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Bringing together disability theorists and medical sociologists for the first time in this cutting-edge collection, contributors examine chronic illness and disability, disability theory, doctor-patient encounters, lifeworld issues and the new genetics.
How do we understand health in relation to society? What role do social processes, structures and culture play in shaping our experiences of health and illness? How do we understand medicine and healthcare within a sociological framework? Drawing on international literature and examples, this new edition of Key Concepts in Medical Sociology: · Systematically explains the concepts that have preoccupied medical sociology from its inception, and which have shaped the field as it exists today. · Includes new entries, such as pandemics and epidemics, the environment, intersectionality, pharmaceuticalization, medical tourism and sexuality. · Begins each entry with a definition of the concept then examines its origins, development, strengths and weaknesses, and concludes with suggested further reading for independent learning. Key Concepts in Medical Sociology is essential reading for students in medical sociology as well as those undertaking professional training in health-related disciplines.
This timely Handbook provides an essential guide to the major topics, perspectives, and scholars in the sociology of health and medicine. Contributors prove the immense value of a sociological understanding of central health and medical concerns, including public health, the COVID-19 pandemic, and new medical technologies.
Create campuses inclusive and supportive of disabled students, staff, and faculty Disability in Higher Education: A Social Justice Approach examines how disability is conceptualized in higher education and ways in which students, faculty, and staff with disabilities are viewed and served on college campuses. Drawing on multiple theoretical frameworks, research, and experience creating inclusive campuses, this text offers a new framework for understanding disability using a social justice lens. Many institutions focus solely on legal access and accommodation, enabling a system of exclusion and oppression. However, using principles of universal design, social justice, and other inclusive practices, campus environments can be transformed into more inclusive and equitable settings for all constituents. The authors consider the experiences of students, faculty, and staff with disabilities and offer strategies for addressing ableism within a variety of settings, including classrooms, residence halls, admissions and orientation, student organizations, career development, and counseling. They also expand traditional student affairs understandings of disability issues by including chapters on technology, law, theory, and disability services. Using social justice principles, the discussion spans the entire college experience of individuals with disabilities, and avoids any single-issue focus such as physical accessibility or classroom accommodations. The book will help readers: Consider issues in addition to access and accommodation Use principles of universal design to benefit students and employees in academic, cocurricular, and employment settings Understand how disability interacts with multiple aspects of identity and experience. Despite their best intentions, college personnel frequently approach disability from the singular perspective of access to the exclusion of other important issues. This book provides strategies for addressing ableism in the assumptions, policies and practices, organizational structures, attitudes, and physical structures of higher education.
The Routledge Handbook of Disability Studies takes a multidisciplinary approach to disability and provides an authoritative and up-to-date overview of the main issues in the field around the world today. Adopting an international perspective and consisting entirely of newly commissioned chapters arranged thematically, it surveys the state of the discipline, examining emerging and cutting edge areas as well as core areas of contention. Divided in five sections, this comprehensive handbook covers: different models and approaches to disability how key impairment groups have engaged with disability studies and the writings within the discipline policy and legislation responses to disability studies and to disability activism disability studies and its interaction with other disciplines, such as history, philosophy and science and technology studies disability studies and different life experiences, examining how disability and disability studies intersects with ethnicity, sexuality, gender, childhood and ageing. Containing chapters from an international selection of leading scholars, this authoritative handbook is an invaluable reference for all academics, researchers and more advanced students in disability studies and associated disciplines such as sociology, health studies and social work.
The anthropological demography of health, as a field of interdisciplinary population research, has grown from the 1990s, extending to a remarkable range of key human and policy issues, including: genetic disorders; nutrition; mental health; infant, child, and maternal morbidity; malaria; HIV/AIDS; disability and chronic diseases; new reproductive technologies; and population ageing. By observing group formation and change over time, tracking people's networks, and observing variance between what people say and do, anthropological demography goes beyond the characteristically top-down formal methodologies of most mainstream socio-economic demography and population health. This path-breaking volume charts and integrates the growing body of research that combines ethnography with quantitative models and methods in the field of population health. It offers a clear agenda based on important conceptual and methodological advances, and often working in close collaboration with medical and historical research. Approaches to population that are grounded in sustained ethnographic and historical research provide more than substantive knowledge of how cultural and social formations interact with health. They enable understanding of how local institutions and experience of vital events come to be translated into the demographic and health measures on which survey and clinical programmes rely. This, in turn, makes possible critical evaluation of the empirical adequacy of such translation, reflection on what happens when these models and measures become standardised evaluations of health statuses, and what this implies for governance. The combination of anthropological, demographic, historical, and biological research has gone beyond the initial demographic prioritisation of fertility regulation, to take on an expanded range of key health policy issues, and locate them in the context of the inequalities that so frequently give rise to major health differentials. The Anthropological Demography of Health offers a clear agenda for the application and extension of combined anthropological and demographic thinking in population health, and will provide a point of reference for the field.
