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Conceived in the era of eugenics as a solution to what was termed the “problem of the feeble-minded,” state-operated institutions subjected people with intellectual and developmental disabilities to a life of compulsory incarceration. One of nearly 300 such facilities in the United States, Pennhurst State School and Hospital was initially hailed as a “model institution” but was later revealed to be a nightmare, where medical experimentation and physical and psychological abuse were rampant. At its peak, more than 3,500 residents were confined at Pennhurst, supervised by a staff of fewer than 600. Using a blended narrative of essays and first-person accounts, this history of Pennhurst examines the institution from its founding during an age of Progressive reform to its present-day exploitation as a controversial Halloween attraction. In doing so, it traces a decades-long battle to reform the abhorrent school and hospital and reveals its role as a catalyst for the disability rights movement. Beginning in the 1950s, parent-advocates, social workers, and attorneys joined forces to challenge the dehumanizing conditions at Pennhurst. Their groundbreaking advocacy, accelerated in 1968 by the explosive televised exposé Suffer the Little Children, laid the foundation for lawsuits that transformed American jurisprudence and ended mass institutionalization in the United States. As a result, Pennhurst became a symbolic force in the disability civil rights movement in America and around the world. Extensively researched and featuring the stories of survivors, parents, and advocates, this compelling history will appeal both to those with connections to Pennhurst and to anyone interested in the history of institutionalization and the disability rights movement.
Conceived in the era of eugenics as a solution to what was termed the “problem of the feeble-minded,” state-operated institutions subjected people with intellectual and developmental disabilities to a life of compulsory incarceration. One of nearly 300 such facilities in the United States, Pennhurst State School and Hospital was initially hailed as a “model institution” but was later revealed to be a nightmare, where medical experimentation and physical and psychological abuse were rampant. At its peak, more than 3,500 residents were confined at Pennhurst, supervised by a staff of fewer than 600. Using a blended narrative of essays and first-person accounts, this history of Pennhurst examines the institution from its founding during an age of Progressive reform to its present-day exploitation as a controversial Halloween attraction. In doing so, it traces a decades-long battle to reform the abhorrent school and hospital and reveals its role as a catalyst for the disability rights movement. Beginning in the 1950s, parent-advocates, social workers, and attorneys joined forces to challenge the dehumanizing conditions at Pennhurst. Their groundbreaking advocacy, accelerated in 1968 by the explosive televised exposé Suffer the Little Children, laid the foundation for lawsuits that transformed American jurisprudence and ended mass institutionalization in the United States. As a result, Pennhurst became a symbolic force in the disability civil rights movement in America and around the world. Extensively researched and featuring the stories of survivors, parents, and advocates, this compelling history will appeal both to those with connections to Pennhurst and to anyone interested in the history of institutionalization and the disability rights movement.
For nearly 80 years, Pennhurst State School and Hospital was a reminder of how society viewed and treated people with intellectual disabilities. Over its existence, Pennhurst was home to more than 10,600 people. Many spent decades there, working to keep the institution running by performing various jobs. While some enjoyed the lives they had fashioned for themselves at Pennhurst, for many others, life there was crushing. Pennhurst also played a central role in the lives of its employees and in the rural Pennsylvania community where it was located. Controversy plagued the institution for its entire existence, and it is remembered primarily as a place where bad things happened. However, it was much more than that. This book provides a window into that separate world, reminding those who were part of it of what they saw and did there and giving those who know only what they have heard or seen a different picture of what Pennhurst truly was.
Ableism, a form of discrimination that elevates “able” bodies over those perceived as less capable, remains one of the most widespread areas of systematic and explicit discrimination in Western culture. Yet in contrast to the substantial body of scholarly work on racism, sexism, classism, and heterosexism, ableism remains undertheorized and underexposed. In this book, James L. Cherney takes a rhetorical approach to the study of ableism to reveal how it has worked its way into our everyday understanding of disability. Ableist Rhetoric argues that ableism is learned and transmitted through the ways we speak about those with disabilities. Through a series of textual case studies, Cherney identifies three rhetorical norms that help illustrate the widespread influence of ableist ideas in society. He explores the notion that “deviance is evil” by analyzing the possession narratives of Cotton Mather and the modern horror touchstone The Exorcist. He then considers whether “normal is natural” in Aristotle’s Generation of Animals and in the cultural debate over cochlear implants. Finally, he shows how the norm “body is able” operates in Alexander Graham Bell’s writings on eugenics and in the legal cases brought by disabled athletes Casey Martin and Oscar Pistorius. These three simple equivalencies play complex roles within the social institutions of religion, medicine, law, and sport. Cherney concludes by calling for a rhetorical model of disability, which, he argues, will provide a shift in orientation to challenge ableism’s epistemic, ideological, and visual components. Accessible and compelling, this groundbreaking book will appeal to scholars of rhetoric and of disability studies as well as to disability rights advocates.
The Oxford Handbook of Disability History features twenty-seven articles that span the diverse, global history of the disabled--from antiquity to today.
