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The birth of a very premature baby is a shock for parents. The immediate anxiety about whether their infant will survive quickly leads to concerns about their child's future quality of life. In this inspiring and informative book, young people who were born weighing less than two pounds, three ounces provide candid and personal stories about their lives, challenges and accomplishments. Now in their thirties, these men and women were cared for at McMaster University Hospital in Hamilton, Ontario, soon after the introduction of newborn intensive care. Dr. Saroj Saigal, a renowned and award-winning neonatologist at McMaster, adds several chapters that outline the history of neonatology, describes recent medical and technological innovations, and explains how many extremely premature babies go on to enjoy fulfilling lives. Her chapters give the answer of a caring specialist to the inevitable question, "What next?" Written for a lay audience, Preemie Voices will move you to tears of admiration and amazement at the remarkable resilience of these tiny survivors. This unique collection of stories will not only provide encouragement and hope for parents who have given birth to a tiny preemie, but will inspire others who will be in awe at the achievements of these infants - both with and without disabilities - who were born too early. Watch the video documentary of a few participants from Preemie Voices at www.saigalpreemievoices.com...
The inspiring story of Juniper, a baby born too soon, gorgeously told by her parents, both award-winning journalists. Juniper French was born four months early, at 23 weeks' gestation. She weighed 1 pound, 4 ounces, and her twiggy body was the length of a Barbie doll. Her head was smaller than a tennis ball, her skin was nearly translucent, and through her chest you could see her flickering heart. Babies like Juniper, born at the edge of viability, trigger the question: Which is the greater act of love -- to save her, or to let her go? Kelley and Thomas French chose to fight for Juniper's life, and this is their incredible tale. In one exquisite memoir, the authors explore the border between what is possible and what is right. They marvel at the science that conceived and sustained their daughter and the love that made the difference. They probe the bond between a mother and a baby, between a husband and a wife. They trace the journey of their family from its fragile beginning to the miraculous survival of their now thriving daughter.
It's pretty scary to see a new sibling wrapped in a glass box instead of a soft blanket. In this gentle story about a baby who arrives too soon, Sarah can see that Mommy and Daddy are worried, and that tiny Amy is sick. But her parents help her to see that God is with the family no matter what, even its newest, littest member. A special section at the end written by R. Scott Stehouwer, Ph. D., professor of psychology at Calvin College and clinical psychologist, provides suggestions for parents and caregivers of hurting children.
Every year, 400,000 families in the United States welcome premature babies ... Ten percent of babies born in the U.S. are preemies. But that one word, "preemie," encompasses a range of medical and cultural experiences. There are textbooks, medical-ish guidebooks, and the occasional memoir to turn to ... but no book that collects personal experiences from the many people who have parented, cared for, or been preemies themselves. Until now. In What We Didn't Expect, journalist Melody Schreiber brings together a chorus of acclaimed writers and thinkers to share their diverse stories of having or being premature babies. The stories here cover everything from life-changing tests of faith to navigating the red tape of healthcare bureuacracy; from overcoming unimaginable grief to surviving and thriving against all odds. The result is a moving, heartfelt book, and a crucial and informative resource for anyone who has, or is about to have, the experience of dealing with a premature birth.
Jenné Johns is the author of Once Upon a Preemie and the proud mother of a micro-preemie baby.Though she had a decade of experience in the health industry at the time of her son's birth, Jenné found herself unprepared for the shock of delivering her son prematurely and having a longer than expected stay in the NICU. Little did she know that her family's journey would lead her to write a book that instills hope into the hearts of other micro-preemie parents.Jenné's story is not new, but it is an inspiration for any parent who faces the roller coaster ride of nurturing a micro-preemie baby in the NICU until they go home. As you take the time to read this book to your miracle baby, we know it will not only be a blessing to you as a parent, but it will help your precious child to know just how special they truly are. "You proved to the world that being a preemie, Doesn't mean you can't fight!"
Eva is a survivor. They invaded without warning and killed nearly all of humanity, and all she can do to stay sane is keep a journal about her struggle. Fifty years later, her words are found by Emerson, a young anthropologist sent to the ruins to study what happened, unlocking a story of hope and defiance.
The increasing prevalence of preterm birth in the United States is a complex public health problem that requires multifaceted solutions. Preterm birth is a cluster of problems with a set of overlapping factors of influence. Its causes may include individual-level behavioral and psychosocial factors, sociodemographic and neighborhood characteristics, environmental exposure, medical conditions, infertility treatments, and biological factors. Many of these factors co-occur, particularly in those who are socioeconomically disadvantaged or who are members of racial and ethnic minority groups. While advances in perinatal and neonatal care have improved survival for preterm infants, those infants who do survive have a greater risk than infants born at term for developmental disabilities, health problems, and poor growth. The birth of a preterm infant can also bring considerable emotional and economic costs to families and have implications for public-sector services, such as health insurance, educational, and other social support systems. Preterm Birth assesses the problem with respect to both its causes and outcomes. This book addresses the need for research involving clinical, basic, behavioral, and social science disciplines. By defining and addressing the health and economic consequences of premature birth, this book will be of particular interest to health care professionals, public health officials, policy makers, professional associations and clinical, basic, behavioral, and social science researchers.
