Shirley Swier Jones
Published: 2020-05-28
Total Pages: 192
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"Vernon was twenty-one, handsome, kind, fun-loving and Christian, and he was stealing my heart." Thus began a love story that would evolve over the next twenty-three years through the blessing of five children and the sadness of living with a tragic, hereditary disease. That disease would continue to impact our family for more than fifty years. This story is a personal one. It is a story of deep sorrow mingled with the joy that comes from family, love, commitment, and faith. A heartbreaking story of love and loss in the struggle with the inherited disease, ataxia. This author bares her heart as she tells the story of losing her husband and two sons while striving, through the years to overcome this tragic disease. The writer's tenacity and vulnerability invite the reader to enter the story and leave with a more compassionate heart. -Ramona Wade MA, LMFT A powerful account of the impact that chronic, long-term illness has on an entire family. This story will evoke deep compassion and understanding in the reader. Those in helping professions will gain insight into the needs of individuals and families who live with the day to day challenge of long-term illness and disease. This book holds your attention, and your heart, until the last page. -Norma Haan MSSA, CSW-PIP, Psychotherapist