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A good mind knows the right answers...but a great mind knows the right questions. And never are the 10 Best Questions™ more important than after the life-altering diagnosis of Alzheimer's disease. Drawing on cutting-edge research and advice given by experts from the Alzheimer's Association, Mayo Clinic, and UCLA's Memory Clinic and Center for Aging -- as well as personal stories from caretakers, including television star and activist Linda Dano and nationally syndicated columnist Harriet Cole -- The 10 Best Questions™ for Living with Alzheimer's is a guide you'll take with you to your doctor's office and keep close at hand as your loved one progresses from the initial diagnosis through all the stages of the disease. In addition to the medical questions, you'll also learn what you need to ask your spouse or parent; questions to assess home safety issues, driving skills, and home care; and how to care for your own emotional, legal, and financial health. With a wealth of resources and up-to-the-minute information, The 10 Best Questions™ for Living with Alzheimer's shows you and your family how to move past a scary diagnosis and use the power of questions to become your own best health advocate -- for yourself and for your loved one.
The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
A medical expert answers your common questions about memory loss, causes of dementia, diagnosis, prevention, treatment, and more. Perhaps someone in your family has been diagnosed with Alzheimer disease—or maybe you worry about developing memory loss yourself. In Is It Alzheimer's?, Dr. Peter V. Rabins, a top expert in the field, educates readers by answering 101 often-asked questions about memory loss and dementia. Written in a conversational, easy-to-use Q&A style, the book is organized into seven unique sections. A companion to the best-selling The 36-Hour Day, which Dr. Rabins coauthored, this book discusses • how to distinguish typical memory loss from early dementia • how dementia is diagnosed • what factors play a role in the progression of dementia • whether it's possible to lower your risk of developing Alzheimer disease or dementia • how to improve the quality of life of people with dementia • how to assess long-term care facilities and nursing homes • available treatments, including medication • how to explain the symptoms of Alzheimer disease and dementia to others • how to provide caregivers with psychological and emotional support • and much more Aimed at friends and family members of the estimated 5.1 million US adults with dementia, as well as adults who are concerned about developing dementia, the book offers helpful directions and comfort. Is It Alzheimer's? is a quick, accessible, and essential reference for anyone who hopes to navigate the confusion of dementing illnesses.
New edition, completely rewritten, with new chapters on endovascular surgery and mitochrondrial and ion channel disorders.
The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
Caring for a loved one who is terminally ill can be tremendously stressful under any circumstances. If that person has a degenerative and dementing disease such as Alzheimer's, and is unable to participate in decisions regarding his or her care, the stress is that much greater. When it comes to making those difficult moral and ethical decisions which will preserve the dignity and integrity of the patient while also maintaining the caregiver's own selfhood, this is the book that can help. How much should the patient be told? How strongly should he be urged to plan for his own future? Is it ever right to lie to the patient about her condition? When is it right to place your loved one in a nursing home--and not feel guilty about it? How do different family members arrive at agreement among themselves in each of these situations? Authors and bioethicists James and Hilde Lindemann Nelson have written an invaluable step-by-step guide to tackling these and other difficult decisions. Using their extensive research on moral issues in health care, the Nelsons create hypothetical scenarios that demonstrate some of the most common situations caregivers will have to face during every stage of the illness, and show by example how they can make the right choices for themselves, the patient, and the rest of the family. This invaluable information, combined with a state-by-state and city-by-city guide to agencies and support groups offering practical assistance, as well as a list of suggested reading on the subject, make this book unique--and the most complete source of advice available.
A guide to dealing with a diagnosis of Alezheimer's: coping with the diagnosis, managing symptoms, plannig for the future, keeping hope and humor, participating in research, and more.
Leading experts from Duke University provide the cutting-edge information that every family affected by Alzheimer's needs--from the benefits of early detection to prolonging quality of life.
"When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident?An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.