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Genetic screening technologies involving pre-implantation genetic diagnosis (PGD) raise particular issues about selective reproduction and the welfare of the child to be born. How does selection impact on the identity of the child who is born? Are children who are selected for a particular purpose harmed or treated as commodities? How far should the state interfere with parents’ reproductive choices? Currently, concerns about the welfare of the child in selective reproduction have focused on the individual interests of the child to be born. This book re-evaluates the welfare of the child through the controversial topic of saviour sibling selection. Drawing on relational feminist and communitarian ethics, Michelle Taylor-Sands argues that the welfare of the child to be born is inextricably linked with the welfare of his/her family. The author proposes a relational model for selective reproduction based on a broad conception of the welfare of the child that includes both individual and collective family interests. By comparing regulation in the UK and Australia, the book maps out how law and policy might support a relational model for saviour sibling selection. With an interdisciplinary focus, Saviour Siblings: A Relational Approach to the Welfare of the Child in Selective Reproduction will be of particular interest to academics and students of bioethics and law as well as practitioners and policymakers concerned with the ethics of selective reproduction.
This book focuses on the use of Assisted Reproductive Technology (ART) in the context of families who seek to conceive a matching sibling donor as a source of tissue to treat an existing sick child, referred to as ‘saviour siblings’. The author considers the legal and regulatory frameworks that impact on the accessibility of this technology in Australia and the UK, and analyses the ethical and moral issues that arise from the use of the technology for this specific purpose.
Genetic screening technologies involving pre-implantation genetic diagnosis (PGD) raise particular issues about selective reproduction and the welfare of the child to be born. How does selection impact on the identity of the child who is born? Are children who are selected for a particular purpose harmed or treated as commodities? How far should the state interfere with parents’ reproductive choices? Currently, concerns about the welfare of the child in selective reproduction have focused on the individual interests of the child to be born. This book re-evaluates the welfare of the child through the controversial topic of saviour sibling selection. Drawing on relational feminist and communitarian ethics, Michelle Taylor-Sands argues that the welfare of the child to be born is inextricably linked with the welfare of his/her family. The author proposes a relational model for selective reproduction based on a broad conception of the welfare of the child that includes both individual and collective family interests. By comparing regulation in the UK and Australia, the book maps out how law and policy might support a relational model for saviour sibling selection. With an interdisciplinary focus, Saviour Siblings: A Relational Approach to the Welfare of the Child in Selective Reproduction will be of particular interest to academics and students of bioethics and law as well as practitioners and policymakers concerned with the ethics of selective reproduction.
Advances in the field of Assisted Reproductive Technology (ART) have been revolutionary. This book focuses on the use of ARTs in the context of families who seek to conceive a matching sibling donor as a source of tissue to treat an existing sick child. Such children have been referred to as 'saviour siblings'. Considering the legal and regulatory frameworks that impact on the accessibility of this technology in Australia and the UK, the work analyses the ethical and moral issues that arise from the use of the technology for this specific purpose. The author claims the only justification for limiting a family's reproductive liberty in this context is where the exercise of reproductive decision-making results in harm to others. It is argued that the harm principle is the underlying feature of legislative action in Western democratic society, and as such, this principle provides the grounds upon which a strong and persuasive argument is made for a less-restrictive regulatory approach in the context of 'saviour siblings'. The book will be of great relevance and interest to academics, researchers, practitioners and policy makers in the fields of law, ethics, philosophy, science and medicine.
Using one family's dramatic and emotional story as an entry point, award-winning journalist Whitehouse delves into the complex bioethics of preimplantation genetic diagnosis (PGD), exploring whether it is defensible to create a "savior sibling" by scientific manipulation.
The purpose of this thesis is to explore the ethics of the process for creating and using savior siblings as genetic material donors. In the past twenty years, use of savior siblings has increased when living donors cannot be located. Traditionally, a savior sibling is a child conceived to provide transplantable genetic material needed by another sibling. This thesis suggests a broader and more useful definition of "savior siblings." While usage of savior siblings has increased, little research has been done to understand how being a savior sibling influences the psychosocial development of these children. Chapter 1 of this thesis briefly presents the climate surrounding savior siblings and briefly examines some international processes for creating and using savior siblings. Chapter 2 contains a review of existing research regarding savior siblings. Chapter 3 discusses the ethical concerns related to the creation and use of savior siblings. Chapter 4 analyzes two fictional films that present narratives about the dangers of unrestricted savior sibling use. Finally, Chapter 5 reviews and proposes guidelines for reducing trauma associated with serving as a savior sibling.
