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Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
The struggle for disability rights in the U.S.
This hearing was held to give individuals, organizations, and government officials an opportunity to express their concerns about the state of rehabilitation services in the United States and to recommend changes that would make service delivery more effective. The hearing was held in consideration of the reauthorization of the Rehabilitation Act of 1973, which is the primary legislation providing services to assist people with disabilities in preparing for, and engaging in, gainful employment and independent living. Specifically, the hearing focused on: ways to make vocational rehabilitation more of a consumer-driven system; the availability of, and access to, services and the eligibility process; the order of selection provision and assurances that individuals with the most severe disabilities are given priority for services; and the long-term outcomes of vocational rehabilitation services. The hearing contains statements from Major R. Owens (Congressional Representative from New York) and from representatives of the Massachusetts Rehabilitation Agency; the Client Assistance Program in Albany, New York; the Office of Special Education and Rehabilitative Services; the Government Accounting Office; the National Association of Rehabilitation Facilities; and the National Rehabilitation Association. (JDD)