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Bringing together the human story of care with its representation in film, fiction and memoir, this book combines an analysis of care narratives to inform and inspire ideas about this major role in life. Alongside analysis of narratives drawn from literature and film, the author sensitively interweaves the story of his wife's illness and care to illuminate perspectives on dealing with human decline. Examining texts from a diverse range of authors such as Leo Tolstoy, Edith Wharton and Alice Munro, and filmmakers such as Ingmar Bergman and Michael Haneke, it addresses questions such as why caregiving is a dangerous activity, the ethical problems of writing about caregiving, the challenges of reading about caregiving, and why caregiving is so important. It serves as a fire starter on the subject of how we can gain insight into the challenges and opportunities of caregiving through the creative arts.
Caregiving: Our Labor of Love is the definitive caregiving experience. This experience took almost seven years to live through. This is a detailed account of that experience. In the next ten years, over 70 million souls will enter the caregiving experience for not only them but their families as well. This level of expectation is just within the United States alone. The United States government is pushing for in-home healthcare in these approaching years. For the numbers and figures that Ive listed, you can go to this website for verification. http://www.ncbi.nlm.nih.gov/books/NBK43619/ Let me just say that you amaze me what a good writer you are! I really believe that God has anointed you to write this for such a time as this and is going to use it mightily to help others. Mary Ann Gillespie of OurPrayer.org. Look for our company in late 2015 or early 2016 to be online. Google us by our logo. Our Company: We are a small but growing company with big plans for the future. We plan to not only help but empower the families that are going through their caregiving experiences. We have the knowledge, capability, and desire to encourage you to have the best possible caregiving experience you can have. No longer will you have to feel like you are struggling through your caregiving experience alone. We went through our experiences, and we know what is ahead of you in your experience. We know what worked for us and what didnt. Allow us to share our successes with you so that you and your family can benefit from our knowledge. We hope to bless and touch the lives of millions of families.
“. . . an engaging exploration of duty, guilt, and self-preservation. . . . A cleareyed consideration of difficult ethical and familial choices.” —KIRKUS REVIEWS Rachel likes to think of herself as a nice Jewish girl, dedicated to doing what’s honorable, just as her parents raised her to do. But when her husband, David, survives a plane crash and is left with severe brain damage, she faces a choice: will she dedicate her life to caring for a man she no longer loves, or walk away? Their marriage had been rocky at the time of the accident, and though she wants to do the right thing, Rachel doesn’t know how she is supposed to care for two kids in addition to a now irrational, incontinent, and seizure-prone grown man. And how will she manage to see her lover? But then again, what kind of selfish monster would refuse to care for her disabled husband, no matter how unhappy her marriage had been? Rachel wants to believe that she can dedicate her life to David’s needs, but knows in her heart it is impossible. Crash tackles a pervasive dilemma in our culture: the moral conflicts individuals face when caregiving for a disabled or cognitively impaired family member.
Mark and Giulia's life together began as a storybook romance. They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that she was the devil and that her loved ones were not safe. All she wanted was to die. Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. pushed to the edge of the abyss, everything the couple had once taken for granted was upended. A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach's is an intensely personal odyssey through the harrowing years of his wife's mental illness, anchored by an abiding devotion to family that will affirm readers' faith in the power of love.
The Accidental Caregiver stage production currently in development When thirty-two-year-old actor Gregor Collins reluctantly interviewed for a job as a caregiver more out of a favor to a friend - he had no idea his life was about to change forever. Seconds into a chance meeting in 2008 with, it would turn out, a world-renowned Holocaust refugee named Maria Altmann, there was an unexplainable magic in the air - it felt as if they had already met. And Collins was suddenly thrown into a situation with which he had never before been confronted: caring for someone other than himself. Gregor offers us a personal and unprecedented look at Maria over the three intimate years he cared for her - her thrilling escape from the Nazis, her fight and subsequent win in the landmark Supreme Court Case to return original Gustav Klimt artwork that belonged to her family in Austria, and the extraordinary people she met along the way. But the real heart of the story transcends mere historical fact. Through a refreshingly raw portrayal of their unlikely and unbreakable bond, imbued with humorous, candid anecdotes about his mercurial relationship with Hollywood, Gregor takes us on a deeply emotional journey of how he opened up his heart to a 92-year-old woman in need - and in turn experienced the love he had been searching for his entire life.
After a great loss, a teenager with muscular dystrophy and his caregiver venture out in a hair-raising road trip across the American West, in this lively, soulful novel that ponders life's terrible surprises and the heart's ability to heal.
A rich, penetrating memoir about the author's relationship with a flawed but influential figure—the painter Lucian Freud—and the satisfactions and struggles of a life lived through art. One of Britain's most important contemporary painters, Celia Paul has written a reflective, intimate memoir of her life as an artist. Self-Portrait tells the artist's story in her own words, drawn from early journal entries as well as memory, of her childhood in India and her days as a art student at London's Slade School of Fine Art; of her intense decades-long relationship with the older esteemed painter Lucian Freud and the birth of their son; of the challenges of motherhood, the unresolvable conflict between caring for a child and remaining commited to art; of the "invisible skeins between people," the profound familial connections Paul communicates through her paintings of her mother and sisters; and finally, of the mystical presence in her own solitary vision of the world around her. Self-Portrait is a powerful, liberating evocation of a life and of a life-long dedication to art.
Elder Rage, or Take My Father... Please: How to Survive Caring for Aging Parents--is a riveting true story as well as an extensive self-help book, with solutions for effective management, medically and behaviorally, of challenging elders who resist care. Jacqueline Marcell's poignant and often-humorous story of caring for her challenging elderly father and sweet but frail mother, addresses issues like how to get an obstinate elder to: give up driving, accept a caregiver, see a different doctor, take medication, go to adult day care, move to a new residence, etc. Includes: Behavior Modification Guidelines, 25 Q&A's=How Do I Handle My Elderly Loved One Who...?, Long-Term Care Insurance, Ten Warning Signs of Alzheimer's, How is Alzheimer's Diagnosed, Three Stages of Alzheimer's, Startling Statistics, Other Diseases That Act Like Alzheimer's, Jacqueline's Top Ten Recommendations, Hope For The Future, The Search for the Cure, Valuable Resources, Recommended Reading. Internationally known dementia specialist, Rodman Shankle, MS MD, contributes the Addendum: A Physician's Guide to Treating Dementia. Over 50 endorsements include: Hugh Downs, Regis Philbin, Dr. Dean Edell, Duke University Center for Aging, Dr. Nancy Snyderman/ABC News, Leeza Gibbons, Senator John D. Rockefeller IV, Rudy Tanzi/Harvard Medical School, and The Johns Hopkins Memory Clinic. http://www.elderrage.com
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.