the caregiving journey with hopefulness and peace of mind.
Navigate your Caregiver Journey This Journey Guide is a companion study to the first book, Moments that Matter: A roadmap for caregivers and their loved ones with memory loss. They are designed to be used together. Learn and study the art of Moment-Making: Personal reflection Self-care Spiritual growth Support Groups Individual Study Age and ability appropriate activities Caregivers are Wounded Healers. A caregiver's wounds are many. Physical strain, anger, guilt, and grief can be daily stressors. Sharing your personal story with group members, as well as hearing theirs, helps to restore brokenness and brings healing. God is the great healer and guide on our journey. He is our strength when we are weary, our hope when we are discouraged, and our encourager when the stress of caregiving weighs us down. He allows us to find joy in the journey. "This insightful book and the Caregiver Support Group gave me ideas and guidelines that helped me love and care for my husband in new ways." .....Susie Nelson "This support group altered my perspective, my role changed from extending my mother's life to providing quality loving care." .....Manny Roman