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The media, scientific researchers, and the Diagnostic and Statistical Manual all refer to "autism" as if it were a single disorder or a single disorder over a spectrum. However, autism is unlike any single disorder in a variety of ways. No single brain deficit is found to cause it, no single drug is found to affect it, and no single cause or cure has been found despite tremendous research efforts to find same. Rethinking Autism reviews the scientific research on causes, symptomology, course, and treatment done to date.and draws the potentially shocking conclusion that "autism" does not exist as a single disorder. The conglomeration of symptoms exists, but like fever, those symptoms aren't a disease in themselves, but rather a result of some other cause(s). Only by ceasing to think of autism as a single disorder can we ever advance research to more accurately parse why these symptoms occur and what the different and varied causes may be. Autism is a massive worldwide problem with increasing prevalence rates, now thought to be as high as 1 in 38 children (Korea) and 1 in 100 children (CDC- US) Autism is the 3rd most common developmental disability; 400,000 people in the United States alone have autism Autism affects the entire brain, including communication, social behavior, and reasoning and is lifelong There is no known cause and no cure Funding for autism research quadrupled from 1995 to 2000 up to $45 million, and the Interagency Autism Coordinating Committee has recommended $1 billion funding from 2010-2015
Challenging existing approaches to autism that limit, and sometimes damage, the individuals who attract and receive the label, this book questions the lazy prejudices and assumptions that can surround autism as a diagnosis in the 21st Century. Arguing that autism can only be understood through examining 'it' as a socially or culturally produced phenomenon, the authors offer a critique of the medical model that has produced a perpetually marginalising approach to autism, and explain the contradictions and difficulties inherent in existing attitudes. They examine and dispute the scientific validity of diagnosis and 'treatment', asking whether autism actually exists at the biological level, and question the value of diagnosis in the lives of those labelled with autism. The book recognises that there are no easy answers but encourages engagement with these essential questions, and looks towards service provision and practice that moves beyond a reliance on all-encompassing labels. This unique contribution to the growing field of critical autism studies brings together authors from clinical psychiatry, clinical and community psychology, social sciences, disability studies, education and cultural studies, as well as those with personal experiences of autism. It is essential and challenging reading for anyone with a personal, professional or academic interest in 'autism'.
The media, scientific researchers, and the Diagnostic and Statistical Manual all refer to "autism" as if it were a single disorder or a single disorder over a spectrum. However, autism is unlike any single disorder in a variety of ways. No single brain deficit is found to cause it, no single drug is found to affect it, and no single cause or cure has been found despite tremendous research efforts to find same. Rethinking Autism reviews the scientific research on causes, symptomology, course, and treatment done to date...and draws the potentially shocking conclusion that "autism" does not exist as a single disorder. The conglomeration of symptoms exists, but like fever, those symptoms aren't a disease in themselves, but rather a result of some other cause(s). Only by ceasing to think of autism as a single disorder can we ever advance research to more accurately parse why these symptoms occur and what the different and varied causes may be. - Autism is a massive worldwide problem with increasing prevalence rates, now thought to be as high as 1 in 38 children (Korea) and 1 in 100 children (CDC- US) - Autism is the 3rd most common developmental disability; 400,000 people in the United States alone have autism - Autism affects the entire brain, including communication, social behavior, and reasoning and is lifelong - There is no known cause and no cure - Funding for autism research quadrupled from 1995 to 2000 up to $45 million, and the Interagency Autism Coordinating Committee has recommended $1 billion funding from 2010-2015
ESSENCE (Early Symptomatic Syndromes Eliciting Neurodevelopmental Clinical Examinations) refers to the group of neurodevelopmental disorders including autism, ADHD and tic disorders as well as conditions gaining increasing awareness such as ARFID, PANS and PANDAS. Professor of child psychiatry Christopher Gillberg describes the lifetime prognosis of ESSENCE, examining the common co-occurrence between these conditions and the symptoms they present. Whilst diagnoses are often treated in isolation, Gillberg presents these issues as an overall condition, and advises treatment and support based on a holistic approach. This book also demonstrates the need for holistic whole-person interventions and assessments to improve outcomes for people within this group.
This electronic version has been made available under a Creative Commons (BY-NC-ND) open access license. This book is available as an open access ebook under a CC-BY-NC-ND licence. What is autism and where has it come from? Increased diagnostic rates, the rise of the 'neurodiversity' movement, and growing autism journalism, have recently fuelled autism's fame and controversy. The metamorphosis of autism is the first book to explain our current fascination with autism by linking it to a longer history of childhood development. Drawing from a staggering array of primary sources, Bonnie Evans traces autism back to its origins in the early twentieth century and explains why the idea of autism has always been controversial and why it experienced a 'metamorphosis' in the 1960s and 1970s. Evans takes the reader on a journey of discovery from the ill-managed wards of 'mental deficiency' hospitals, to high-powered debates in the houses of parliament, and beyond. The book will appeal to a wide market of scholars and others interested in autism.
