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Niethammer, a prominent paediatric oncologist, explains why it is so important to speak frankly and respectfully to young patients about their disease. The question at the heart of this book is how children and adolescents feel and think about death and dying.
Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.
Befriending the North Wind is about the moral lives of children and their agency in decisions about death. It examines the dimensions of human meaning children reveal and the new horizons they open to us. It asserts that children can die a good death and that they can and should have a voice in their end-of-life care.
Understanding Death and Dying teaches students about death, dying, bereavement, and afterlife beliefs by asking them to apply this content to their lives and to the world around them. Students see differing cultural experiences discussed in context with key theories and research. The text’s pedagogy delivers relevant multi- and cross-cultural applications and connections across topics. This helps students evaluate their personal assumptions and appreciate how the content applies to their own current and future roles as individuals, family members, work colleagues, and as part of a community. The text simultaneously challenges learners to consider their own perspectives and to think critically about the parallels between their own lives and different cultures. Included with this title: The password-protected Instructor Resource Site (formally known as SAGE Edge) offers access to all text-specific resources, including a test bank and editable, chapter-specific PowerPoint® slides.
This book helps support developmentally sensitive nursing and allied health practice by integrating the therapeutic powers of play into child and adolescent health care service provision. It is designed to link play, child development, neuroscience, biopsychosocial and attachment theories with the biomedical model of health. Nurses and allied health professionals work with children aged between 0-18 years and with diverse childhood illnesses, injuries, diseases, disorders, and conditions, and are therefore in a prime position to understand and support children through potentially painful and traumatic health care experiences. Understanding of the role of play and the application of the therapeutic powers of play in communicating with children and families has the potential to significantly optimise paediatric care. The theory and play based strategies, tools and techniques presented in this book assist nurses and health care professionals to engage with children in an age-appropriate manner and ‘speak’ with children through their natural language of play, to enhance comprehension, coping, resiliency, and healing. Play is recognised as a sequentially developing ability and can be aligned with the child’s age and stage of life. Play based approaches can be placed on a continuum from fully child led or non-directive play to adult facilitated educative play. Medical information can be tailored according to the various points along this continuum to inform clinical reasoning and to help children prepare for procedures, recover from medical interventions and / or make sense of their diagnosis. Whilst this book is directed at nurses and allied health professionals who work with children and their families, it may also be a valuable resource for medical and other professionals in community or educational settings to work systemically as a team. The book takes the reader on a journey to illustrate various professional and therapeutic roles in how to playfully engage children through a range of case vignettes.
Challenging assumptions about caregiving for those dying of chronic illness. What is it like to live with—and love—someone whose death, while delayed, is nevertheless foretold? In Living in Death’s Shadow, Emily K. Abel, an expert on the history of death and dying, examines memoirs written between 1965 and 2014 by family members of people who died from chronic disease. In earlier eras, death generally occurred quickly from acute illnesses, but as chronic disease became the major cause of mortality, many people continued to live with terminal diagnoses for months and even years. Illuminating the excruciatingly painful experience of coping with a family member’s extended fatal illness, Abel analyzes the political, personal, cultural, and medical dimensions of these struggles. The book focuses on three significant developments that transformed the experiences of those dying and their intimates: the passage of Medicare and Medicaid, the growing use of high-tech treatments at the end of life, and the rise of a movement to humanize the care of dying people. It questions the exalted value placed on acceptance of mortality as well as the notion that it is always better to die at home than in an institution. Ultimately, Living in Death’s Shadow emphasizes the need to shift attention from the drama of death to the entire course of a serious chronic disease. The chapters follow a common narrative of life-threatening disease: learning the diagnosis; deciding whether to enroll in a clinical trial; acknowledging or struggling against the limits of medicine; receiving care at home and in a hospital or nursing home; and obtaining palliative and hospice care. Living in Death’s Shadow is essential reading for everyone seeking to understand what it means to live with someone suffering from a chronic, fatal condition, including cancer, AIDS, Alzheimer’s, and heart disease.
The meaning of our concern for mortal remains—from antiquity through the twentieth century The Greek philosopher Diogenes said that when he died his body should be tossed over the city walls for beasts to scavenge. Why should he or anyone else care what became of his corpse? In The Work of the Dead, acclaimed cultural historian Thomas Laqueur examines why humanity has universally rejected Diogenes's argument. No culture has been indifferent to mortal remains. Even in our supposedly disenchanted scientific age, the dead body still matters—for individuals, communities, and nations. A remarkably ambitious history, The Work of the Dead offers a compelling and richly detailed account of how and why the living have cared for the dead, from antiquity to the twentieth century. The book draws on a vast range of sources—from mortuary archaeology, medical tracts, letters, songs, poems, and novels to painting and landscapes in order to recover the work that the dead do for the living: making human communities that connect the past and the future. Laqueur shows how the churchyard became the dominant resting place of the dead during the Middle Ages and why the cemetery largely supplanted it during the modern period. He traces how and why since the nineteenth century we have come to gather the names of the dead on great lists and memorials and why being buried without a name has become so disturbing. And finally, he tells how modern cremation, begun as a fantasy of stripping death of its history, ultimately failed—and how even the ashes of the victims of the Holocaust have been preserved in culture. A fascinating chronicle of how we shape the dead and are in turn shaped by them, this is a landmark work of cultural history.
Heidi, The Secret Garden, and Pollyanna are all classic "girls' books, " featuring a miracle cure of an invalid character who literally gets up and walks away from illness or paralysis. Such stories were common in Victorian novels and they implicitly conveyed the idea that disability and physical suffering were punishment for wrongdoing: unruly girls could not enter womanhood unless they were tamed, and an accident was the perfect plot device for this transformation. Other characters, like Helen Burns in Jane Eyre or Beth in Little Women, were just too good to live, and died so that another character could be redeemed by their example. Lois Keith points out in this study that the temptation to either cure or kill off disabled characters has surprising tenacity. The widespread belief that a disabled life isn't a full life and that patients can cure themselves through force of will endures to the present day. In Take Up Thy Bed & Walk, Lois Keith brings her lively and observant eye to the classic books of childhood from Jane Eyre, Heidi, and Pollyanna, to modern American classics such as Laura Ingalls Wilder's Little House on the Prairie and Judy Blume's Deenie. Keith explores the recurring images of impairment and ill health in literature and asks the reader to reconsider the messages they send to a devoted young audience. This book is also a testament to the singular passion with which these books are read by younger readers and reminds us of the intensity of our own reading experience as children.
In this extended love letter to children's books, and the wonders they perform, Spufford goes back to his earliest encounters with books, exploring such beloved classics as "The Wind in the Willows, The Little House on the Prairie," and the Narnia chronicles.
Up-to-date with the NCLEX-RN® 2016 Test Plan. Too much information? Too little time? Here’s everything you need to succeed in your fundamentals of nursing course and prepare for course exams and the NCLEX®. Succinct content review in outline format focus on must-know information, while case studies and NCLEX-style questions develop your ability to apply your knowledge in simulated clinical situations. You’ll also find proven techniques and tips to help you study more effectively, learn how to approach different types of questions, and improve your critical-thinking skills.