No one knows more about everything—especially everything rude, clever, and offensively compelling—than John Waters. The man in the pencil-thin mustache, auteur of the transgressive movie classics Pink Flamingos, Polyester, Hairspray, Cry-Baby, and A Dirty Shame, is one of the world’s great sophisticates, and in Mr. Know-It-All he serves it up raw: how to fail upward in Hollywood; how to develop musical taste, from Nervous Norvus to Maria Callas; how to build a home so ugly and trendy that no one but you would dare live in it; more important, how to tell someone you love them without emotional risk; and yes, how to cheat death itself. Through it all, Waters swears by one undeniable truth: “Whatever you might have heard, there is absolutely no downside to being famous. None at all.” Studded with cameos, from Divine and Mink Stole to Johnny Depp, Kathleen Turner, Patricia Hearst, and Tracey Ullman, and illustrated with unseen photos from the author's personal collection, Mr. Know-It-All is Waters’ most hypnotically readable, upsetting, revelatory book—another instant Waters classic. “Waters doesn’t kowtow to the received wisdom, he flips it the bird . . . [Waters] has the ability to show humanity at its most ridiculous and make that funny rather than repellent.” —Jonathan Yardley, The Washington Post “Carsick becomes a portrait not just of America’s desolate freeway nodes—though they’re brilliantly evoked—but of American fame itself.” —Lawrence Osborne, The New York Times Book Review
A reassuring and realistic comprehensive guide to preemie medical care—now updated to reflect the many advances in neonatology. Preemies, Second Edition is the only parents’ reference resource of its kind—delivering up-to-the-minute information on medical care in a warm, caring, and engaging voice. Authors Dana Wechsler Linden and Emma Trenti Paroli are parents who have “been there.” Together with neonatologist Mia Wechsler Doron, they answer the dozens of questions that parents will have at every stage—from high-risk pregnancy through preemie hospitalization, to homecoming and the preschool years—imparting a vast, detailed store of knowledge in clear language that all readers can understand. Preemies, Second Edition covers topics related to premature birth, including: -What are your risk factors for having a premature baby? -Can you do something to delay early labor? -What do doctors know about you baby’s outlook during her first minutes and days of life? -How will your preemie’s progress be monitored? -How do you cope with a long hospitalization? -Are there special preparations for you baby’s homecoming? -What kind of stimulation during the first year gives your baby the best chance? -Will your preemie grow up healthy? Normal? Comprehensive and reassuring, Preemies provides the answers to questions that any concerned parent might have.
When Dr. Meghan Weir first dons her scrubs and steps onto the floor of Children’s Hospital Boston as a newly minted resident, her head is packed with medical-school-textbook learning. She knows the ins and outs of the human body, has memorized the correct way to perform hundreds of complicated procedures, and can recite the symptoms of any number of diseases by rote. But none of that has truly prepared her for what she is about to experience. From the premature infants Dr. Weir is expected to care for on her very first day of residency to the frustrating teenagers who visit the ER at three in the morning for head colds, each day brings with it new challenges and new lessons. Dr. Weir learns that messiness, fear, and uncertainty live beneath the professional exterior of the doctor’s white coat. Yet, in addition to the hardships, the practice of medicine comes with enormous rewards of joy, camaraderie, and the triumph of healing. The three years of residency—when young doctors who have just graduated from medical school take on their own patients for the first time—are grueling in any specialty. But there is a unique challenge to dealing with patients too young to describe where it hurts, and it is not just having to handle their parents. In Between Expectations: Lessons from a Pediatric Residency, Dr. Weir takes readers into the nurseries, ICUs, and inpatient rooms of one of the country’s busiest hospitals for children, revealing a world many of us never get to see. With candor and humility, she explores the many humbling lessons that all residents must learn: that restraint is sometimes the right treatment option, no matter how much you want to act; that some patients, even young teenagers, aren’t interested in listening to the good advice that will make their lives easier; that parents ultimately know their own children far better than their doctors ever will. Dr. Weir’s thoughtful prose reveals how exhaustion and doubt define the residency experience just as much as confidence and action do. Yet the most important lesson that she learns through the months and years of residency is that having a good day on the floor does not always mean that a patient goes home miraculously healed—more often than not, success is about a steady, gradual discovery of strength. By observing the children, the parents, and other hospital staff who painstakingly provide care each day, Dr. Weir finds herself finally developing into the physician (and the parent) she hopes to become. These stories—sometimes funny, sometimes haunting—expose the humanity that is so often obscured by the doctor’s white coat.