A Practitioner's Guide to Teach for Generalization Within ABA Treatment for Autism and Other Disabilities
Rethinking Autism with Dolto takes up a principal legacy of Françoise Dolto’s immense project—her conviction that autism is a regression to the archaic. Dolto theorizes that the infant in utero, deep in dreams, is receptive to the audition of “phonemes” during the pre-conscious “archaic stage” of psychosexual maturation. That dream-work on words—an idiosyncratic prehistory at the onset of mental and emotional life—secures the unconscious circulation of affect and the ontogeny of thought long prior to speech, seeding associative thinking and facilitating self-regulation. Kathleen Saint-Onge uses the written work of four nonverbal autistic authors in seeking corroboration for Dolto’s formulations, finding thoughtful self-reflections that relate the experience of living in silence with relentless anxiety while relying on regression as a defence. Dolto’s unprecedented insights into the infant’s earliest learning carry formidable implications for autism interventions, and for primary language and literacy. At issue is an enduring susceptibility to archaic echoes—the haphazard, securing return of pre-invested phonemes—in communicative exchanges, including reading and writing. Rethinking Autism with Dolto considers unconscious processes as inherently reparative, heralding the responsibility education holds for human health, and supports a rethinking of autism that presumes competence. Readers are invited to new conversations in psychoanalysis, child development, education and linguistics through an exploration of the unconscious concomitants of first language acquisition.
In Belonging: Rethinking Inclusive Practices to Support Well-Being and Identity, issues related to inclusive education and belonging across a range of education contexts from early childhood to tertiary education are examined and matters related to participation, policy and theory, and identity and well-being are explored. Individual chapters, which are drawn from papers presented at The Inclusive Education Summit held at the University of Canterbury, 2016, canvass a variety of topics including pedagogy, sexuality, theory, policy and practice. These topics are explored from the authors’ varying perspectives as practitioners, academics and lay-persons and also from varying international perspectives including New Zealand, South Africa and Australia. Contributors are: Keith Ballard, Henrietta Bollinger, Hera Cook, Michael Gafffney, Annie Guerin, Fiona Henderson, Leechin Heng, Kate McAnelly, Trish McMenamin, Be Pannell, Christine Rietveld, Marie Turner, Ben Whitburn, Julie White, and Melanie Wong.
Becky Galli was born into a family that valued the power of having a plan. With a pastor father and a stay-at-home mother, her 1960s southern upbringing was bucolic—even enviable. But when her brother, only seventeen, died in a waterskiing accident, the slow unraveling of her perfect family began. Though grief overwhelmed the family, twenty-year-old Galli forged onward with her life plans—marriage, career, and raising a family of her own—one she hoped would be as idyllic as the family she once knew. But life had less than ideal plans in store. There was her son’s degenerative, undiagnosed disease and subsequent death; followed by her daughter’s autism diagnosis; her separation; and then, nine days after the divorce was final, the onset of the transverse myelitis that would leave Galli paralyzed from the waist down. Despite such unspeakable tragedy, Galli maintained her belief in family, in faith, in loving unconditionally, and in learning to not only accept, but also embrace a life that had veered down a path far different from the one she had envisioned. At once heartbreaking and inspiring, Rethinking Possible is a story about the power of love over loss and the choices we all make that shape our lives —especially when forced to confront the unimaginable.
Since first being identified as a distinct psychiatric disorder in 1943, autism has been steeped in contestation and controversy. Present-day skirmishes over the potential causes of autism, how or even if it should be treated, and the place of Asperger’s syndrome on the autism spectrum are the subjects of intense debate in the research community, in the media, and among those with autism and their families. Bringing together innovative work on autism by international scholars in the social sciences and humanities, Worlds of Autism boldly challenges the deficit narrative prevalent in both popular and scientific accounts of autism spectrum disorders, instead situating autism within an abilities framework that respects the complex personhood of individuals with autism. A major contribution to the emerging, interdisciplinary field of critical autism studies, this book is methodologically and conceptually broad. Its authors explore the philosophical questions raised by autism, such as how it complicates neurotypical understandings of personhood; grapple with the politics that inform autism research, treatment, and care; investigate the diagnosis of autism and the recognition of difference; and assess representations of autism and stories told by and about those with autism. From empathy, social circles, and Internet communities to biopolitics, genetics, and diagnoses, Worlds of Autism features a range of perspectives on autistic subjectivities and the politics of cognitive difference, confronting society’s assumptions about those with autism and the characterization of autism as a disability. Contributors: Dana Lee Baker, Washington State U; Beatrice Bonniau, Paris Descartes U; Charlotte Brownlow, U of Southern Queensland, Australia; Kristin Bumiller, Amherst College; Brigitte Chamak, Paris Descartes U; Kristina Chew, Saint Peter’s U, New Jersey; Patrick McDonagh, Concordia U, Montreal; Stuart Murray, U of Leeds; Majia Holmer Nadesan, Arizona State U; Christina Nicolaidis, Portland State U; Lindsay O'Dell, Open U, London; Francisco Ortega, State U of Rio de Janeiro; Mark Osteen, Loyola U, Maryland; Dawn Eddings Prince; Dora Raymaker; Sara Ryan, U of Oxford; Lila Walsh.