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Dementia: a specter that haunts many, either as a fear for the future or as lived reality with a loved one. It has been called the “theological disease” because it affects so much of how we define our humanity: language, long-term memory, and ability to plan the future. The church has a role in bringing hope and shepherding the spiritual journeys of people with dementia and their families. Beginning with current theological models of personhood, concepts about the self and spirituality are explored through the latest research in medicine and neuroscience as well as from work on spirituality and aging. The final chapter focuses on narratives of successful programs in churches and retirement communities designed to minister to people with dementia alongside their families and caregivers.
Encouragement and guidance for ministering to those with dementia Millions of Christians suffer from dementia diseases such as Alzheimer's, making ministry to them difficult as they lose memories and the ability to communicate. Drawing on her years of experience as a long-term care chaplain, Kathy Berry provides practical information and tools to equip ministers and lay leaders to meet the spiritual and pastoral needs of those living with dementia. Chapters cover vital topics, including these: · Identifying those who may be showing signs of dementia and learning how to support them as they seek a diagnosis · Communicating with dementia patients as their language skills decline · Meeting the emotional, spiritual, and physical needs of people with dementia--and the needs of their caregivers An invaluable resource to meet a growing need for congregations around the country, When Words Fail equips readers to answer Christ's call to minister to "the least of these."
Four factors are rapidly converging into a “silver tsunami” that will soon challenge every aspect of American society: 1) the increasing number of people living with dementias; 2) the mounting number of people providing dementia care, whether they want to or not; 3) the spiraling healthcare costs of dementia care; and 4) the lack of geriatricians to provide medical care and oversight. The way dementia care is currently provided is simply not sustainable. Congregations and other community groups must on the one hand find ways to support those providing dementia care, and on the other hand become involved in long-term efforts to make such care reliable, reasonable, and affordable so that those with dementia will not be forsaken.
Pain studies, both in exact sciences and in the humanities, are a fast-shifting field. This volume condenses a spectrum of recent views of pain through the lens of humanistic studies. Methodologically, the volume is an interdisciplinary study of the questions pertaining to the accessibility of pain (physical or emotional) to understanding and of the possible influence of suffering on the enhancement of knowledge in private experience or public sphere. Undeterred by the widespread belief that pain cannot be expressed in language and that it is intransmissible to others, the authors of the essays in the collection show that the replicability of records and narratives of human experience provides a basis for the kind of empathetic attention, dialogue, and contact that can help us to register the pain of another and understand its conditions and contexts. Needless to say, the improvement of this understanding may also help map the ways for the ethics of response to (and help for) pain. Whereas the authors of the volume tend to share the view of pain as a totally negative phenomenon (the position taken in Elaine Scarry’s The Body in Pain), they hold this view applicable mainly to the attitudes to the pain of others and the imperative of minimise the causes of another’s suffering. They also consider this view to be culturally and temporally circumscribed. The volume suggests that one’s own personal experience of suffering, along with the awareness of the seriality of such experience among fellow sufferers, can be conducive to emotional and intellectual growth. The reading of literature dealing with pain can lead to similar results through vicariously experienced suffering, whose emotional corollaries and intellectual consequences may be conveyed through artistic rather than discursive means. The distinctive features of the volume are that it processes these issues in a historicising way, deploying the history of the ideas of pain from the Middle Ages to the present day, and that it makes use of the methodology of different disciplines to do so, arriving to similar conclusions through, as it were, different paths. The disciplines include analytic philosophy, historiography, history of science, oral history, literary studies, and political science.
Historian Jesse F. Ballenger traces the emergence of senility as a cultural category from the late nineteenth century to the 1980s, a period in which Alzheimer's disease became increasingly associated with the terrifying prospect of losing one's self. Changes in American society and culture have complicated the notion of selfhood, Ballenger finds. No longer an ascribed status, selfhood must be carefully and willfully constructed. Thus, losing one's ability to sustain a coherent self-narrative is considered one of life's most dreadful losses. As Ballenger writes "senility haunts the landscape of the self-made man." Stereotypes of senility and Alzheimer's disease are related to anxiety about the coherence, stability, and agency of the self—stereotypes that are transforming perceptions of old age in modern America. Drawing on scientific, clinical, policy, and popular discourses on aging and dementia, Ballenger explores early twentieth-century concepts of aging and the emergence of gerontology to understand and distinguish normal aging from disease. In addition, he examines American psychiatry's approaches to the treatment of senility and scientific attempts to understand the brain pathology of dementia. Ballenger's work contributes to our understanding of the emergence and significance of dementia as a major health issue.
