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The conceptualization of dementia has changed dramatically in recent years with the claim that, through early detection and by controlling several risk factors, a prevention of dementia is possible. Although encouraging and providing hope against this feared condition, this claim is open to scrutiny. This volume looks at how this new conceptualization ignores many of the factors which influence a dementia sufferers’ prognosis, including their history with education, food and exercise as well as their living in different epistemic cultures. The central aim is to question the concept of prevention and analyze its impact on aging people and aging societies.
Demonstrating the scope and diversity of 'caring', the contributors highlight the positive aspects of caring and the interdependence of many caring relationships but also broach the sensitive and complex subject of 'poor' care and the importance of identifying and meeting the needs of 'hidden carers'.
Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia. It asks how the stories we tell about dementia – in fiction, life writing and film – both reflect and shape the way we think about this important condition. Highlighting the need to attend to embodied and relational aspects of identity in dementia, the study further outlines ways in which narratives may contribute to dementia care, while disputing the idea that the modes of empathy fostered by narrative necessarily bring about more humane care practices. This cross-medial analysis represents an interdisciplinary approach to dementia narratives which range across auto/biography, graphic narrative, novel, film, documentary and collaborative storytelling practices. The book aims to clarify the limits and affordances of narrative, and narrative studies, in relation to an ethically driven medical humanities agenda through the use of case studies. Answering the key question of whether dementia narratives align with or run counter to the dominant discourse of dementia as ‘loss of self’, this innovative book will be of interest to anyone interested in dementia studies, ageing studies, narrative studies in health care, and critical medical humanities.
This book offers the first ever critical history of dementia studies. Focusing on the emergence of dementia studies as a discrete area of academic interest in the late 20th and early 21st centuries, it draws on critical theory to interrogate the very notion of dementia studies as an entity, shedding light on the affinities and contradictions that characterise the field. Drawing together a collection of internationally renowned experts in a variety of fields, including people with dementia, this volume includes perspectives from education, the arts, human rights and much more. This critical history sets out the shared intellectual space of ‘dementia studies’, from which non-medical dementia research can progress. The book is intended for researchers, academics and students of dementia studies, social gerontology, disability, chronic illness, health and social care. It will also appeal to activists and practitioners engaged in social work and caregiving involved in dementia research.
This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame it. The book is inter-disciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition, it proposes a new critical movement for the field of dementia studies and practice. The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development. The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.
This groundbreaking collection is the first to focus specifically on LGBT* people and dementia. It brings together original chapters from leading academics, practitioners and LGBT* individuals affected by dementia. Multi-disciplinary and international in scope, it includes authors from the UK, USA, Canada and Australia and from a range of fields, including sociology, social work, psychology, health care and socio-legal studies. Taking an intersectional approach – i.e. considering the plurality of experiences and the multiple, interacting relational positions of everyday life – LGBT Individuals Living with Dementia addresses topics relating to concepts, practice and rights. Part One addresses theoretical and conceptual questions; Part Two discusses practical concerns in the delivery of health and social care provision to LGBT* people living with dementia; and Part Three explores socio-legal issues relating to LGBT* people living with dementia. This collection will appeal to policy makers, commissioners, practitioners, academics and students across a range of disciplines. With an ageing and increasingly diverse population, and growing numbers of people affected by dementia, this book will become essential reading for anyone interested in understanding the needs of, and providing appropriate services to, LGBT* people affected by dementia.
Dementia has been widely debated from the perspectives of biomedicine and social psychology. This book broadens the debate to consider the experiences of men and women with dementia from a sociopolitical perspective. It brings to the fore the concept of social citizenship, exploring what it means within the context of dementia and using it to re-examine the issue of rights, status(es), and participation. Most importantly, the book offers fresh and practical insights into how a citizenship framework can be applied in practice. It will be of interest to health and social care professionals, policy makers, academics and researchers and people with dementia and family carers may find it revitalising.
Gerontological Social Work in Action introduces "anti-oppression gerontology" (AOG), a critical approach to social work with older adults, their families, and communities. AOG principles are applied to direct and indirect practice and a range of topics of relevance to social work practice in the context of a rapidly aging and increasingly diverse world. Weaving together stories from diverse older adults, theories, research, and practical tools, this unique textbook prompts social workers to think differently and push back against oppressive forces. It pays attention to issues, realities, and contexts that are largely absent in social work education and gerontological practice, including important developments in our understanding of age/ism; theories of aging and social work; sites and sectors of health and social care; managing risk and frailty; moral, ethical and legal questions about aging including medical assistance in dying; caregiving; dementia and citizenship; trauma; and much more. This textbook should be considered essential reading for social work students new to or seeking to specialize in aging, as well as those interested in the application of anti-oppressive principles to working with older adults and researching later life.
This book promotes a critical reflection about the research conducted so far in Human-Computer Interaction (HCI) with older people, whose predominant perspective focuses on decline, health, and help. It introduces a new (or different) perspective, which is grounded in interdisciplinary research on older people and digital technologies. Key elements are to (i) address topics that include, but also go beyond decline, health, and help, such as leisure, fun, creativity and culture, to delve more deeply into the role of digital technologies in multiple facets of older people’s lives; (ii) focus on doing research and designing technologies with and for older adults, and their communities, to avoid and fight against negative social conceptions of ageing; and (iii) examine older people’s life course, strengths, interests, and values, as well as their limitations and needs, to design technologies that not only help but also empower them, extending their abilities and acquiring new knowledge, beyond technology use. This perspective aims to help us better understand, design, and evaluate older people’s interactions with digital technologies in the early 21st century.
Have you ever been in an accident and felt that time slowed down? Have you felt time stretch radically, or even apparently disappear, in a state of deep meditation? Psychologist Dr Steve Taylor calls these Time Expansion Experiences, and in this book he shares his years of research into this life-changing phenomenon. Most of us will have experienced a TEE, an experience of time slowing down in an extreme situation, and yet it is a phenomenon that has never been fully explored or explained - until now. Psychologist Dr. Steve Taylor has spent several years analysing “time expansion experiences” (or TEEs), after collecting hundreds of reports. He has also found many examples of "time cessation experiences" (or TCEs), in which time appears to disappear altogether. In this book he shares the fascinating psychology and shared features behind all of these case studies, coming to an incredible conclusion: TEEs are a real altered state of consciousness, rather than a trick of recollection. Not only this, but TEEs and TCEs are almost always positive, with a sense of calm well-being, clarity and heightened awareness. In this ground-breaking book, discover profound implications: What do unusual states of consciousness such as mystical experiences, psychedelic experiences, and near-death experiences tell us about time and consciousness? What can the countless reports of “life review” - when people view a whole lifetime of events and experiences within a few seconds - tell about the past, present and the future? What does modern physics have to say about the idea that linear time is illusory? If our perception of time is an illusion, is it possible to speed up and slow down time at will, including inducing TEEs?