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As a contribution to the emerging healthcare quality movement, Patient Advocacy for Healthcare Quality: Strategies for Achieving Patient-Centered Care is distinct from any others of its kind in its focus on the consumer’s perspective and in its emphasis on how advocacy can influence change at multiple social levels. This introductory volume synthesizes patient advocacy from a multi-level approach and is an ideal text for graduate and professional students in schools of public health, nursing and social work.
As a contribution to the emerging healthcare quality movement, Patient Advocacy for Healthcare Quality: Strategies for Achieving Patient-Centered Care is distinct from any others of its kind in its focus on the consumer’s perspective and in its emphasis on how advocacy can influence change at multiple social levels. This introductory volume synthesizes patient advocacy from a multi-level approach and is an ideal text for graduate and professional students in schools of public health, nursing and social work.Important Notice: The digital edition of this book is missing some of the images or content found in the physical edition.
High-quality primary care is the foundation of the health care system. It provides continuous, person-centered, relationship-based care that considers the needs and preferences of individuals, families, and communities. Without access to high-quality primary care, minor health problems can spiral into chronic disease, chronic disease management becomes difficult and uncoordinated, visits to emergency departments increase, preventive care lags, and health care spending soars to unsustainable levels. Unequal access to primary care remains a concern, and the COVID-19 pandemic amplified pervasive economic, mental health, and social health disparities that ubiquitous, high-quality primary care might have reduced. Primary care is the only health care component where an increased supply is associated with better population health and more equitable outcomes. For this reason, primary care is a common good, which makes the strength and quality of the country's primary care services a public concern. Implementing High-Quality Primary Care: Rebuilding the Foundation of Health Care puts forth an evidence-based plan with actionable objectives and recommendations for implementing high-quality primary care in the United States. The implementation plan of this report balances national needs for scalable solutions while allowing for adaptations to meet local needs.
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
The inadequate supply of organs in the United States and other countries continues to drive the reliance on living donor transplantation. In 2000, representatives of the transplant community convened for a meeting on living donation in an effort to provide guidelines to promote the welfare of living donors. The consensus statement that resulted from this meeting recommended that transplant centers retain an Independent Living Donor Advocate (ILDA) to focus on the best interest of the donor. A decade later, nearly every transplant center in the United States, performing living donor surgeries, has incorporated an ILDA into their living donor screening and/or evaluation process Living Donor Advocate provides an overview of living donation and its risks, ethical challenges and future developments​, as well as details about the role a Living Donor Advocate plays in the transplantation process. This book will interest health professionals across various disciplines and patients undergoing transplantation or living donor surgery.
"[I]t is becoming much more common for mental health providers to become community mental health advocates, and given the complexities and nuances associated with tasks such as getting involved with legislative issues or fund raising, a work like this serves an important and useful purpose. It is concise, yet revealing, and explains concepts in clear and practical language. Most importantly, it delivers on its promise to transform its readers into more savvy participants in the process of advocating for their mental health patients."--Doody's Medical Reviews "This book provides a valuable introduction to the discerning mental health practitioner who wants to apply their advocacy skills into their everyday work place."--ACAMH, The Association for Child and Adolescent Mental Health "Great book! Learning to be an effective advocate in multiple arenas is essential for all health professionals, particularly physicians. This text utilizes a broad definition of advocacy and provides information that can be used by multiple types of providers to learn effective strategies to educate and inform others. It is readable with fascinating case examples and practical tips that can be utilized flexibly across a range of issues, formats and audiences. It is a great addition to the libraries of anyone practicing in the health care field, regardless of specialty or years of practice." Arden D Dingle, MD Program Director, Child and Adolescent Psychiatry Emory University School of Medicine A wealth of advocacy tools for health and mental health professionals at all levels of training and practice are included in this clear and comprehensive volume. Written by medical, legal, and policy experts, it fills a void in the literature by addressing multiple topics in advocacy in the health field as a whole. The text addresses the legislative process, provides step-by-step approaches for using the media, and discusses when to seek an attorney, when to litigate, working with family and community, and funding strategies. It also covers such seldom-addressed topics as leveraging research findings for advocacy purposes. Two outstanding features of the text are a discussion of the rationale for advocacy and a call for readers to examine their own motivations for this work, and a chapter by health educators who provide guidance about advances in learning theory that will help readers assimilate the material. The volume will serve as both a resource for advocacy coursework and as a guide for the independent practitioner of advocacy. Key Features: Provides a wealth of advocacy tools for health professionals at all levels of training and practice Written in a clear, straightforward manner for easy access Includes a unique metacognitive theory that will help readers to thoroughly integrate the information and provides tools for self-analysis Highlights main teaching points with summaries, case studies, and reflection questions
