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The book recommended by dementia experts and family caregivers as the most complete, practical guide to Alzheimer's and other dementias-now updated and expanded through end-of-life care. This new edition of Surviving Alzheimer's offers the best, most current thinking on how to help a loved one with memory loss and related symptoms without sacrificing YOU. You'll learn: What's behind odd, frustrating behaviors like repetition, wandering, personality changes, bathing resistance, and aggression-and what you can do How to defuse resentment, guilt, and family friction What to say for better communication and more cooperation Special advice for spouses, out-of-town caregivers, and other specific situations 100s of confidence-raising solutions from top doctors, social workers, dementia specialists, and family caregivers All in a fast, scannable format perfect for busy or overwhelmed dementia helpers.
In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.
With unfiltered observations and sometimes dark humor, author Dayna Steele chronicled her mother's journey with Alzheimer's on Facebook. This collection of Alzheimer's updates posted on the social media network includes biting humor and raw emotion as Dayna carries you from the diagnosis to the inevitable end. Also included are sections from a neurologist, Long Term Care insurance specialist, other caregivers, documents expert, elder care attorney, and an assisted living advisor. This is a journey way too many of us are going to experience in one way or another. If you have to experience Alzheimer's and chances are you will - do it like Dayna with love, wit, and wine.I would normally never read a book about Alzheimer's or click LIKE on a Facebook post about someone's declining mother. Dayna Steele sneaked past my defenses the same way that she dealt with her own misery - with humor - by making me laugh, she managed to break my heart. --Lisa Gray, Houston Chronicle Gray MattersThese observations are so gripping and so graphic. --a Facebook commentThis book is going to be of tremendous help to so many. --Dr. Roy Goldberg, Geriatrics, Albert Einstein College of Medicine
First person stories of patients who recovered from Alzheimer's Disease--and how they did it. It has been said that everyone knows a cancer survivor, but no one has met an Alzheimer's survivor - until now. In his first two books, Dr. Dale Bredesen outlined the revolutionary treatments that are changing what had previously seemed like the inevitable outcome of cognitive decline and dementia. And in these moving narratives, you can hear directly from the first survivors of Alzheimer's themselves--their own amazing stories of hope told in their own words. These first person accounts honestly detail the fear, struggle, and ultimate victory of each patient's journey. They vividly describe what it is like to have Alzheimer's. They also drill down on how each of these patients made the program work for them--the challenges, the workarounds, the encouraging results that are so motivating. Dr. Bredesen includes commentary following each story to help point readers to the tips and tricks that might help them as well. Dr. Bredesen's patients have not just survived; they have thrived to rediscover fulfilling lives, rewarding relationships, and meaningful work. This book will give unprecedented hope to patients and their families.
This text approaches the care of dementia patients via the experience of a psychiatrist as well as a caregiver, offering a holistic approach to care that is unlike any other book in the market. Laced with her experiences from both her professional and personal life, Huffington Post columnist and psychiatrist Dr. Carol W. Berman aims to educate mental health professionals on topics that they continue to grapple with, including diagnosis and treatment, behavioral challenges among patients, working with non-professional and professional caregivers, hospice care, and many other difficulties professionals face when caring for dementia patients. With the same easy-to-read yet informative tone Dr. Carol W. Berman is known for among her various clinical and lay resources, professionals find that this tool is an excellent resource for structuring care plans with the non-professional caregiver struggling with care management. Surviving Dementia: A Clinical and Personal Perspective is an outstanding resource for psychiatrists, psychologists, nurses, social workers, and other physicians interested in models of dementia care.
If you grew up within the christian community, and felt damaged by it, you are not alone. If you felt ashamed most of your childhood, because of what was being preached AT YOU, and not TO YOU, from behind a pulpit, you are not alone. If you long for a deeper and more meaningful relationship with Christ, you are not alone. It is my hope, that by the time you are finished reading the pages in this book, that you will know how deeply you are loved by God. It is my hope, that this book will give you a glimpse, into what it's like to love, and be loved by the real Jesus. I want to take you on a journey with me, of heartache, survival, self discovery, and ultimately, divine healing. If you are feeling lost like I was, don't worry. You can find your way back home, just like I did. You are not alone. I am right here with you, and we can do this together. I want to shed light on what this process of healing from spiritual abuse has looked like and felt like for me, in the hopes that you will be able to find your way back to a God who loves you, more than life itself. This book is about healing, from spiritual abuse and trauma. I hope you choose to take this journey with me.
Although the public most often associates dementia with Alzheimer’s disease, the medical profession continues to advance distinctions of various types of “other” dementias. What If It’s Not Alzheimer’s? is the first and remains the only comprehensive guide dealing with frontotemporal degeneration (FTD), the most common form of dementia for people under 60 years of age. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers. Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team, palliative approaches to managing care and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues along with end-of-life concerns. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private and community resources and legal options. The final section focuses on the caregiver, in particular the need for respite, holistic health practices and the challenge of managing emotions. This new, completely revised edition continues to follow worldwide collaboration in research and provides the most current medical information available including understanding of the different classifications of FTD, and more clarity regarding the role of genetics. Additionally, essays written by people living with the disease provide moving, first-hand experiences. The wealth of information offered in these pages will help both healthcare professionals and caregivers of someone suffering from frontotemporal degeneration.
Fade to Gray By: Richard Masinton My wife, Dana, was stricken with early-onset Alzheimer’s disease at the horrifyingly young age of 55. Fade to Gray is our story about dealing with the only disease for which modern medicine has no means to prevent, cure or slow its progression. Shock, disbelief and overwhelming emotions followed her diagnosis with a disease we thought only happened to the very elderly. Furthermore, I was appalled to discover that the business of Alzheimer’s care is broken. Caring and competent caregivers are hard to find, and assisted care facilities and other health care institutions that pride themselves on caring and competence are often anything but caring and competent. I refused to accept “business as usual” in confronting and dealing with this terrible illness, so Fade to Gray was written to share my challenging experiences and offer hard-earned lessons learned during Dana’s struggle. With no chance to alter the outcome, my purpose is to offer practical help, comforting wisdom and enduring hope to those whose lives are ruined by Alzheimer’s, hoping to alter what may otherwise seem a hopeless experience. This is not a story about how to COPE with Alzheimer’s. Fade to Gray was written to help others DEAL with and MANAGE a disease that is becoming a public health epidemic and an ineffective support infrastructure that annually costs families more than sending a child to Harvard!
The 36-Hour Day is the definitive dementia care guide.
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.