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This book is written in the hopes that those who have chosen to take on the role of caregiving will find answers to problems they will face each day and be able to see that they are not alone in their endeavors to help those in need. This book is written to be short and to the point for easy, spur-of-the-moment answers, but more than anything, I have written it to be a source of encouragement as you take on what I consider the hardest profession in the world.
A survival guide for caregivers of the seriously ill, this book offers the information and support needed to navigate the stages from initial diagnosis to planning a memorial. Rich with resources, helpful exercises, and questions to explore, this book combines the author's personal experience with her professional expertise as a psychotherapist.
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
You spend your days (and maybe nights) helping someone else. If you are a caregiver for someone who is chronically ill, you have already discovered there is a need to be more compassionate, thoughtful, and sacrificial than you ever anticipated. But, to be able to continue your physically and spiritually demanding caregiving, you need help too. ...
Caring for an older family member with physical or cognitive impairments is a difficult, strenuous process. Caregivers often struggle to balance their own needs with those of the care recipient. Their relationships with family, friends, coworkers, and even the care recipient can suffer as well. As a result, family members often seek professional help to guide them through the caregiving process. This book presents Caregiver Family Therapy (CFT), a systems approach to treating families that care for an aging adult. CFT consists of three core stages: Identifying the problem Structuring caregiver roles Ensuring caregiver self-care Transition stages bridge one core stage to the next, helping caregivers structure care for the older adult, examine the impact of caregiving role structures, and consider broader effects of caregiving. As new challenges arise, the stages are repeated and the CFT process begins anew. Full of rich clinical examples, this book will help therapists and other service providers meet the complex, diverse needs of caregiving families.
In this book, the authors discuss the challenges, practices and cultural influences of caregiving. Topics include caregiving for individuals with neurodevelopmental disorders and intellectual disabilities; family caregivers for patients with cancer; elder caregiving in South Asian families in the U.S. and India; study of caregiver's resilience; caregiver burden in a Hong Kong Chinese population; managing compassion fatigue among professional cancer caregivers; community-based education for palliative care for the elderly in Japan; caregiver perception and oral health in cerebral palsy children; and the role of assistive technologies for person-centred dementia care in Japan.
You spend your days (and maybe nights) helping someone else. If you are a caregiver for someone who is chronically ill, you have already discovered there is a need to be more compassionate, thoughtful, and sacrificial than you ever anticipated. But, to be able to continue your physically and spiritually demanding caregiving, you need help too. ...
Man’s perception, and how to accept aging, has not changed dramatically since the beginning of time or over the last 220 years as man’s life expectancy has increased. Man is not a stagnant being, and as Bathauer notes, “Psychologist tell us that all of life is made up of continuous changes from childhood all the way to old age.” The last twenty years of life, the stage we call old age, brings about almost as many changes as the first twenty years. Changes in the latter part of life are usually more than all the changes during the first twenty years of life because they carry the threat of loss, disability or other degenerative conditions. Christian counselors are trained in the spiritual and general mental health aspects of aging. Caregivers and family members usually receive their training on the job as a caregiver. As the graying of America continues at an accelerated rate, the Christian counselor, pastor, and caregiver are going to need the tools and resources to counsel and assist in this area. Aging will be an area, which expands into additional areas that will affect everyone in some manner. The Christian counselor, pastor, and caregiver can benefit both professionally and personally by having an understanding of what caregiving is and is not. Also having the knowledge of where to retrieve useable and beneficial information is a blessing to all. It helps to reassure that all involved during this very stressful time period and when major decisions might need to be made to know that there is applicable information at hand. By having this knowledge, it will allow the counselor and caregiver to truly get a better understanding of the aging person. He is now able to help in a spiritual, mental and physical dimension. Again, it is not expected that the counselor, pastor, and caregiver will become a specialist in aging or a gerontologist. The expectation is that the reader will find helpful information as a caregiver and counselor. References 1 Ruth M. Bathauer, Parent Care: Fear and Losses of the Elderly (Ventura, CA: Regal Books, 1990), 32. 2 L. Gelhaus, “Boomers Prefer Aging at Home,” Provider, 2004, 12-15. X
Why is this book important to read? Beyond Caregiving contains a plethora of information that the reader will find very useful in coping with the challenges of providing care. In a nutshell, the book is about the deeper understanding of the role of a caregiver, learning creative ways to secure much need resources and services, maneuvering through the complex health care system, and most of all learning to enjoy and see the positivity in everything we do despite what life may bring to our fruitful undertaking. As an educator and advocate for the disabled and the developmentally challenged for 14 years; and as a Social Services Director at several skilled nursing facilities for 5-years, Romwell witnessed most of the challenges that caregivers' and their families face up in dealing with the task. His goal in writing the book is to help alleviate caregiver stress in navigating through the difficult emotional, psychological, and financial challenges of caregiving. The book shall serve as a caregiver's guide in maneuvering through the complex healthcare delivery system and present creative ideas in procuring much-needed support from private entities, state and federally funded programs, and services available in the community. The book also illustrates steps, and possible solutions in the appeals process that a caregiver may apply in the event of an unjust or unfair denial of rights of a developmentally challenged adult or a child. The goal is to mitigate the out-of-pocket costs of an already financially burdened population. Beyond Caregiving likewise presents real-life cases and situations experienced by actual patients that benefitted from the author's services during his career as a social worker-case manager. In reading the book, the reader will understand why it is difficult to provide care to different people, particularly patients with unique developmental challenges. The reader will also discover the correlation between aggressive behavior and medical disability, which explains why people act the way they do, sometimes even without reason. And last but not the least, the book provides useful resources for the reader and their families in dealing with the difficult challenges of providing continuum of care brought by the lack of availability of community resources, and the defective post-hospitalization services.