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For young gay men who came of age in the United States in the 1980s, the HIV/AIDS epidemic was a formative experience in fear, hardship, and loss. Those who were diagnosed before 1996 suffered an exceptionally high rate of mortality, and the survivors -- both the infected individuals and those close to them -- today constitute a "bravest generation" in American history. The AIDS Generation: Stories of Survival and Resilience examines the strategies for survival and coping employed by these HIV-positive gay men, who together constitute the first generation of long-term survivors of the disease. Through interviews conducted by the author, it narrates the stories of gay men who have survived since the early days of the epidemic; documents and delineates the strategies and behaviors enacted by men of this generation to survive it; and examines the extent to which these approaches to survival inform and are informed by the broad body of literature on resilience and health. The stories and strategies detailed here, all used to combat the profound physical, emotional, and social challenges faced by those in the crosshairs of the AIDS epidemic, provide a gateway for understanding how individuals cope with chronic and life-threatening diseases. Halkitis takes readers on a journey of first-hand data collection (the interviews themselves), the popular culture representations of these phenomena, and his own experiences as one of the men of the AIDS generation. This riveting account will be of interest to health practitioners and historians throughout the clinical and social sciences -- or to anyone with an interest in this important chapter in social history. Cover photo courtesy of Fire Island Pines Historical Preservation Society.
Christopher Zyda confronts the long-buried and painful memories of his harrowing fifteen-year journey in The Storm: One Voice from the AIDS Generation, a heart-wrenching love story and coming-of-age tale during the early years of the AIDS crisis in Los Angeles. It all begins in the spring of 1983, when Chris, a twenty-one-year-old UCLA English Literature major and aspiring writer, risks ostracism when he comes out of the closet to his fraternity brothers just as the AIDS pandemic is beginning to explode in gay communities across the United States. Soon afterward, Chris meets and falls in love with Stephen, a graduate of Yale University and Law School, and the two of them build a life together as their friends start to fall sick and die from the spreading storm of AIDS. Stephen begins showing symptoms of AIDS in early 1986, and Chris faces a difficult choice as he is certain that he, too, eventually will be stricken by the disease. He abandons his writing career and attends the UCLA business school so that he can earn enough money to pay for healthcare during Stephen's illness. The Storm is filled with heart, optimism, and love, interspersed with Los Angeles history, gay and lesbian history, AIDS history, and the backdrop of the 1980s and 1990s. It is an unflinching and, at times, raw memoir of perseverance, integrity, forgiveness, the power of love, spiritual growth, Carpe Diem, dreams, and, most of all: survival and ultimate triumph.
An insightful study on children orphaned as a result of the AIDS epidemic with a Foreword by Desmond Tutu.
In the decades since it was identified in 1981, HIV/AIDS has devastated African American communities. Members of those communities mobilized to fight the epidemic and its consequences from the beginning of the AIDS activist movement. They struggled not only to overcome the stigma and denial surrounding a "white gay disease" in Black America, but also to bring resources to struggling communities that were often dismissed as too "hard to reach." To Make the Wounded Whole offers the first history of African American AIDS activism in all of its depth and breadth. Dan Royles introduces a diverse constellation of activists, including medical professionals, Black gay intellectuals, church pastors, Nation of Islam leaders, recovering drug users, and Black feminists who pursued a wide array of grassroots approaches to slow the epidemic's spread and address its impacts. Through interlinked stories from Philadelphia and Atlanta to South Africa and back again, Royles documents the diverse, creative, and global work of African American activists in the decades-long battle against HIV/AIDS.
