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[This] is a story of love, hope, and healing. There are 18 chapters covering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they go on living. This book is a collection of clinical wisdom, theoretical knowledge and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement. --Betty Ferrell, PhD, RN, MA, FAAN, FPCN, CHPN From the Foreword This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and the nurses and other healthcare providers who provide care to those involved. Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book will enhance the expertise of clinicians caring for bereaved women and their families. It Includes case studies, interview excerpts, graphics and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification exam. Key Features: Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss Disseminates the newest theoretical frameworks that can be used to create interventions and develop research Includes case studies demonstrating how theory is applicable to research and practice Facilitates critical thinking with different and even competing perspectives Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation
This is a definitive, state-of-the-art resource for professionals who provide bereavement care to families when a baby or older child dies.. Culling the most important new evidence from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice recommendations to fill a gap in the current literature. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal and pediatric death. Expert contributors from the fields of nursing and other health professions disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families in regard to their experiences and needs.
This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information.
The Oxford Textbook of Palliative Nursing remains the most comprehensive treatise on the art and science of palliative care nursing available. Dr. Betty Rolling Ferrell and Dr. Judith A. Paice have invited 162 nursing experts to contribute 76 chapters addressing the physical, psychological, social, and spiritual needs pertinent to the successful palliative care team. Organized within 7 Sections, this new edition covers the gamut of principles of care: from the time of initial diagnosis of a serious illness to the end of a patient's life and beyond. This fifth edition features several new chapters, including chapters on advance care planning, organ donation, self-care, global palliative care, and the ethos of palliative nursing. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatric. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education.
This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.
The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidencebased reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care. Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words. Key Features: Addresses a growing need for specific provider resources in neonatal palliative care Covers the clinical and emotional aspects of palliative care for babies and their families Abundant resources for effective and compassionate family-centered care Case studies with critical thinking questions Accompanying video clips of healthcare and family interactions Supplemental image bank included
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
The first book about Guided Participation written for nurses This authoritative publication delivers an in-depth examination of Guided Participation (GP), a dynamic process of teaching and learning that parents and guardians have used for generations to help their charges become self-reliant. GP is helping another person become competent by providing expertise working alongside the learner. For the nurse specifically, this means educating and working alongside parents and children within an environment that supports health. Consistent with client- and family-centered practice, this fresh approach to nurse/client teaching is drawn a broad span of disciplines, including education, social and cultural anthropology, relationship-based attachment-caregiving theory, and developmental science. Written for students and practitioners who wish to incorporate GP into their practice, and for managers, administrators, and policy makers who support its implementation, this resource demonstrates the value of GP as a new and emerging health care model that integrates care across health care settings. The text describes, step-by-step, how to practice GP discusses support systems to maintain GP past the initial treatment. With abundant case studies, examples and research findings, chapters analyze how GP can promote health, prevent acute and chronic illness, and adjust old patterns of living and behaviors. Key Features: Includes video clips that illustrate how guided participation is applied in a variety of clinical practice settings Provides access to self-directed online instruction Links to online journal, case studies, additional chapters, and references Features downloadable parent checklists and teaching guides Discusses effective application of Guided Participation to all aspects of pediatric nursing care in a variety of practice settings Includes numerous case studies and examples with specific components identified to help readers learn theory and related concepts Learn to apply guided participation by joining the case-based online course offered at University of Wisconsin-Madison!
In this issue, guest editors bring their considerable expertise to this important topic.Provides in-depth reviews on the latest updates in the field, providing actionable insights for clinical practice. Presents the latest information on this timely, focused topic under the leadership of experienced editors in the field. Authors synthesize and distill the latest research and practice guidelines to create these timely topic-based reviews.
Written for neonatal and pediatric nurse practitioner students, Fetal and Neonatal Physiology for the Advanced Practice Nurse explores the developmental physiology of premature and term infants and presents common diseases that affect this specialized population. This unique text offers an innovative and engaging approach to learning normal and abnormal physiology to prepare students for their roles as resourceful and informed problem-solvers, caregivers, and health promoters. Part One introduces core concepts including fetal origins of disease, genetic inheritance patterns, and placental physiology. Part Two investigates each major human body system. Finally, Part Three offers an exploration into the transition to extrauterine life and common challenges for perinatal and neonatal clinicians. With a multitude of student learning resources and tools, Fetal and Neonatal Physiology for the Advanced Practice Nurse promotes contemplative thinking, understanding, and retention. Every chapter includes learning objectives for guidance, advice from the authors, and a mind map to visualize difficult concepts. Written by junior and senior nurses and physicians, this text embodies the interprofessional approach associated with optimal outcomes. Chapter podcasts and discussion questions are included with the text to actively integrate written content and engage students using multisensory teaching methods. Key Features Presents a concise, visual and interactive presentation of a challenging subject Designed specifically to accommodate a semester-long course Contains numerous illustrations depicting fetal development and physiology of the different body systems Each chapter contains reflective questions and other interactive learning resources Incorporates genetics and pathophysiologic correlations Meets the nationally-recognized accreditation requirements for APN physiology coursework