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Community Based Participatory Research by Dr. Karen Hacker presents a practical approach to CBPR by describing how an individual researcher might understand and then actually conduct CBPR research. This how-to book provides a concise overview of CBPR theoretical underpinnings, methods considerations, and ethical issues in an accessible format interspersed with real life case examples that can accompany other methodologic texts in multiple disciplines.
There is increasing pressure on university scholars to reach beyond the “ivory tower” and engage in collaborative research with communities. But what does this actually mean? What is community-based participatory research (CBPR) and what does engagement look like? This book presents stories about CBPR from past and current Manitoba Research Alliance projects in socially and economically marginalized communities. Bringing together experienced researchers with new scholars and community practitioners, the stories describe the impetus for the research projects, how they came to be implemented, and how CBPR is still being used to effect change within the community. The projects, ranging from engagement in public policy advocacy to learning from Elders in First Nations communities, were selected to demonstrate the breadth of experiences of those involved and the many different methods used. By providing space for researchers and their collaborators to share the stories behind their research, this book offers valuable lessons and rich insights into the power and practice of CBPR.
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This thoroughly revised and updated second edition of Methods for Community-Based Participatory Research for Health provides a step-by-step approach to the application of participatory approaches to quantitative and qualitative data collection and data analysis. With contributions from a distinguished panel of experts, this important volume shows how researchers, practitioners, and community partners can work together to establish and maintain equitable partnerships using a Community-Based Participatory Research (CBPR) approach to increase knowledge and improve the health and well-being of the communities involved. Written for students, practitioners, researchers, and community members, the book provides a comprehensive presentation of innovative partnership structures and processes, and covers the broad spectrum of methods needed to conduct CBPR in the widest range of research areas—including social determinants of health, health inequities, health promotion, community interventions, disease management, health services, and environmental health. The contributors examine effective methods used within the context of a CBPR approach including survey questionnaire, in-depth interview, focus group interview, ethnography, exposure assessment, and geographic information system mapping. In addition, each chapter describes a case study of the application of the method using a CBPR approach. The book also contains examples of concrete tools and measurement instruments that may be adapted by others involved in CBPR efforts.
Meredith Minkler and Nina Wallerstein have brought together, in one important volume, a stellar panel of contributors who offer a comprehensive resource on the theory and application of community based participatory research. Community Based Participatory Research for Health contains information on a wide variety of topics including planning and conducting research, working with communities, promoting social change, and core research methods. The book also contains a helpful appendix of tools, guides, checklists, sample protocols, and much more.
Community-based participatory research (CBPR) presents unique ethical and practical challenges, particularly for graduate students. This volume explores the nuanced experience of conducting CBPR as a PhD student. It explains the essential roles of developing trust and community relationships, the uncertainty in timing and direction of CBPR projects that give decision-making authority to communities, and the politics and ethical quandaries when deploying CBPR approaches—both for communities and for graduate students. The Community-Based PhD brings together the experiences of PhD students from a range of disciplines discussing CBPR in the arts, humanities, social sciences, public health, and STEM fields. They write honestly about what worked, what didn’t, and what they learned. Essays address the impacts of extended research time frames, why specialized skill sets may be needed to develop community-driven research priorities, the value of effective relationship building with community partners, and how to understand and navigate inter- and intra-community politics. This volume provides frameworks for approaching dilemmas that graduate student CBPR researchers face. They discuss their mistakes, document their successes, and also share painful failures and missteps, viewing them as valuable opportunities for learning and pushing the field forward. Several chapters are co-authored by community partners and provide insights from diverse community perspectives. The