Yousra Hedna
Published: 2021-09-03
Total Pages: 273
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Jenna is an ordinary 12-year-old girl. One summer day, she notices that her body can no longer do the things it used to. She becomes unable to walk, open her eyes, eat, etc. She soon notices that there is something wrong with her. At the end of summer, she is taken to doctors and diagnosed with a rare, chronic, auto-immune, neuromuscular illness called Myasthenia Gravis. Jenna's life is no longer the same, dealing with doctors, medicine, school and friendships all simultaneously. Jenna learns to deal with the illness but starts struggling with the side effects of her medication, taking a huge toll on mental health, such as anxiety. Jenna soon learns that strength isn't something possible solely through muscle, but rather so much more. Read to follow Jenna's journey. Read A Snowflake In The Desert to get raw, emotional and real insight on what life with a rare disease for a young girl is really like, and how an individual's life is affected. This book is a perfect read for people above age 12 to learn about what life with a chronic, rare disease is like, and how to cope with it. By reading this book, you are helping spread awareness about the illness: Myasthenia Gravis If you are someone with a chronic disease yourself, you will definitely enjoy and relate to this book.