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How do two parents who are blind take their children to the park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 per cent of Australian households have a parent with a disability, yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We’ve Got This, twenty-five parents who identify as Deaf, disabled or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory and empowering anthology. As Rebekah Taussig writes, ‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit – disabled parents exist.’ Contributors include Jacinta Parsons, Kristy Forbes, Graeme Innes, Jessica Smith, Jax Jacki Brown, Nicole Lee, Elly May Barnes, Neangok Chair, Renay Barker-Mulholland, Micheline Lee and Shakira Hussein. We’ve Got This will appeal to readers of Growing Up Disabled in Australia and other titles in the Growing Up series.
In a straightforward and empathetic tone, Adelizzi and Goss sensitively offer support to parents of children with learning disabilities who wish to see their children grow to their full potential. While juggling the complex expectations imposed upon them, parents often combat confusion, anger, fear, sadness, and frustration. This book will help diffuse these overwhelming feelings, empowering parents with the ability to provide the academic and personal support their children need to thrive. Adelizzi and Goss, who contribute to a unique and highly successful collegiate program for adults with LD/ADD, demystify the very fuzzy world of LD terminology and theory and clarify the complicated process of diagnosis and treatment. They shed light on the way children and adolescents with learning disabilities function in the home environment, in social relationships, and at school. Parents will find new understanding and hope as the authors--with the collective voice of parents and children who deal with LD every day--lead them through the maze of issues they must confront.
Special Needs Parenting: From Coping to Thriving offers emotional and spiritual resources for the journey of special needs parenting. Sharing personal insights as a theologian and the parent of an adult son with special needs, Rev. Dr. Lorna Bradley offers seven encouraging and practical tools to help the reader: o gain a deeper, grace-filled understanding of God's presenceo process deeply held feelings of grief and guilto discover strategies for patience, self-care, and healthy relationshipso find hope and healingPowerful for the individual reader, the built-in reflection and discussion questions make Special Needs Parenting an ideal, real-life resource for small groups. Special Needs Parenting is a must read for family members, pastors, and any person who works with special needs families. Dr. Bradley explores their challenges, grief, and joy with deep sensitivity, theological depth, and practical advice. A blessing to all who read it and allow their lives to be touched by wisdom born of personal experience and biblical scholarship
Cultivate effective partnerships between parents and professionals through honest, respectful and skillful communication The authors draw upon the metaphor of "dance" to better understand the complexities and possibilities of forming partnerships between educators, administrators, early childhood providers, therapists, support staff, other professionals, and parents of children with disabilities. This revised edition of Do You Hear What I Hear? Parents and Professionals Working Together for Children With Special Needs is rich with stories, examples, and practical insights. This book, written from both the parent′s and the professional′s points of view, provides a developmental approach to understanding and forging positive adult relationships, while also providing concrete ways to advocate for children. The authors′ years of experience as successful consultants, trainers, and educators lends this helpful resource a deep sense of realism and compassion. They remind the reader of how essential the parent-professional partnership is—and why it IS a dance that matters. Key features include: Practical insights and evidence-based approaches to forming partnerships Easy-to-read, non-technical language that speaks to both the heart and the mind Sample letters and other forms of communication shared between professionals and parents Stories and examples of real-world conversations between parents and professionals Effective ways to handle difficult situations Rich with humor and heart, this highly readable book offers helpful steps for self reflection, personnel preparation, and parent-professional training. Educators and parents will find expert guidance for listening to each other′s music, trying out each other′s dance steps, and working toward a new dance that includes contributions from all—with the ultimate reward of seeing children achieve their highest potential.
Dr. Robert A. Naseef, a psychologist and father of a son with autism, details the daily blessings and challenges of raising a child with disabilities, offering sensitive, real-world advice along the way.
"I simply could not put this book down! It is very well written and makes me feel like I am sitting in Press and Gena's living room talking about their experiences. I love the Chapter Take Aways and the stories from other families. Readers will feel inspired with new direction. I only wish this was available years ago as our family began our journey caring for our son with autism." Didi Zaryczny Chairperson, disAbility Resource Network "As a parent of a disabled child, I find this book to be an immensely valuable resource. The Barnhills offer practical help for navigating the emotional and relational pitfalls common to those in our situation. Their advice is concrete, realistic, and encouraging." Andrew Dunks Pastor and father of a teenage son with brittle-bone disease
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so.
When a parent hears that their child has a disability, hearts and hopes are often broken. But faith doesn't have to be. In Unbroken Faith, Dianne Dokko Kim comes alongside you as a fellow special needs parent to help you reconcile the premise of a good God with the devastating realities of raising a disabled child. Kim courageously articulates deep-seated, unspoken doubts and fears you may have but are afraid to voice: Will my child still have a full life? Can I do this? Where is God in all this? As you are adjusting to your new normal, Kim's biblical-based encouragement will help you understand that you are not alone, that God gets it, and that God's Word is entirely relevant to the raw and messy yet hallowed spaces of special needs parenting.
A collection of personal writings from parents of children with disabilities shares how they were able to cope, survive, heal, and eventually rediscover happiness, and provides messages of encouragement for parents facing the same challenges.