Superhero comics reckon with issues of corporeal control. And while they commonly deal in characters of exceptional or superhuman ability, they have also shown an increasing attention and sensitivity to diverse forms of disability, both physical and cognitive. The essays in this collection reveal how the superhero genre, in fusing fantasy with realism, provides a visual forum for engaging with issues of disability and intersectional identity (race, ethnicity, class, gender, and sexuality) and helps to imagine different ways of being in the world. Working from the premise that the theoretical mode of the uncanny, with its interest in what is simultaneously known and unknown, ordinary and extraordinary, opens new ways to think about categories and markers of identity, Uncanny Bodies explores how continuums of ability in superhero comics can reflect, resist, or reevaluate broader cultural conceptions about disability. The chapters focus on lesser-known characters—such as Echo, Omega the Unknown, and the Silver Scorpion—as well as the famous Barbara Gordon and the protagonist of the acclaimed series Hawkeye, whose superheroic uncanniness provides a counterpoint to constructs of normalcy. Several essays explore how superhero comics can provide a vocabulary and discourse for conceptualizing disability more broadly. Thoughtful and challenging, this eye-opening examination of superhero comics breaks new ground in disability studies and scholarship in popular culture. In addition to the editors, the contributors are Sarah Bowden, Charlie Christie, Sarah Gibbons, Andrew Godfrey-Meers, Marit Hanson, Charles Hatfield, Naja Later, Lauren O’Connor, Daniel J. O'Rourke, Daniel Pinti, Lauranne Poharec, and Deleasa Randall-Griffiths.
A nurse who gives invisible shots, a girl who likes to dart into corners and a man who still sits in the common room are just three of the spirits haunting the Pennhurst Asylum in Spring City, Pennsylvania. How do I know that? I have spent the past Halloween season working in the Mayflower building, 2nd floor and have witnessed the paranormal activity first hand. Over twenty-five years ago, Pennhurst State School and Mental Hospital was closed down due to resident abuse. Today Pennhurst has been turned into a Halloween attraction. I took a job as an orderly working in the Mayflower building, one of the most spiritually active of all the buildings. People are fascinated with Pennhurst and want to know more of its past and its present. Intrigued, I decided to do my own research. I have written a book bringing the past and present together to not just entertain, but also enlighten.
As readers, we develop an impression of characters and their settings in a novel based on the author’s description of their physical characteristics and surroundings. This process, known as physiognomy, can be seen throughout history including in the English Realist novels of the 19th and 20th centuries. Vision and Character: Physiognomics and the English Realist Novel offers a study into the physiognomics and aesthetics as presented by some of the best known authors in this genre, like Virginia Woolf, Joseph Conrad, Charles Dickens and Jane Austen. In this highly original approach to the issues of representation, visuality and aesthetics in the nineteenth-century realist novel, and even the question of literary interpretation, Eike Kronshage argues that physiognomics has enabled writers to access their characters’ inner lives without interfering in an authoritative way.
Inequality: Marcia H. Rioux
Roland Johnson's autobiography is the triumphant story of a man who rose above an intellectual disability and devastating abuse to become a prominent leader in the self-advocacy movement. As a child, Roland was sent away to live at the infamous Pennhurst State School in Pennsylvania, where he was sexually assaulted and forced to do unpaid manual labor. When he finally got out, he discovered the "real world" had no place for people like him - people who weren't considered normal or valuable by societal standards. Through a hospital counseling program, Roland ultimately began to find his voice. He discovered an ability to speak his truth and to fight for other people with disabilities. He would become president of Speaking for Ourselves and bring wide-scale awareness to the struggles faced by people with disabilities, as well as the unique gifts those same people have to offer. Lost in a Desert World brings you into Roland's life through his own voice and both encourages and challenges you to connect to your own humanity as a means of connecting with the humanity present in all people. Roland Johnson was a man of great courage, vision, and determination. He had an alternate kind of intelligence - one not based on what we call intellect. In Roland Johnson's world, understanding - one person for another - is the way of the future, the only route to true freedom. CRITICAL PRAISE "Roland Johnson has an important story to tell. In writing this truth-telling autobiography, he becomes a powerful witness to the cost of segregation and the hope of community." - Joseph P. Shapiro, author of No Pity: People with Disabilities Forging a New Civil Rights Movement "Roland Johnson was a friend and a hero of mine. He was a great pioneer of the frontier of human being. Read his book." - Justin Dart, father of the ADA, Americans With Disabilities Act, and Chairperson of the President's Committee on Employment of People with Disabilities under President Bush "Roland Johnson was a good and true man whose friendship I cherished. He was a teacher to many of us, and now this book will carry his voice across the country." - Gunnar Dybwad, internationally respected advocate and past president of the International League of Societies for Persons with Mental Handicaps "Roland is a man who accepted you for who you were. He was a friend to everyone and wanted to help people live their dreams and have control over their lives. It was an honor to have him as my friend." - Tia Nelis, Chair of the Board of Self-Advocates Becoming Empowered (SABE) "It is rare, even in fiction let alone autobiography, when an author's words leap off the page through the ear to awaken the reader's heart. I never knew Roland Johnson. But thanks to Karl Williams, I am able to know Roland's playful spirit, his soul full of knowing, the truth of his experience. Bravo to both." - Lucy Gwin, Mouth Magazine "... Intimate and vivid portrayal ... Roland Johnson's autobiography ... breaks new ground regarding the authenticity with which it projects his voice ... Karl Williams' preservation of Roland's words, and Roland's voice, his unique manner of speaking intact, shines new light on the meaning of 'speaking for ourselves.' ... (A) work of pioneering authenticity ..." - Melissa Probst, AAMR Journal "Lost In a Desert World is so good and Roland's talking is so much like him, it felt like I was in the same room with him again ... Loved every minute of it ... It made me want to reach out and hug him ..." - Robert Perske, Author