This is the tale of a devastating pandemic, of lives cut painfully short; it's also a love letter. Derek, a distinguished designer and J, his husband, a pioneering entrepreneur and creator of both The Embassy Club, London’s answer to Studio 54, and iconic Heaven, Europe’s largest gay discotheque, met and fell in love more than 40 years ago. Their lives were high-octane, full of adventure, fun and fearless creativity. Suddenly their friends began to get sick and die – AIDS had arrived in their lives. When they got tested, J received what was then a death sentence: he was HIV Positive. While the onset of AIDS strengthened stigma and fear globally, they confronted their personal crisis with courage, humour and an indomitable resolve to survive. J’s battle lasted six long years. Turning to spiritual reflection, yoga, nature – and always to love – Derek describes a transformation of the spirit, how compassion and empathy rose phoenix-like from the flames of sickness and death. Out of this transformation also came Aids Ark, the charity they founded, which helped to save, amongst the world’s most marginalised people, more than 1,000 HIV Positive lives. This is a story of joy and triumph; about facing universal challenges; about the great rewards that come from giving back. Derek speaks for a generation who lived through a global health crisis that many in society refused even to acknowledge. His is a powerful story chronicling this extraordinary time.
Every queer person lives with the trauma of AIDS, and this plays out intergenerationally. Usually we hear about two generations—the first, coming of age in the era of gay liberation, and then watching entire circles of friends die of a mysterious illness as the government did nothing to intervene. And now we hear about younger people growing up with effective treatment and prevention available, unable to comprehend the magnitude of the loss. But there is another generation between these two, one that came of age in the midst of the epidemic with the belief that desire intrinsically led to death, and internalized this trauma as part of becoming queer. Between Certain Death and a Possible Future: Queer Writing on Growing up with the AIDS Crisis offers crucial stories from this missing generation in AIDS literature and cultural politics. This wide-ranging collection includes 36 personal essays on the ongoing and persistent impact of the HIV/AIDS crisis in queer lives. Here you will find an expansive range of perspectives on a specific generational story—essays that explore and explode conventional wisdom, while also providing a necessary bridge between experiences. These essays respond, with eloquence and incisiveness, to the question: How do we reckon with the trauma that continues to this day, and imagine a way out?
'The AIDS Generation' documents the lived experiences of HIV-positive gay men who are presently middle aged, long-term survivors of HIV/AIDS. Through the use of ethnography and life history interviews, the book delineates the resiliencies that these fifteen long-term survivors have demonstrated in coping with a life-threatening disease throughout the course of their adult lives.
Examines the strategies employed by the first generation of HIV-positive gay men to survive and cope and provides an understanding of how individuals cope with life-threatening diseases.
Viewing contemporary history from the perspective of the AIDS crisis, Jennifer Brier provides rich, new understandings of the United States' complex social and political trends in the post-1960s era. Brier describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy, even in the face of the expansion of the New Right. Infectious Ideas places recent social, cultural, and political events in a new light, making an important contribution to our understanding of the United States at the end of the twentieth century.
In this book ethnographic, historical and epidemiologic data are brought to bear on the subject of the Acquired Immune Deficiency Syndrome (AIDS) in Haiti. The forces that have helped to determine rates and pattern of spread of Human Immunodeficiency Virus (HIV) are examined, as are social responses to AIDS in rural and urban Haiti, and in parts of North America. History and its calculus of economic and symbolic power also help to explain why residents of a small village in rural Haiti came to understand AIDS in the manner that they did. Drawing on several years of fieldwork, the evolution of a cultural model of AIDS is traced. In a small village in rural Haiti, it was possible to document first the lack of such a model, and then the elaboration over time of a widely shared representation of AIDS. The experience of three villagers who died of complications of AIDS is examined in detail, and the importance of their suffering to the evolution of a cultural model is demonstrated. Epidemiologic and ethnographic studies are prefaced by a geographically broad historical analysis, which suggests the outlines of relations between a powerful center (the United States) and a peripheral client state (Haiti). These relations constitute an important part of a political-economic network termed the "West Atlantic system." The epidemiology of HIV and AIDS in Haiti and elsewhere in the Caribbean is reviewed, and the relation between the degree of involvement in the West Atlantic system and the prevalence of HIV is suggested. It is further suggested that the history of HIV in the Dominican Republic, Jamaica, Trinidad and Tobago, and the Bahamas is similar to that documented here for Haiti.