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It has long been known that people with learning disabilities have poorer health than the¬ general population, but the extent of these differences becomes striking when considering the evidence of reduced life expectancy. In 2013 the Confidential Inquiry into the Premature Deaths of People with Learning Disabilities reported that men typically die 13 years younger and women 20 years younger than the general population. In 42% of cases the death was considered premature. The reasons for this lower life expectancy are varied but what we do know is this group are two and a half times more likely to have multiple health needs than other people, and often have difficulties accessing health services or receiving appropriate treatment from clinicians. As well as looking at the challenges of accessing healthcare and navigating care pathways, this -handbook presents a practical guide to the most common conditions and health needs, with chapters written by experts in those conditions and their relationship to learning disabilities. A range of issues are covered, including mental health, cancer, epilepsy, respiratory and swallowing problems, and poor sight and hearing. The book aims to increase awareness and knowledge of how these conditions and issues present themselves, as well as how they can be prevented in the first place, and best practice in assessment and treatment. It will therefore be a valuable resource for families, support workers and health professionals.
We all worry about going into hospital. For people with intellectual disabilities there is the added fear of not being able to explain what is wrong, as well as not understanding what is happening. This book is designed to support patients like Martin and Mary, who are shown going into hospital, by explaining what happens to them there. Martin is having a planned operation and Mary is admitted as an emergency. Feelings, information and consent are all addressed. Ideally this book should be used to prepare someone before he or she goes into hospital. It will also be invaluable to hospital staff to use during consultations and before treatments, and to understand the needs of people with intellectual disabilities.
This book teaches pre-service special education teachers how to teach children with physical disabilities and health impairments (i.e., orthopedic impairments, visual impairments, deaf-blindness, etc.). Heller and her co-authors practically illustrate how to effectively monitor students' health, assist students in providing their own care, and intervene if significant health-related problems occur in the classroom. This text includes a wide variety of techniques for meeting the student's physical and health needs, including how to position the student for optimal instruction, lifting and handling procedures, feeding techniques, and how to work with health-related apparatus and medications.
Learning disabilities are among the most common disabilities experienced in childhood and adulthood. Although identifying learning disabilities in a school setting is a complex process, it is particularly challenging in low- and middle-income countries that lack the appropriate resources, tools, and supports. This guide provides an introduction to learning disabilities and describes the processes and practices that are necessary for the identification process. It also describes a phased approach that countries can use to assess their current screening and evaluation services, as well as determine the steps needed to develop, strengthen, and build systems that support students with learning disabilities. This guide also provides intervention recommendations that teachers and school administrators can implement at each phase of system development. Although this guide primarily addresses learning disabilities, the practices, processes, and systems described may be also used to improve the identification of other disabilities commonly encountered in schools.
Increasing interest over recent years in the study of the influences of environment and genetic factors on behavioural disorder has come from a wide range of disciplines. These studies have subsequently been focused through the foundation of the Society for the Study of Behavioural Phenotypes, which forms the basis for assimilating new information and coordinating future research in this field. This volume from founder members of the society presents a distillation of thinking and reviews appropriate measurement schedules. Including research findings, explanation of concepts, genetic scientific techniques and methodological issues, this work will be welcomed by those with an interest in behavioural disorder at every level.
This textbook presents a practical guide for new and experienced health or social care staff, helping them promote the health and well-being of people with learning disabilities. Given the considerable demand for mandatory training on supporting people with learning disabilities, especially in England, the book provides a valuable resource for all training courses on working with people with learning disabilities. The chapters are co-written by practitioners and people with learning disabilities and their families, rooting the book in the lived experiences of those concerned. Topics covered include core elements of being happy and healthy, communication, changes in our behaviour when we are unwell, making decisions about our health, accessing health services, how we would want to be treated if we were unwell, the use of psychotropic medication, what a ‘good death’ would be, and how to keep ourselves healthy. In addition, the chapters include narrative examples concerning people with learning disabilities and their families, so as to highlight key points and share best-practice examples. The use of personal reflection is used to consider how we can ensure that people with learning disabilities receive care and support that matches what we would expect for ourselves. Core questions at the end of each chapter ask the reader to reflect on how the chapter content relates to their own work and how they will apply what they have learned. A consistent theme throughout the book is equality of opportunity for people with learning disabilities to achieve good health. There is now substantial evidence that people with learning disabilities have poorer health than the general population, are more likely to have multiple health needs, and can experience difficulties in having their illnesses diagnosed and treated promptly. This book aims to help those supporting people with learning disabilities to achieve more equal outcomes.
This book is the second in a series with the International Association for the Scientific Study of Intellectual Disabilities (Series Editor: Matthew P. Janicki). These publications are designed to address the issues of health, adult development and aging among persons with intellectual disabilities. Physical health considerations of persons with an intellectual disability are attracting attention within the contexts of human rights, public health, and health promotion. Research has shown that the prevalence of certain conditions and diseases is much higher in adults with an intellectual disability than in the general population. Experts from specific healthcare specialties draw on a strong research base to discuss key physical health considerations for the intellectual disability community. The result is a core resource for practitioners, researchers, students and advocates in this field.
Learning disability nurses play a leading role in the care and support of people with learning disabilities. Learning Disability Nursing explores the theory and practice of learning disability nursing, with an emphasis on understanding the experiences of learning disability nurses as they seek to practice effectively. It examines key issues faced by people with learning disabilities and those who support them and promotes the role of knowledgeable and reflective practitioners. * Develops a framework for learning disability nursing practice * Examines key issues for people with learning disabilities * Identifies distinctive features of learning disability nursing * Supports learning disability nurses in developing their roles and to support those with learning disabilities in exercising their rights. * Explores ethical and moral dilemmas, challenges and successes