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When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
An unlikely turn of events and an unforeseen diagnosis of non-Hodgkins lymphoma changes the path of 23-year old Marquel Towner. Aware that her nephew is fighting for his life, Patricia makes the journey home to help care for and spend time with him. Through her nephews illness, she gives a riveting, up-close and personal look into the daily challenges and life-changing moments that she and her family face in the awake of this terrible enemy. This is a true story of one aunts love and the inner struggles she faces with her dying nephew. This book of human love, loss, and personal stories as told by family and friends will make you laugh, cry, and be inspired, as you come to realize that there truly are ANGELS who walk among us.
In order to make decisions and offer quality health care, it is essential to be able to predict survival and other outcomes. This practical, evidence-based book brings together prognosis information for patients with advanced cancer.
Palliative care provides comprehensive support for severely affected patients with any life-limiting or life-threatening diagnosis. To do this effectively, it requires a disease-specific approach as the patients’ needs and clinical context will vary depending on the underlying diagnosis. Experts in the field of palliative care and oncology describe in detail the needs of patients with advanced cancer in comparison to those with non-cancer disease and also identify the requirements of patients with different cancer entities. Basic principles of symptom control are explained, with careful attention to therapy for pain associated with either the cancer or its treatment and to symptom-guided antineoplastic therapy. Complex therapeutic strategies for palliative cancer patients are highlighted that involve both cancer- and symptom-directed options and address a range of therapeutic aims. Issues relating to drug use in palliative cancer care are fully explored, and a separate section is devoted to care in the final phase. A range of organizational and policy issues are also discussed, and the book concludes by considering likely future developments in palliative care for cancer patients. Palliative Care in Oncology will be of particular interest to palliative care physicians who are interested in broadening the scope of their disease-specific knowledge, as well as to oncologists who wish to learn more about modern palliative care concepts relevant to their day-to-day work with cancer patients.
Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.
As a part-time hospice volunteer, Eric Lindner provides “companion care” to dying strangers. They’re chatterboxes and recluses, religious and irreligious; battered by cancer, congestive heart failure, Alzheimer’s, old age. Some cling to life amazingly. Most pass as they expected. In telling his story, Lindner reveals the thoughts, fears, and lessons of those living the ends of their lives in the care of others, having exhausted their medical options or ceased treatment for their illnesses. In each chapter, Lindner not only reveals the lessons of lives explored in their final days, but zeroes in on how working for hospice can be incredibly fulfilling. As he’s not a doctor, nurse, or professional social worker, just a volunteer lending a hand, offering a respite for other care providers, his charges often reveal more, and in more detail, to him than they do to those with whom they spend the majority of their time. They impart what they feel are life lessons as they reflect on their own lives and the prospect of their last days. Lindner captures it all in his lively storytelling. Anyone who knows or loves someone working through end of life issues, living in hospice or other end of life facilities, or dealing with terminal or chronic illnesses, will find in these pages the wisdom of those who are working through their own end of life issues, tackling life’s big questions, and boiling them down into lessons for anyone as they age or face illness. And those who may feel compelled to volunteer to serve as companions will find motivation, inspiration, and encouragement. Rather than sink under the weight of depression, pity, or sorrow, Lindner celebrates the lives of those who choose to live even as they die.
From the author of the acclaimed debut novel The Curiosity comes an emotionally resonant tale about a woman who must take care of two wounded men – one, her soldier-husband, just home from the war in Iraq; the other, a dying World War II scholar-historian who harbors a long-buried secret. Deborah Birch is a seasoned hospice nurse whose daily work requires courage and compassion. But her skills and experience are tested in new and dramatic ways when her easygoing husband, Michael, returns from his third deployment to Iraq haunted by nightmares, anxiety, and rage. She is determined to help him heal, and to restore the tender, loving marriage they once had. At the same time, Deborah’s primary patient is Barclay Reed, a retired history professor and expert in the Pacific Theater of World War II whose career ended in academic scandal. Alone in the world, the embittered professor is dying. As Barclay begrudgingly comes to trust Deborah, he tells her stories from that long-ago war, which help her find a way to help her husband battle his demons. Told with piercing empathy and heartbreaking realism, The Hummingbird is a masterful story of loving commitment, service to country, and absolution through wisdom and forgiveness.
This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still needs to be explained. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and theirfamilies. However, the science of palliative care is advancing and this new edition will contribute to a better understanding of this specialty. This new edition offers 20 new chapters out of over 120, written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.