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Dr. Robert A. Naseef, a psychologist and father of a son with autism, details the daily blessings and challenges of raising a child with disabilities, offering sensitive, real-world advice along the way.
How do two parents who are blind take their children to the park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 per cent of Australian households have a parent with a disability, yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We’ve Got This, twenty-five parents who identify as Deaf, disabled or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory and empowering anthology. As Rebekah Taussig writes, ‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit – disabled parents exist.’ Contributors include Jacinta Parsons, Kristy Forbes, Graeme Innes, Jessica Smith, Jax Jacki Brown, Nicole Lee, Elly May Barnes, Neangok Chair, Renay Barker-Mulholland, Micheline Lee and Shakira Hussein. We’ve Got This will appeal to readers of Growing Up Disabled in Australia and other titles in the Growing Up series.
This text explores the impact of parental disability on children, especially where lack of support to families results in significant restrictions to children's day to day lives. It reviews the literature on parental disability and its impact on children; considers why concern for the children of disabled parents has emerged at this particular juncture of history; explores whether the presence of parental disability affects the self-reported health and well-being of children; discusses how children's strengths as well as their vulnerabilities can be identified and promoted; and suggests how more effective social care services can be delivered to children in families affected by disability or chronic illness.
Parents of children with special needs face unique emotional and practical challenges that are seldom addressed by the medical community. In Special Kids Need Special Parents, Judith Loseff Lavin -- herself the parent of a child with special needs -- draws on interviews with health care professionals, nationally recognized authorities, and other parents to give readers the answers, advice, and comfort they crave.-- Coping with chronic pain, sleep problems, and frequent hospitalizations -- Dealing with feelings of grief and anger -- Choosing a therapist -- Finding suitable, reliable childcare -- How to cope with teasing -- The impact a special needs child can have on a marriage, siblings, and grandparents -- Finding cosmetic, prosthetic, and orthotic help -- and more.
When a parent hears that their child has a disability, hearts and hopes are often broken. But faith doesn't have to be. In Unbroken Faith, Dianne Dokko Kim comes alongside you as a fellow special needs parent to help you reconcile the premise of a good God with the devastating realities of raising a disabled child. Kim courageously articulates deep-seated, unspoken doubts and fears you may have but are afraid to voice: Will my child still have a full life? Can I do this? Where is God in all this? As you are adjusting to your new normal, Kim's biblical-based encouragement will help you understand that you are not alone, that God gets it, and that God's Word is entirely relevant to the raw and messy yet hallowed spaces of special needs parenting.
This book reports on the first substantial UK study of parenting, disability and mental health, which examines the views of parents and children in 75 families ... It provides a comprehensive review of relevant policy issues, explores the barriers to full participation in parenting that disabled parents face, examines the complex ways in which broader social issues ... interact with disability, and advocated measires to support disabled parents and their families ...
Raising a child with a disability can often be more isolating and frustrating than any parent ever imagines. Finally, here is a book that honestly describes the inner needs and range of issues parents with disabled children face. Changed by a Child invites parents to take a moment for themselves. Each of the brief readings offers comfort and hope as they capture the unique challenges and joys of raising a disabled child.
Cultivate effective partnerships between parents and professionals through honest, respectful and skillful communication The authors draw upon the metaphor of "dance" to better understand the complexities and possibilities of forming partnerships between educators, administrators, early childhood providers, therapists, support staff, other professionals, and parents of children with disabilities. This revised edition of Do You Hear What I Hear? Parents and Professionals Working Together for Children With Special Needs is rich with stories, examples, and practical insights. This book, written from both the parent′s and the professional′s points of view, provides a developmental approach to understanding and forging positive adult relationships, while also providing concrete ways to advocate for children. The authors′ years of experience as successful consultants, trainers, and educators lends this helpful resource a deep sense of realism and compassion. They remind the reader of how essential the parent-professional partnership is—and why it IS a dance that matters. Key features include: Practical insights and evidence-based approaches to forming partnerships Easy-to-read, non-technical language that speaks to both the heart and the mind Sample letters and other forms of communication shared between professionals and parents Stories and examples of real-world conversations between parents and professionals Effective ways to handle difficult situations Rich with humor and heart, this highly readable book offers helpful steps for self reflection, personnel preparation, and parent-professional training. Educators and parents will find expert guidance for listening to each other′s music, trying out each other′s dance steps, and working toward a new dance that includes contributions from all—with the ultimate reward of seeing children achieve their highest potential.
Happier lives. Less stress. Family harmony. That's what all parents of children with challenging behavior want. Learn how to get there with this groundbreaking guide to confident, skillful, and positive parenting. A book you'll want to share with every family you know, Optimistic Parenting helps moms, dads, and other caregivers develop more positive thoughts and perceptions--a key ingredient of successful parenting and effective behavior management. One of the most highly regarded experts on challenging behavior--and a parent himself--Dr. V. Mark Durand delivers both philosophical hope and practical help to parents of children with a wide range of challenges. With keen insight, gentle humor, and practical tools and strategies, Durand guides parents step by step through the process of pinpointing the "why" behind challenging behavior tuning in to their own thoughts, emotions, and self-talk understanding how their thoughts affect their interactions with their child interrupting negative thoughts and replacing them with positive, productive ones achieving a healthy balance between taking care of their own needs and their child's needs using effective emergency strategies when quick behavior intervention is needed implementing long-term strategies for lasting behavior improvements weaving functional communication training into everyday routines and interactions addressing the most common problem areas, such as sleep and transitions increasing mindfulness and parenting "in the moment" Engaging stories from the author's extensive experience illustrate how parents and other caregivers can develop more effective behavior management techniques. And practical tools and exercises, developed and tested during Durand's decades of work with thousands of parents, help families on their own journey to better parenting and happier lives. A lifeline for overwhelmed parents--and a great source of insight for the professionals who work with them--this highly motivating guidebook will help families reduce children's challenging behaviors and approach the future with optimism and confidence.
It’s hard enough for today’s parents to raise faith- filled children. But for the parents of kids with special needs, the challenges can be almost overwhelming; these parents’ own spirituality may suffer amidst the daily obstacles of raising a child with disabilities, and they may wonder how—or even if—their child can ever experience a meaningful spiritual life. In Faith, Family, and Children with Special Needs, David Rizzo—whose 12-year-old daughter has autism—offers great hope for parents who want to grow in their own spirituality while helping their children with disabilities experience God in a deeper way. Throughout the book, Rizzo’s abiding though sometimes tested Catholic faith is made clear as he thoughtfully explains everything from the practical, such as how parents can maintain sanity during Mass when the child with special needs becomes disruptive, to the profound, such as how parents can understand God in a way that is relevant to their predicament. At other times, Rizzo’s advice is intended to help the child grow in his or her own faith, as when he explains how kids with special needs can participate meaningfully in the Eucharist. By looking at big-picture issues of faith while also providing speci fic tips to nurture spiritual growth in parents and in their children with disabilities, Faith, Family, and Children with Special Needs will serve as a highly useful and inspiring resource for anyone in the community of faith who interacts with children with disabilities.