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How did a disease of marginal public health significance acquire paradigmatic status in public health and genetics? In a lifetime of practice, most physicians will never encounter a single case of PKU. Yet every physician in the industrialized world learns about the disease in medical school and, since the early 1960s, the newborn heel stick test for PKU has been mandatory in many countries. Diane B. Paul and Jeffrey P. Brosco’s beautifully written book explains this paradox. PKU (phenylketonuria) is a genetic disorder that causes severe cognitive impairment if it is not detected and treated with a strict and difficult diet. Programs to detect PKU and start treatment early are deservedly considered a public health success story. Some have traded on this success to urge expanded newborn screening, defend basic research in genetics, and confront proponents of genetic determinism. In this context, treatment for PKU is typically represented as a simple matter of adhering to a low-phenylalanine diet. In reality, the challenges of living with PKU are daunting. In this first general history of PKU, a historian and a pediatrician explore how a rare genetic disease became the object of an unprecedented system for routine testing. The PKU Paradox is informed by interviews with scientists, clinicians, policymakers, and individuals who live with the disease. The questions it raises touch on ongoing controversies about newborn screening and what happens to blood samples collected at birth.
A major transformation of Chinese higher education (HE) has taken place over the past decade – China has reshaped its higher education sector from elite to mass education with the number of graduates having quadrupled to three million a year over six years. China is exceptional among lower income countries in using tertiary education as a development strategy on such a scale, aiming to improve the quality of its graduates, and make HE available to as many of its citizens as possible. This book provides a critical examination the challenges to the development and sustainability of higher education in China: Can its universities move from quantity to quality? How will so many graduates find jobs in line with their expectations? Can Britain and other western countries continue to benefit from China’s education boom? What are the prospects for collaboration in research? This book evaluates the prospects for Chinese and foreign HE providers, regulators and other stakeholders. It introduces the key changes in China’s HE programme since the Opening-Up policy in 1978 and analyses the achievements and the challenges over the subsequent three decades. Furthermore, it sheds light on new reforms that are likely to take place in the future, particularly as a result of the ongoing international financial crisis.
Education is an important support for the prosperity and development of a country. Mr. Ji Xianlin lived in school for most of his life and taught classes in Peking University for decades. This book mainly contains Ji Xianlin's articles on “Education”, and elaborates his views on education through four parts, namely, "College Education", "Foreign language Education", " Moral Education " and " Books-my whole world ". All the articles selected in this book come from Ji Xianlin's manuscripts.
During the past decade, transnational education has grown rapidly and become a key initiative of internationalization of higher education. In China, one of the main forms of transnational education is Chinese-foreign Cooperation in Running Schools (CFCRS). In May 2017, there were 2545 CFCRS institutions and programs approved by the Chinese government. There are about 560,000 CFCRS students nationwide, among which 460,000 are in higher education, while graduate numbers have exceeded 1.6 million. CFCRS has attracted more and more attention, and related studies have been increasing over the years. This book contains a comprehensive introduction and in-depth study on CFCRS; and includes comparative studies on the development of international branch campuses of several countries. This volume was originally published as a special issue of Chinese Education and Societies.
Providing an indispensable resource for students, educators, businessmen, and officials investigating the transformative experience of modern China, this book provides a comprehensive summary of the culture, institutions, traditions, and international relations that have shaped today's China. In Modern China, author Xiaobing Li offers a resource far beyond a conventional encyclopedia, providing not only comprehensive coverage of Chinese civilization and traditions, but also addressing the values, issues, and critical views of China. As a result, readers will better understand the transformative experience of the most populous country in the world, and will grasp the complexity of the progress and problems behind the rise of China to a world superpower in less than 30 years. Written by an author who lived in China for three decades, this encyclopedia addresses 16 key topics regarding China, such as its geography, government, social classes and ethnicities, gender-based identities, arts, media, and food, each followed by roughly 250 short entries related to each topic. All the entries are placed within a broad sociopolitical and socioeconomic contextual framework. The format and writing consistency through the book reflects a Chinese perspective, and allows students to compare Chinese with Western and American views.
This book explores how students in China vary in their understanding of careers upon arrival at college and how these initial differences develop into distinctive career preparation pathways. Drawing on survey data, students’ self-reflections, and semi-structured interviews over the four years, the book examines students’ engagement in curricular and extracurricular activities, as well as their interactions with peers, faculty, and staff, and how this affects their ability to navigate, develop, and cultivate career prospects and relevant skills. It also considers how colleges may aggravate social inequality rather than equalize among students with divergent family backgrounds through cumulative advantage framework, impacting on their conceptualization and construction of careers. Addressing a key generation in a key market, this text will interest students, scholars and practitioners in sociology, social work, education, and public policy, career counselling, student affairs, human resources, and education policy.
This book provides a detailed account of intellectual, other neuropsychological and behavioral manifestations of general pediatric diseases. The conditions discussed include the whole range of pediatric diseases - genetic syndromes, other congenital conditions, metabolic, endocrine, gastrointestinal, infectious, immunologic, toxic, trauma, and neoplastic, as well as sensory disabilities including deafness and blindness. Although the book is not intended to discuss cognitive and behavioral manifestations of conditions usually considered to be primary neurological disease, some of those, including cerebral palsy, muscular dystrophy, myotonic dystrophy and epilepsy, are included. Where possible, a "translational" approach is used, linking the behavioral and cognitive manifestations of these conditions, to the underlying structural, chemical or genetic abnormalities and their effect on the brain, and, in turn, on behavior and cognition. At the same time, included are significant psychosocial factors. Together, those factors have a major effect on patients' performance, including school performance, and on their families. This book is unique in its extensive coverage of the major pediatric conditions and of the detailed neurological, neuropsychological and behavioral aspects of each condition.
"Covers genetic, chromosomal, and metabolic disorders; prenatal exposure to alcohol and antidepressants; and such problems as asthma, food allergies, diabetes, and grief and bereavement. These are some of the issues increasingly faced by school personnel every day. Each topic is treated in the same authoritative, accessible style found throughout the three volumes of this set." —John E. Desrochers, Editor, Communique School Psychologist, Westport Public Schools, CT The educator′s go-to reference for helping students with genetic and acquired disorders! Educators today are sure to encounter students with needs related to genetic and acquired disorders. Based on the most current research, this volume outlines issues affecting children who are born with or acquire a medical disorder or disease. Written for school psychologists, counselors, administrators, and teachers, this easy-to-understand resource covers advances in health care and: Topics related to chromosomal, genetic, and metabolic disorders, such as phenylketonuria, the genetics of autism, the biology of shyness, and families of children with genetic disorders Acquired disorders, including prenatal exposure to alcohol and antidepressants, celiac disease, maternal post-partum depression and behavior problems, asthma, food allergies, and diabetes Coping with loss in schools, including the changing role of schools and the role of educators in dealing with grief and bereavement Featuring case studies, strategies for educators, discussion questions, glossaries, and handouts, Genetic and Acquired Disorders provides valuable information to practitioners involved in providing differentiated instruction and educational accommodations, collaborating with families, working with the community, or influencing policy.