In recent years, the literature on the topic of ethnic and racial issues in Alzheimer’s disease and other dementias has increased dramatically. At the same time, the need for cultural competence in all of geriatric care, including dementia care, is increasingly being acknowledged. Dementia is a large societal problem affecting all communities, regardless of race or ethnicity, and understanding dementia for specific groups is tremendously important for both clinical knowledge and for health planning as a nation. This third edition of Ethnicity and the Dementias offers invaluable background information in this area, while also examining how those suffering from dementia and their family members respond or adapt to the challenges that follow. Thoroughly updated and revised throughout, the book features contributions from leading clinicians and researchers in the field, with particular attention given to genetic and cultural factors related to dementia, effective prevention and treatment strategies, and issues in caregiving and family support. Chapters offer specific recommendations for dementia care in eleven ethnic/racial groups, as well as suggestions for working effectively with LGBTQ families. Providing a truly comprehensive resource on ethnicity and dementia, and including reflections on emerging trends and the future of caregiving, this new edition is ideal reading for clinicians, educators, researchers, policy makers, and families, in search of the most current ethnogeriatric findings.
Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia. It asks how the stories we tell about dementia – in fiction, life writing and film – both reflect and shape the way we think about this important condition. Highlighting the need to attend to embodied and relational aspects of identity in dementia, the study further outlines ways in which narratives may contribute to dementia care, while disputing the idea that the modes of empathy fostered by narrative necessarily bring about more humane care practices. This cross-medial analysis represents an interdisciplinary approach to dementia narratives which range across auto/biography, graphic narrative, novel, film, documentary and collaborative storytelling practices. The book aims to clarify the limits and affordances of narrative, and narrative studies, in relation to an ethically driven medical humanities agenda through the use of case studies. Answering the key question of whether dementia narratives align with or run counter to the dominant discourse of dementia as ‘loss of self’, this innovative book will be of interest to anyone interested in dementia studies, ageing studies, narrative studies in health care, and critical medical humanities.
Positive shifts in attitudes mean that emphasis is now being placed on the person with dementia and their personal relationships, rather than the illness. There is also growing recognition of the significance of a person's spiritual life in forming an essential basis for their sense of identity, and in providing them with a resource for coping. Offering an inter-disciplinary approach to spirituality and personhood in dementia care, the contributors to this book are leading practitioners and researchers in the field. They provide both a theoretical structure and a practical understanding of the essential role that spirituality can play in the affirmation of personhood and identity, and of ways in which the spiritual well-being of people with dementia can be nurtured. This thought-provoking book includes chapters approaching the subject from Christian and Buddhist perspectives, discussion of inter-faith relations, and of what spirituality might mean for those not part of any faith tradition. This will be valuable reading for nurses, care workers, care commissioners and pastoral support professionals interested in a more holistic and contemplative approach to caring for people with dementia.
The fact that Americans are living longer, healthier lives coupled with his own aging motivated the author to write this book. As Baby Boomers age, more than one in five Americans will be over 65 years old. This increase in the average age of Americans will have a widespread impact on every aspect of society, and is already beginning to be felt. This impact has inspired Dr. Liu to write this book in an effort to relieve the sufferings of those who have been diagnosed with this dreaded brain disease and their caregivers who suffer along with them. The author affirms that it is God’s love through Christ which encourages him to provide reason of hope in God’s remembrance: hope that is from an informed theological perspective, a sense of purpose in the face of this disease. Because of the author’s godly motive and desire to offer help for sufferers, the author provides comfort through assurances that the sufferer’s conditions are not leading to the end of their lives.
Dementia is a brain disorder that seriously affects a person's ability to carry out daily activities. The most common form of dementia among older people is Alzheimer's disease (AD), which involves the parts of the brain that control thought, memory, and language. Age is the most important known risk factor for AD. The number of people with the disease doubles every 5 years beyond age 65. AD is a slow disease, starting with mild memory problems and ending with severe brain damage. The course the disease takes and how fast changes occur vary from person to person. On average, AD patients live from 8 to 10 years after they are diagnosed, though the disease can last for as many as 20 years. Current research is aimed at understanding why AD occurs and who is at greatest risk of developing it, improving the accuracy of diagnosis and the ability to identify those at risk, discovering, developing, and testing new treatments, and discovering treatments for behavioral problems in patients with AD. This new book gathers state-of-the-art research from leading scientists throughout the world which offers important information on understanding the underlying causes and discovering the most effective treatments for Alzheimer's Disease.