This book provides insight into the globally interlinked disability rights community and its political efforts today. By analysing what disability rights activism contributes to a global power apparatus of disability-related knowledge, it demonstrates how disability advocacy influences the way we categorise, classify, distribute, manipulate, and therefore transform knowledge. By unpacking the mutually constitutive relations between (practical) moral knowledge of international disability advocates and (formal) disability rights norms that are codified in international treaties such as the UN Convention on the Rights of Persons with Disabilities (CRPD), the author shows that the disability rights movement is largely critical of statements that attempt to streamline it. At the same time, cross-cultural disability rights advocacy requires images of uniformity to stabilise its global legitimacy among international stakeholders and retain a common meta-code that visibly identifies its means and aims. As an epistemic community, disability rights advocates simultaneously rely on and contest the authority of international human rights infrastructure and its language. Proving that disability rights advocates contribute immensely to a global culture that standardises what is considered morally and legally ‘right’ and ‘wrong’, thereby shaping the human body and the body politic, this book will be of interest to all scholars and students of critical disability studies, sociology of knowledge, legal and linguistic anthropology, social inequality, and social movements.
A comprehensive collection of original essays by leading medical sociologists from around the world, fully updated to reflect contemporary research and global health issues The Wiley Blackwell Companion to Medical Sociology is an authoritative overview of the most recent research, major theoretical approaches, and central issues and debates within the field. Bringing together contributions from an international team of leading scholars, this wide-ranging volume summarizes significant new developments and discusses a broad range of globally-relevant topics. The Companion's twenty-eight chapters contain timely, theoretically-informed coverage of the coronavirus pandemic and emerging diseases, bioethics, healthcare delivery systems, health disparities associated with migration, social class, gender, and race. It also explores mental health, the family, religion, and many other real-world health concerns. The most up-to-date and comprehensive single-volume reference on the key concepts and contemporary issues in medical sociology, this book: Presents thematically-organized essays by authors who are recognized experts in their fields Features new chapters reflecting state-of-the-art research and contemporary issues relevant to global health Covers vital topics such as current bioethical debates and the global effort to cope with the coronavirus pandemic Discusses the important relationship between culture and health in a global context Provide fresh perspectives on the sociology of the body, biomedicalization, health lifestyle theory, doctor-patient relations, and social capital and health The Wiley Blackwell Companion to Medical Sociology is essential reading for advanced undergraduate and graduate students in medical sociology, health studies, and health care, as well as for academics, researchers, and practitioners wanting to keep pace with new developments in the field.
This SAGE Handbook presents contemporary, cutting-edge approaches to participatory research and inquiry. It has been designed for the community of researchers, professionals and activists engaged in interventions and action for social transformation, and for readers interested in understanding the state of the art in this domain. The Handbook offers an overview of different influences on participatory research, explores in detail how to address critical issues and design effective participatory research processes, and provides detailed accounts of how to use a wide range of participatory research methods. Chapters cover pioneering new participatory research techniques including methods that can be operationalised at scale, approaches to engaging the poorest and most marginalised, and ways of harnessing technologies to increase the scope of participation, amongst others. Drawing upon a wide range of disciplines, and bringing together contributing authors from across the globe, this Handbook will be of interest to an international readership from across the broad spectrum of social sciences, including social policy, development studies, geography, sociology, criminology, political science, health and social care, education, psychology, business & management. It will also be an insightful and practical resource for facilitators, community workers, and activists for social change. Part 1: Introduction Part 2: Key Influences and Foundations of Participatory Research Part 3: Critical Issues in the Practice of Participatory Research Part 4: Methods and Tools Part 4.1: Dialogic and Deliberative Processes Part 4.2: Digital Technologies in Participatory Research Part 4.3: Participatory Forms of Action Orientated Research Part 4.4: Visual and Performative Methods Part 4.5: Participatory Monitoring, Evaluation and Learning Part 4.6: Mixing and Mashing Participatory and Formal Research Part 5: Final Reflections
Disability rights advocates in the United Kingdom and the United States recently embraced new media technologies in unexpected and innovative ways. This book sheds light on this process of renewal and asks whether the digitalisation of disability rights advocacy can help re-configure political participation into a more inclusive experience for disabled Internet users, enhancing their stakes in democratic citizenship. Through the examination of social media content, Web link analysis, and interviews with leading figures in grassroots groups on both sides of the Atlantic, Filippo Trevisan reveals the profound impact that the Internet has had on disability advocacy in the wake of the austerity agenda that followed the 2008 global financial crisis. In Britain, a new, tech-savvy generation of young disabled self-advocates has emerged from this process. The role of social media platforms such as Facebook in helping politically inexperienced users make sense of complex policy changes through the use of personal stories is discussed also. In addition, this book explains why British disability advocates adopted more innovative and participatory strategies compared to their American counterparts when faced with similar policy crises. This book reviews the implications of this unexpected digital transformation for the structure of the disability rights movement, its leadership, and the opportunity for disabled citizens to participate fully in democratic politics vis-à-vis persisting Web access and accessibility barriers. An original perspective on the relationship between disability and the Internet, and an indispensable read for scholars wishing to contextualize and enrich their knowledge on digital disability rights campaigns vis-à-vis the broader ecology of policymaking.