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Examines the life of the author, a Lupus patient, and gives the history, origin and development of Lupus, as well as strategies for coping with daily life as a Lupus sufferer.
It is time, at last, to speak the truth about Lupus, and the truth is this. No one knows currently if your autoimmune system is the reason you have Lupus. For me, if this is the truth, why aren’t we implementing blood transfusions? New blood, could that be the cure? This book is about bringing awareness from one person’s perspective, as to what is going on in her life with Lupus. “Let me help you take back your life by sharing my story. I hope this will provide you with a clear understanding of what Lupus is and how to maintain your body daily. Moreover, I want you to know what to do if you or someone you know is affected by this madly disease”.
Blake Habers hated Indians, especially the tribe his sister lived with. He forced her to come home with him. But Amanda had other plans that involved her lawyer, Gentry Fox. Though he couldn't help her with her problem, he knew someone who could. Shawna dreaded hearing from her cousin. For it always meant trouble, for her. Leaving preparations for the cattle drive in her foreman's hands, she and Joshua went to deal with Gentry for the last time. Once there, things became more complicated. Namely because of who Amanda's husband turned out to be. Desert Wolf was in search of his wife. But after years of believing she was dead, he was dreaming of his first love, Little Eagle. Suddenly, all his deeply buried feelings for the sultry chief consumed him. Was this a sign she was alive and searching for him? Should he leave his wife for her? Would Little Eagle become his regardless of everything? Of all his questions, this he wanted to know most of all. Kali Ickier had something in common with Shawna, but that didn't stop Desert Wolf from wanting her. Still on the run, the girl reluctantly joins the Kanes in their travels. Knowing her husband's desires, Amanda tries to sway the girl into marriage. But another Indian has other plans for her.
Aimee Ackell's, Butterfly Girl, MY LUPUS JOURNEY is a story about the time she was diagnosed with Lupus and how she weathered many trials and challenges on her journey of twenty years with the disease. She gives the reader a positive outlook on how to handle it and how she persevered in her life. She talks about her illness, medications, hospitalizations, family, friends, work, exercise, diet spirituality, and love for inspiring people to conquer their fears with an illness. She is a motivating individual who believes that anyone can just do it to heal him or herself back to being healthy. Aimee Ackell offers an informative and positive perspective on coping with Lupus for people with the disease and their families. Lupus is a chronic autoimmune disease that is difficult to diagnose, and the symptoms-from achy joints to skin rashes- often mimic those of other diseases. Lupus affects more than 1.4 million people in the United States, and affects more women then men. It is considered the silent disease. Her journey of twenty years with Lupus demonstrates the good, the bad and the ugly. The challenges of Lupus are unlimited but there is hope and inspiration given to the reader. She describes the major events that have affected her with her Lupus and how she handled it. The reader walks away with a confident outlook on to handle Lupus. She is very inspirational and her journey allows you a peek into her life while living with a chronic disease. As she always says, smile and smile more!
Joyce Duren establishes herself as a force to be reckoned with in literary as well as other circles. Ms. Duren has written a work of commendable perfection. In style, content, and supreme organization, My Bout with Lupus now takes its place on the universal bookshelf of masterpieces. There can be no doubt about her originality. She tells an unusually touching story in a colorful, lighthearted language unique to a contemporary Californian with roots in Cleveland, Ohio, and West Virginia, all of which she is . . . and has . . . None of which she denies. She also can take on tough situations successfully. Her completion of this fine book, despite overwhelming odds, proves that. And her application of spiritual tools such as prayer, fasting, and positive thinking along the way proves her to be steadfast in her faith. Besides being entertaining and inspiring My Bout with Lupus is also educational. It teaches us how to apply our own inner resources in these tumultuous times. Thus, Ms. Duren is a master teacher too. On top of all this, shes also charismatic, perfect for any television talk show. Hints of her healthy personality leak out of this vigorous saga about her struggles successfully to meet the challenges of simultaneously being a single parent, church activist, and businessperson. Writer, instructor, personalityJoyce Duren is all these great things . . . and more. But why go on here? Read her inspiring, informative story.
