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A gap exists in the literature regarding the needs, concerns, and overall experiences of Arab American parents of children diagnosed with Autism Spectrum Disorder (ASD) (Al Khatib, 2017; Goforth, 2011; Haboush, 2007). This study explored the experiences of five Arab American mothers of children with ASD. A qualitative interview approach, utilizing in-depth interviews, was used in order to investigate Arab American parents experiences of caring for children with ASD, their cultural beliefs and understandings of their childrens ASD, and their concerns and needs regarding their children. Six themes emerged from the interview data, which offered insight into Arab American parents unique experiences of caring for a child with ASD, including (1) parents journeys toward the acceptance of the diagnosis of ASD, (2) beliefs about the cause of autism, (3) concerns, (4) needs, (5) coping techniques, and (6) unanticipated positive effects. Findings of this study and aspects related to Arab cultural beliefs with the ASD diagnostic process are discussed in detail, as well as implications of the findings for the field of special education and recommendation for future research.
While the impact of psycho-social variables has been evaluated for children with chronic illness and related disabilities, questions remain unanswered for families affected by ASD. Participants included 68 primary caregivers seeking services for a child aged fifteen months to 12 years suspected of or diagnosed with an ASD. Assessment tools included: 1. Parenting Stress Index-Fourth Edition-Short-Form (PSI-4-SF; Abidin, 2012), 2. Parenting Sense of Competence Scale (PSOC; Johnston and Mash, 1989), and 3. Relationship Assessment Scale (Hendrick, 1988). Independent samples t-tests were conducted to determine differences with a nonclinical control population (60 participants with a typically-developed child) regarding perceptions of stress, competence and relationship satisfaction. ASD caregivers reported experiencing significantly higher stress than Control caregivers (p=.000)..A hierarchical multiple regression analysis was used to assess whether perceived competence and relationship satisfaction variables were predictors of overall stress in the clinical sample. Results indicate that these variables significantly impact parenting stress (p
Though there is an extensive body of literature focused on the cognitive, linguistic, and social challenges of children with ASD, relatively less is known about the experiences of children with ASD and their families in real-world environments including healthcare settings. Specifically, little is known about how caregivers prepare and support their children with ASD in these settings and whether differences exist across healthcare settings. There is a gap in the literature describing the preparation and supports that caregivers use to improve their experiences in healthcare settings. The purpose of the current study is to examine caregivers’ perceptions of their children’s behaviors and the strategies they use to prepare and support their children with ASD in two healthcare settings: visits to the doctor’s office and the speech-language therapy clinic. Knowledge of which strategies and supports are most effective will benefit caregivers of children by providing them with different supports to use with their children in healthcare appointments to better their overall experience.
Little information exists on parenting a child with autism in the Arab world. Arabs are united in a shared culture that is expected to have significant influence on parenting experiences. In most Arab countries, parents who have a child with autism have limited access to professional support services. Coupled with low socio-economic status, low employment status, and poor household conditions, those parents are at increased risk for severe psychological distress and poor quality of life. This book came to investigate the psychosocial impacts of raising children with autism on Arab parents. The book is considered the first attempt to provide information on how the health of Arab parents of children with autism crosses lines with their stress levels, coping strategies, quality of life, demographic characteristics, and cultural context. This effort should help clinicians and policy makers in planning and delivering support services to parents at risk for serious adverse health consequences from their physically and psychologically demanding work as caregivers and reduced attention to their own health.