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Parents of a child with a disability are at greater risk than other couples for having higher stress, adjustment difficulties, and lower marital quality. Respite care has been shown to reduce stress in parents of children with disabilities. This study focused on parents who have a child with Down syndrome and their reported marital quality and respite care received. One hundred and twelve couples, each consisting of a mother and a father who lived with their child with Down syndrome, completed questionnaires included the Revised Dyadic Adjustment Scale, Experience in Close Relationships Questionnaire, Daily Hassles and Uplifts Scale, and a respite questionnaire. Results were mixed. Respite care did not predict marital quality for either wives or husbands. However, respite hours was related to wife stress, which was in turn related to wife marital quality. Respite hours was also related to husband stress, which was related to husband marital quality. In addition, wife uplifts was directly related to wife marital quality and to husband marital quality. Husband uplifts was related to husband marital quality. While not directly predicting marital quality, respite care was indirectly related to increases in marital quality through stress. Therefore, it is important that respite care be accessible and provided to parents who have a child with Down syndrome. Recommendations for policy makers and researchers are offered.
This study compared the relationships among respite care, uplifts, stress, and marital quality across two different groups of caregivers—102 heterosexual married couples with children with autism spectrum disorder (ASD) and 111 heterosexual married couples with children with Down syndrome (DS). This study also investigated if the effect of respite care on stress and marital quality varied as a function of the amount of uplifts these caregivers experienced. Participants completed self-report surveys. Three two-group Actor Partner Interdependence Models were estimated to calculate the direct, indirect, and partner-effects among these variables. Respite care was not related to stress for either groups of parents, but it was positively associated with husband and wife marital quality for parents of children with ASD. Uplifts were negatively associated with stress and positively associated with marital quality for both husbands and wives with children with ASD, but only for wives with children with DS. Furthermore, when husbands and wives with children with ASD reported more weekly respite hours and daily uplifts, wives tended to report more daily stress. However, as husbands and wives reported less weekly respite care and more daily uplifts, wives tended to report less daily stress. Implications for these findings are discussed.
Parents of children with an autism spectrum disorder (ASD) are at greater risk than other couples for having higher stress levels and lower marital quality. Respite care has been suggested as a way to help alleviate stress. This study investigated the relationship between respite care and marital quality; and the potential of mother stress and father stress as mediating variables. One hundred and one couples, each consisting of a mother and a father who lived with their child with an ASD, were given questionnaires including a respite questionnaire, Revised Dyadic Adjustment Scale, Experience in Close Relationships Questionnaire, and Daily Hassles and Uplifts Scale. Results showed that the amount of respite care was positively related to marital quality for both husbands and wives. Husband and wife stress and husband and wife uplifts mediated the relationship between respite care and marital quality for both husbands and wives, indicating these variables of stress and uplifts were processes through which respite care had an indirect effect on marital quality. Results suggest that policy makers should develop strategies for providing respite care for families with children diagnosed with an ASD.
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Explore new frontiers in Alzheimer's support systems! When Congress authorized the Alzheimer's Disease Demonstration Grants to States program in 1990, no one knew how effective the program would prove to be. A New Look at Community-Based Respite Programs provides you with results of the first major evaluation of ADDGS programs. Across the country, groups were able to develop specialized programs that reached traditionally underserved clients. A byproduct of many of the ADDGS programs was that they helped strengthen ties between communities and agencies, improving social services for both caregivers and people with Alzheimer's. A New Look at Community-Based Respite Programs examines: the profile of the average respite care user different challenges faced by urban and rural clientele how culture and ethnicity influence health care decisions ways to involve communities in respite care how understanding patterns of use makes for better program design and implementation A New Look at Community-Based Respite Programs provides you with detailed analyses of a variety of successful support service plans, including mobile day care, Latino-specific outreach, traveling dementia evaluation teams, and programs designed for people who live alone. You'll also read about the importance of complementing family caregivers instead of substituting for them. Throughout, helpful tables make the results of ADDGS programs clear. It is estimated that Alzheimer's will affect up to 14 million Americans by the year 2050. A New Look at Community-Based Respite Programs contains vital knowledge that you can act on now to help lay the foundations for a better future.
According to the CDC "about one in six, or about 15%, of children aged 3 through 17 years have one or more developmental disabilities," such as ADHD, autism spectrum disorders, cerebral palsy, intellectual disability, and learning disability. Intellectual disorders are characterized by significant limitations in both intellectual functioning and in adaptive behavior, which covers many everyday social and practical skills, impacting learning, reasoning, problem solving, and other cognitive processes. These disabilities originate before the age of 18 and continue across the life span. Developmental disorders are chronic disabilities that can be cognitive or physical or both. The disabilities appear before the age of 22 and are likely to progress across the lifespan. Some developmental disorders are largely physical issues, such as cerebral palsy or epilepsy. Some individuals may have a disorder that includes a physical and intellectual disability; for example, Down syndrome or fetal alcohol syndrome. Intellectual and developmental disorders are significant and growing issues that are studied across a number of disciplines. The SAGE Encyclopedia of Intellectual and Developmental Disorders is aimed at students interested in psychology, counseling, education, social work, psychiatry, health sciences, and more. This encyclopedia will provide an in-depth look at a wide range of disorders, alongside interventions, the latest research translated for an undergraduate audience, historical context, and assessment tools for higher-level students. We will take a truly interdisciplinary approach by also covering sociocultural viewpoints, policy implications, educational applications, ethical issues, and more.
Higher marital satisfaction scores were associated with higher endorsement of emotion-focused coping strategies and greater mental health quality of life. In addition, marital satisfaction was positively associated with the longevity of the marital relationship, the age of the spouse at the time of the injury, and the length of the marriage at the time when the injury was sustained. As expected, higher scores of marital satisfaction were associated with higher levels of mental health quality of life. There were no significant relationships between physical health quality of life and marital satisfaction. An analysis of primary stressors show that long-term caregiving spouses continue to report similar types of stressors as indicated in the research literature from caregiving spouses during the first 5 to 8 years post injury. Findings were discussed in relation to implications for practice and additional research.
Ce document fait la description des besoins de répit ou de dépannage auprés des famille d'enfant rencontrant des difficultés importantes. Certains modèles sont proposés comme la coopérative de services. Le focus est orienté sur les besoins des parents et de la famille ainsi que pour l'élaboration des systèmes d'évaluation.