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Each year more than 4 million children are born with birth defects. This book highlights the unprecedented opportunity to improve the lives of children and families in developing countries by preventing some birth defects and reducing the consequences of others. A number of developing countries with more comprehensive health care systems are making significant progress in the prevention and care of birth defects. In many other developing countries, however, policymakers have limited knowledge of the negative impact of birth defects and are largely unaware of the affordable and effective interventions available to reduce the impact of certain conditions. Reducing Birth Defects: Meeting the Challenge in the Developing World includes descriptions of successful programs and presents a plan of action to address critical gaps in the understanding, prevention, and treatment of birth defects in developing countries. This study also recommends capacity building, priority research, and institutional and global efforts to reduce the incidence and impact of birth defects in developing countries.
Niethammer, a prominent paediatric oncologist, explains why it is so important to speak frankly and respectfully to young patients about their disease. The question at the heart of this book is how children and adolescents feel and think about death and dying.
[This] is a story of love, hope, and healing. There are 18 chapters covering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they go on living. This book is a collection of clinical wisdom, theoretical knowledge and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement. --Betty Ferrell, PhD, RN, MA, FAAN, FPCN, CHPN From the Foreword This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and the nurses and other healthcare providers who provide care to those involved. Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book will enhance the expertise of clinicians caring for bereaved women and their families. It Includes case studies, interview excerpts, graphics and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification exam. Key Features: Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss Disseminates the newest theoretical frameworks that can be used to create interventions and develop research Includes case studies demonstrating how theory is applicable to research and practice Facilitates critical thinking with different and even competing perspectives Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation
Children are already learning at birth, and they develop and learn at a rapid pace in their early years. This provides a critical foundation for lifelong progress, and the adults who provide for the care and the education of young children bear a great responsibility for their health, development, and learning. Despite the fact that they share the same objective - to nurture young children and secure their future success - the various practitioners who contribute to the care and the education of children from birth through age 8 are not acknowledged as a workforce unified by the common knowledge and competencies needed to do their jobs well. Transforming the Workforce for Children Birth Through Age 8 explores the science of child development, particularly looking at implications for the professionals who work with children. This report examines the current capacities and practices of the workforce, the settings in which they work, the policies and infrastructure that set qualifications and provide professional learning, and the government agencies and other funders who support and oversee these systems. This book then makes recommendations to improve the quality of professional practice and the practice environment for care and education professionals. These detailed recommendations create a blueprint for action that builds on a unifying foundation of child development and early learning, shared knowledge and competencies for care and education professionals, and principles for effective professional learning. Young children thrive and learn best when they have secure, positive relationships with adults who are knowledgeable about how to support their development and learning and are responsive to their individual progress. Transforming the Workforce for Children Birth Through Age 8 offers guidance on system changes to improve the quality of professional practice, specific actions to improve professional learning systems and workforce development, and research to continue to build the knowledge base in ways that will directly advance and inform future actions. The recommendations of this book provide an opportunity to improve the quality of the care and the education that children receive, and ultimately improve outcomes for children.
Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
Child injuries are largely absent from child survival initiatives presently on the global agenda. Through this report, the World Health Organization, the United Nations Children's Fund and many partners have set out to elevate child injury to a priority for the global public health and development communities. It should be seen as a complement to the UN Secretary-General's study on violence against children released in late 2006 (that report addressed violence-related or intentional injuries). Both reports suggest that child injury and violence prevention programs need to be integrated into child survival and other broad strategies focused on improving the lives of children. Evidence demonstrates the dramatic successes in child injury prevention in countries which have made a concerted effort. These results make a case for increasing investments in human resources and institutional capacities. Implementing proven interventions could save more than a thousand children's lives a day.--p. vii.
Publisher description
Includes proceedings and papers of the American Association for Labor Legislation previously published in the two series: Proceedings and Legislative review.
Offering the keen insight and expertise of a new author team and new contributors, the Fourth Edition of Kotch's Maternal and Child Health: Problems, Programs, and Policy in Public Health continues to offer a comprehensive, trusted introduction to the field of maternal and child health (MCH), while addressing the traditional MCH topics in a modern context that includes race/ethnicity, an expanded family focus, and a broadened approach that will appeal to health professionals both in and outside of public health practice. Organized according to fundamental principles of MCH, the book covers traditional MCH topics such as family planning and maternal and infant health as well as skills that are applicable across Public Heath disciplines such as planning, research, monitoring, and advocacy.