I never thought I was going to die. My mind and faith wouldn't allow me to go there but I was very fearful that my baby might die. My Life with Lupus and other annoying things tells the story of how the disease affected my life and my family along with the other illnesses that were associated with Lupus. There were some days before my treatment started that I just wanted to stay in bed because my joints caused me too much pain. Through the support of some amazing doctors and my family I discovered there can be a wonderful life during and after lupus and that healthy babies can be born to mothers with Lupus. Wonderful progress has been made in the treatment of this disease and it is my hope and prayer that some day medical researchers will find a cure.
Julie's Story, 'My Life With Lupus', sums up the challenges and struggles of a young woman's life in dealing with the very unpredictable disease, Lupus. Julie was a young and energetic twenty- four- year- old woman with her whole life ahead of her. Planning the wedding of her dreams to her college sweetheart and finishing her Master's degree in Social Work, life couldn't get any better! Although life was headed in the right direction for Julie, her health had other plans. Julie began noticing vague symptoms which became bothersome to her studies. She hesitated to voice these problems due to the fact 'she looked fine on the outside'. For a year, Julie dealt with ongoing fatigue and pain which was attributed to the stress of planning a wedding and working toward a master's degree. Eventually, the symptoms worsened and Julie needed to seek medical attention. What would the doctors tell her? How would she react? Ten years later, Julie is talking about how she coped through the challenges and got through the difficult days in dealing with lupus. "Life is a rollercoaster", Julie says. "It has its ups and downs, but you just have to take one day at a time. I feel God has blessed me with Lupus, so that I can reach out to others. My life could be a whole lot worse, and I've seen a whole lot worse". Julie's Story, 'My Life With Lupus' has been written for all of those who suffer from an autoimmune disease. Especially the great friends I've made along the way. Some of the proceeds of this book will be donated to the Lupus Foundation to help find a cure for this very unpredictable, life-threatening disease!
This insightful book demonstrates the conversations you should be having with your Doctor, presented in discussion format from both the patient's and doctor's perspective. Autoimmune diseases are chronic inflammations of various parts of the body. Lupus in particular, can present such a wide variety of symptoms and on-going health issues that it is critical to maintain an open-communicative relationship between patient and physician(s). In a familiar question and answer style, the authors show you how it's done. What should I tell my Doctor? How do I know if a symptom is important? What does it mean to the Doctor in m overall treatment plan? By example, the authors have demonstrated the development of the sacred relationship between doctor and patient. They cover common issues of daily living with thoughtful discussions of the variety of symptoms, how they may effect your lifestyle and those of your family. This guide provides constructive, adjustment strategies for a productive lifestyle. Offering both patient and doctor viewpoints, Lupus, My Doctor and Me, will leave each reader a clearer understanding for management of this syndrome. Whether part of your personal library or the public library, this guide will provide an insightful narrative for family and friends. There are over 5 million people with lupus worldwide with close to 1.4 million diagnosed in the US. Family and friends of patients will find insights as participants in caregiving. Those millions of autoimmune disease patients, including those with multiple sclerosis, diabetes, Crohn's disease, fibromyalgia, rheumatoid arthritis, Sjgren's syndrome, and Raynaud's disease will also find insights and useful tools in the book. This book is a valuable collection addition to all 16,000 US public libraries.
Serious illness and mortality, those most universal, unavoidable, and frightening of human experiences, are the focus of this pioneering study which has been hailed as a telling and provocative commentary on our times. As modern medicine has become more scientific and dispassionate, a new literary genre has emerged: pathography, the personal narrative concerning illness, treatment, and sometimes death. Hawkins's sensitive reading of numerous pathographies highlights the assumptions, attitudes, and myths that people bring to the medical encounter. One factor emerges again and again in these case studies: the tendency in contemporary medical practice to focus primarily not on the needs of the individual who is sick but on the condition that we call disease. Pathography allows the individual person a voice-one that asserts the importance of the experiential side of illness, and thus restores the feeling, thinking, experiencing human being to the center of the medical enterprise. Recommended for medical practitioners, the clergy, caregivers, students of popular culture, and the general reader, Reconstructing Illness demonstrates that only when we hear both the doctor's and the patient's voice will we have a medicine that is truly human.