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[This] is a story of love, hope, and healing. There are 18 chapters covering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they go on living. This book is a collection of clinical wisdom, theoretical knowledge and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement. --Betty Ferrell, PhD, RN, MA, FAAN, FPCN, CHPN From the Foreword This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and the nurses and other healthcare providers who provide care to those involved. Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book will enhance the expertise of clinicians caring for bereaved women and their families. It Includes case studies, interview excerpts, graphics and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification exam. Key Features: Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss Disseminates the newest theoretical frameworks that can be used to create interventions and develop research Includes case studies demonstrating how theory is applicable to research and practice Facilitates critical thinking with different and even competing perspectives Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation
This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information.
Explains the attitudes of the dying toward themselves and others and presents a humane approach to relieving the psychological suffering of the terminally ill and their families.
This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.
"The book is well organized, well detailed, and well referenced; it is an invaluable sourcebook for researchers and clinicians working in the area of bereavement. For those with limited knowledge about bereavement, this volume provides an excellent introduction to the field and should be of use to students as well as to professionals," states Contemporary Psychology. The Lancet comments that this book "makes good and compelling reading....It was mandated to address three questions: what is known about the health consequences of bereavement; what further research would be important and promising; and whether there are preventive interventions that should either be widely adopted or further tested to evaluate their efficacy. The writers have fulfilled this mandate well."
"Occasionally I read a book and say to myself that this is a book that I wished I had written. This is such a book! It is a delightful, practical, interesting, and inspiring book! Danai has written a soon-to-be classic in the field! Her writing is excellent! Her use of theories, concepts, history, and models are wonderful!"--Illness, Crisis and Loss "Danai PapadatouÖ[presents] an approach of Relational Care, care based on an understanding of relationships, that should be essential readingÖ.[S]he writes in an engaging and non-technical language, and manages to convey complex ideas in a manner that is accessible to all." --Colin Murray Parkes, OBE, MD, FRCPsych President, Cruse: Bereavement Care (From the Foreword) ì[A] wonderful contribution to the literature on caregiving and her well thought out ideas about relational caregiving are on the cutting edge. Congratulations.î -- Lynne Ann DeSpelder CoAuthor, The Last Dance: Encountering Death and Dying, 8th edition "This is no ordinary academic textbook. It is nothing short of a masterpiece in which Papadatou provides the field of death, dying and bereavement with invaluable and constructive insights into the world of caring for the dying and bereaved."--Grief Matters "This is a fascinating book, applying important theoretical modelsÖin order to describe and speculate about how professionals manage to work in an environment where suffering and grief are constantly present. This is an important and substantial addition to the mostly self-help literature about self-care for caregivers."--Doody's Medical Reviews In the Face of Death explores the experiences of health care professionals who care for the seriously ill, the dying, and the bereaved. In this book, Danai Papadatou offers a practical approach to caregiving, as well as a breadth and depth of insight into both the patient's and the caregiver's responses to death. The author discusses the issues and challenges health care professionals face when treating dying and bereaved patients. Topics include: compassion fatigue, the inevitability of suffering and the potential for growth, suffering in the workplace, team functioning in death situations, and team resilience. The main themes are: The Caring Relationship focuses on the relationship between the care provider and the person who is dying or grieving, and proposes a new, relationship-based model of care The Care Provider in Death Situations addresses the health professional's personal responses to death, using a model that illustrates the grieving process of the health professional The Team in the Face of Death provides recommendations for effective, interdisciplinary care services that support dying or bereaved patients as well as the health care provider