Who do you trust to make what could be life-altering decisions on your behalf? Who do you trust to handle your finances, if you're no longer able? Do you have any idea where to start in order to protect yourself?In today's era of modern healthcare, there is a very real possibility that, at some point, you will be admitted to a hospital, whether it is a life-threatening crisis or you simply need routine tests performed.Patient Advocacy Matters, the Ultimate "How-To" Guide is a resource, a vital tool to equip, empower and educate consumers who wish to protect their life, their health, their rights and/or that of their loved ones as it pertains to healthcare and finances. Use this resource to guide you along the path to: *Know your medical rights for different situations*The reason you need a medical power of attorney and a financial proxy*When it's time to ask for help*The difference between a private patient advocate vs other "patient" advocates and why it's important to know the difference*How nurse advocates can be there at a critical stage to advocate on your behalf No one intends to be unprepared in these situations, we simply never imagine them happening before we have time to put our affairs in order. Patient Advocacy Matters delivers all you need to help you plan for the unforeseen should you become incapacitated.As you read through Patient Advocacy Matters, you will quickly understand why this guide must be your primary resource for the answers you need to ensure your preparedness for whatever lies ahead. No stone is left unturned in this guide and you will be glad to have this vital tool to help you organize your affairs in the event that you suffer a medical catastrophe and are unable to advocate for yourself.
Advances in medical, biomedical and health services research have reduced the level of uncertainty in clinical practice. Clinical practice guidelines (CPGs) complement this progress by establishing standards of care backed by strong scientific evidence. CPGs are statements that include recommendations intended to optimize patient care. These statements are informed by a systematic review of evidence and an assessment of the benefits and costs of alternative care options. Clinical Practice Guidelines We Can Trust examines the current state of clinical practice guidelines and how they can be improved to enhance healthcare quality and patient outcomes. Clinical practice guidelines now are ubiquitous in our healthcare system. The Guidelines International Network (GIN) database currently lists more than 3,700 guidelines from 39 countries. Developing guidelines presents a number of challenges including lack of transparent methodological practices, difficulty reconciling conflicting guidelines, and conflicts of interest. Clinical Practice Guidelines We Can Trust explores questions surrounding the quality of CPG development processes and the establishment of standards. It proposes eight standards for developing trustworthy clinical practice guidelines emphasizing transparency; management of conflict of interest ; systematic review-guideline development intersection; establishing evidence foundations for and rating strength of guideline recommendations; articulation of recommendations; external review; and updating. Clinical Practice Guidelines We Can Trust shows how clinical practice guidelines can enhance clinician and patient decision-making by translating complex scientific research findings into recommendations for clinical practice that are relevant to the individual patient encounter, instead of implementing a one size fits all approach to patient care. This book contains information directly related to the work of the Agency for Healthcare Research and Quality (AHRQ), as well as various Congressional staff and policymakers. It is a vital resource for medical specialty societies, disease advocacy groups, health professionals, private and international organizations that develop or use clinical practice guidelines, consumers, clinicians, and payers.
The Institute of Medicine study Crossing the Quality Chasm (2001) recommended that an interdisciplinary summit be held to further reform of health professions education in order to enhance quality and patient safety. Health Professions Education: A Bridge to Quality is the follow up to that summit, held in June 2002, where 150 participants across disciplines and occupations developed ideas about how to integrate a core set of competencies into health professions education. These core competencies include patient-centered care, interdisciplinary teams, evidence-based practice, quality improvement, and informatics. This book recommends a mix of approaches to health education improvement, including those related to oversight processes, the training environment, research, public reporting, and leadership. Educators, administrators, and health professionals can use this book to help achieve an approach to education that better prepares clinicians to meet both the needs of patients and the requirements of a changing health care system.