Discusses genetic engineering, including its history, why some people are against it, and how it is used in modern society.
Should we make people healthier, smarter, and longer-lived if genetic and medical advances enable us to do so? Matti Häyry asks this question in the context of genetic testing and selection, cloning and stem cell research, gene therapies and enhancements. The ethical questions explored include parental responsibility, the use of people as means, the role of hope and fear in risk assessment, and the dignity and meaning of life. Taking as a starting point the arguments presented by Jonathan Glover, John Harris, Ronald M. Green, Jürgen Habermas, Michael J. Sandel, and Leon R. Kass, who defend a particular normative view as the only rational or moral answer, Matti Häyry argues that many coherent rationalities and moralities exist in the field, and that to claim otherwise is mistaken.
"The Savior's Sister is utterly unputdownable. It's compulsive, addictive, and mesmerizing. If you love romance, fantasy, and bloodshed, ignore your TBR pile, this is the only dark fantasy novel you need." - Sacha Black, BESTSELLING fantasy and nonfiction writing craft author In the thrilling companion to one of Book Depository's Best Books of All Time, experience the peril and heart-stopping romance through Leila's fresh perspective. Leila Tūs Salvatíraas, Savior of Thessen and magical Queen of Her realm, is worshiped by all. Except Her father. He wants Her dead. The Sovereign's Tournament-a centuries-long tradition designed to select The Savior's husband-is days away, but Brontes's plan to overthrow his daughter ignites, shifting the objective of the competition from marriage to murder. With the help of Her sisters and some unexpected allies, Leila must unravel Brontes's network and prevent Her own assassination. But as the body count rises, She learns the deception runs far deeper than She imagined. When She finds Herself falling for one of the tournament competitors, Her father finds himself another target for murder. Can Leila save Herself and Her beloved, or is their untimely end-and the corruption of Her realm-inevitable? TRIGGER WARNINGS: This book contains graphic violence, sexual situations, physical abuse, adult language, and references to suicide. "The Savior's Sister is one of those gritty, sexy (and occasionally violent) books you can't put down. I can't wait to see what's next for Leila and Tobias." - Meg LaTorre, FOUNDER of iWriterly and science fiction and fantasy author
Progress in genetic and reproductive technology now offers us the possibility of choosing what kinds of children we do and don't have. Should we welcome this power, or should we fear its implications? There is no ethical question more urgent than this: we may be at a turning-point in the history of humanity. The renowned moral philosopher and best-selling author Jonathan Glover shows us how we might try to answer this question, and other provoking and disturbing questions to which it leads. Surely parents owe it to their children to give them the best life they can? Increasingly we are able to reduce the number of babies born with disabilities and disorders. But there is a powerful new challenge to conventional thinking about the desirability of doing so: this comes from the voices of those who have these conditions. They call into question the very definition of disability. How do we justify trying to avoid bringing people like them into being? In 2002 a deaf couple used sperm donated by a friend with hereditary deafness to have a deaf baby: they took the view that deafness is not a disability, but a difference. Starting with the issues raised by this case, Jonathan Glover examines the emotive idea of 'eugenics', and the ethics of attempting to enhance people, for non-medical reasons, by means of genetic choices. Should parents be free, not only to have children free from disabilities, but to choose, for instance, the colour of their eyes or hair? This is no longer a distant prospect, but an existing power which we cannot wish away. What impact will such interventions have, both on the individuals concerned and on society as a whole? Should we try to make general improvements to the genetic make-up of human beings? Is there a central core of human nature with which we must not interfere? This beautifully clear book is written for anyone who cares about the rights and wrongs of parents' choices for their children, anyone who is concerned about our human future. Glover handles these uncomfortable questions in a controversial but always humane and sympathetic manner.