Community-Based PhD is essential reading for graduate students, scholars, and the faculty who mentor them in a way that truly crosses disciplinary boundaries. Contributors: Anna S. Antoniou, Amy Argenal, Sonya Atalay, Stacey Michelle Chimimba Ault, Victoria Bochniak, Megan Butler, Elias Capello, Ashley Collier-Oxandale, Samantha Cornelius, Annie Danis, Earl Davis, John Doyle, Margaret J. Eggers, Cyndy Margarita García-Weyandt, R. Neil Greene, D. Kalani Heinz, Nicole Kaechele, Myra J. Lefthand, Emily Jean Leischner, Christopher B. Lowman, Geraldine Low-Sabado, Alexandra G. Martin, Christine Martin, Alexandra McCleary, Chelsea Meloche, Bonnie Newsom, Katherine L. Nichols, Claire Novotny, Nunanta (Iris Siwallace), Reidunn H. Nygård, Francesco Ripanti, Elena Sesma, Eric Simons, Cassie Lynn Smith, Tanupreet Suri, Emery Three Irons, Arianna Trott, Cecilia I. Vasquez, Kelly D. Wiltshire, Julie Woods, Sara L. Young
Written by distinguished experts in the field, this book shows how researchers, practitioners, and community partners can work together to establish and maintain equitable partnerships using a Community-Based Participatory Research (CBPR) approach to increase knowledge and improve health and well-being of the communities involved. CBPR is a collaborative approach to research that draws on the full range of research designs, including case study, etiologic, longitudinal, experimental, and nonexperimental designs. CBPR data collection and analysis methods involve both quantitative and qualitative approaches. What distinguishes CBPR from other approaches to research is the active engagement of all partners in the process. This book provides a comprehensive and thorough presentation of CBPR study designs, specific data collection and analysis methods, and innovative partnership structures and process methods. This book informs students, practitioners, researchers, and community members about methods and applications needed to conduct CBPR in the widest range of research areas—including social determinants of health, health disparities, health promotion, community interventions, disease management, health services, and environmental health.
This groundbreaking resource explores core issues in participatory health research (PHR) and traces its global emergence as a force for improving health and well-being, healthcare services, and quality of life. The PHR approach is defined as including community members, health practitioners, and decision-makers as co-researchers, using local knowledge to reduce disparities in care, advocate for responsive health policy, and accelerate positive change in society as a whole. The book’s first half surveys themes essential to the development of the field, including evaluating PHR projects, training professionals in conducting PHR, and the ambitious work of the International Collaboration for Participatory Health Research. International perspectives showcase the varied roles of PHR in addressing urgent local health problems in their specific public health and sociocultural contexts. Among the topics covered: Demonstrating impact in participatory health research Reviewing the effectiveness of participatory health research: challenges and possible solutions Kids in Action—participatory health research with children Participatory health research: an Indian perspective Participatory health research in Latin America: scientific production on chronic diseases Participatory health research in North America: from community engagement to evidence-informed practice Participatory Health Research benefits those teaching and learning about participatory health research at institutions of higher education and in community settings, addressing diverse fields including health promotion and disease prevention, medicine and public health, quality of life, social work, and community development.
Community-based participatory research (CBPR) emerged in response to the longstanding tradition of "top-down" research-studies in which social scientists observe social phenomena and community problems as outsiders, separate from the participants' daily lives. CBPR is more immersive, fostering partnerships between academic and community organizations that increase the value and consequence of the research for all partners. The current perspectives gleaned from this school of research have been wildly well-received, in no small part because they address the complexity of the human experience in their conclusions. HANDBOOK OF COMMUNITY-BASED PARTICIPATORY RESEARCH codifies the methods and theories of this research approach and articulates an expansive vision of health that includes gender equality, safe and adequate housing, and freedom from violence. Topic-based chapters apply the theory and methods of CBPR to real world problems affecting women, ethnic and racial minorities, and immigrant communities such as sexual violence, exposure to environmental toxins, and lack of access to preventive care as well as suggesting future directions for effective, culturally sensitive research. HANDBOOK OF COMMUNITY-BASED PARTICIPATORY RESEARCH is required reading for academics, policy makers, and students seeking meaningful social change through scholarship.