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Service user involvement in mental health research poses specific challenges for both researchers and service users. The book describes the relevant background and principles underlying the concept of service user involvement in mental health research, providing relevant practical advice on how to engage with service users and how to build and maintain research collaboration on a professional level. It highlights common practical problems in service user involvement, based on experience from various countries with different social policies and suggests ways to avoid pitfalls and common difficulties. The book helps researchers decide which level of service user involvement will be adequate for their research activities and what will be feasible in view of the practicalities involved. It is also ideal for service users who are interested in becoming involved in research, providing relevant background information on the possibilities of involvement in professional research.
Hearing (Our) Voices describes two innovative participatory action research projects - one on communication with medical professionals, the other on housing - carried out by a group of people diagnosed with schizophrenia under the guidance of Professor Barbara Schneider. Participants designed the research, conducted interviews and focus groups, participated in data analysis, and disseminated research results through a number of innovative strategies including theatre performances, a documentary film, a graphic novel, and a travelling exhibit. Emerging from these projects is the central and significant finding that people diagnosed with schizophrenia are caught between their dependence on care and their longing for independent lives. The research presented in Hearing (Our) Voices points to a way to resolve this paradox and transform lives through the inclusion of people diagnosed with schizophrenia in research, in decision-making about their own treatment and housing, and in public discourse about schizophrenia.
Bringing together treatment and referral advice from existing guidelines, this text aims to improve access to services and recognition of common mental health disorders in adults and provide advice on the principles that need to be adopted to develop appropriate referral and local care pathways.
This book aims to show the value but also the difficulties encountered in the application of 'insider knowledge' in service user research. Mental health service users in research considers ways of 'doing research' which bring multiple understandings together effectively, and explains the sociological use of autobiography and its relevance. It examines how our identity shapes the knowledge we produce, and asks why voices which challenge contemporary beliefs about health and the role of treatment are often silenced. An imbalance of power and opportunity for service users, and the stigmatising nature of services, are considered as human rights issues.Most of the contributors to the book are service users/survivors as well as academics. Their fields of expertise include LGB issues, racial tensions, and recovering from the shame and stigma of alcoholism. They stress the importance of research approaches which involve mutualities of respect and understanding within the worlds of researcher, clinician and service user/survivor.
This book presents state-of-the-art methods for developing concepts appropriate for nursing. It presents a wide array of approaches to concept developments, ranging from the classic to the cutting-edge in a matter that balances philosophical foundations with techniques and practical examples. Explores approaches ranging from the classic to constructivist to critical or postmodern Balances philosophy and methods, illustrating each method with a complete example of a specific concept developed using that method.
This book aims to show the value but also the difficulties encountered in the application of 'insider knowledge' in service user research. Mental health service users in research considers ways of 'doing research' which bring multiple understandings together effectively, and explains the sociological use of autobiography and its relevance. It examines how our identity shapes the knowledge we produce, and asks why voices which challenge contemporary beliefs about health and the role of treatment are often silenced. An imbalance of power and opportunity for service users, and the stigmatising nature of services, are considered as human rights issues.Most of the contributors to the book are service users/survivors as well as academics. Their fields of expertise include LGB issues, racial tensions, and recovering from the shame and stigma of alcoholism. They stress the importance of research approaches which involve mutualities of respect and understanding within the worlds of researcher, clinician and service user/survivor.
Estimates indicate that as many as 1 in 4 Americans will experience a mental health problem or will misuse alcohol or drugs in their lifetimes. These disorders are among the most highly stigmatized health conditions in the United States, and they remain barriers to full participation in society in areas as basic as education, housing, and employment. Improving the lives of people with mental health and substance abuse disorders has been a priority in the United States for more than 50 years. The Community Mental Health Act of 1963 is considered a major turning point in America's efforts to improve behavioral healthcare. It ushered in an era of optimism and hope and laid the groundwork for the consumer movement and new models of recovery. The consumer movement gave voice to people with mental and substance use disorders and brought their perspectives and experience into national discussions about mental health. However over the same 50-year period, positive change in American public attitudes and beliefs about mental and substance use disorders has lagged behind these advances. Stigma is a complex social phenomenon based on a relationship between an attribute and a stereotype that assigns undesirable labels, qualities, and behaviors to a person with that attribute. Labeled individuals are then socially devalued, which leads to inequality and discrimination. This report contributes to national efforts to understand and change attitudes, beliefs and behaviors that can lead to stigma and discrimination. Changing stigma in a lasting way will require coordinated efforts, which are based on the best possible evidence, supported at the national level with multiyear funding, and planned and implemented by an effective coalition of representative stakeholders. Ending Discrimination Against People with Mental and Substance Use Disorders: The Evidence for Stigma Change explores stigma and discrimination faced by individuals with mental or substance use disorders and recommends effective strategies for reducing stigma and encouraging people to seek treatment and other supportive services. It offers a set of conclusions and recommendations about successful stigma change strategies and the research needed to inform and evaluate these efforts in the United States.
First systematic treatment of best-worst scaling, explaining how to implement, analyze, and apply the theory across a range of disciplines.
There has been a major development in social science research: it is now being carried out by people who had previously only been seen as its subjects. At the forefront are people with experience as mental health service users/survivors who have taken a lead in pioneering a new approach to research which is now commanding increasing attention and respect. "This is Survivor Research" for the first time details this important new approach to research. Written and edited by leaders in the field, the book explores the theory and practice of survivor research, provides practical examples of survivor research and offers guidance for people wishing to carry out such research themselves. This is a groundbreaking book for policy makers, researchers, educators, students, service users and practitioners in the mental health field and beyond, many of whom must address user involvement in their research.
This book provides a user-friendly introduction to the qualitative methods most commonly used in the mental health and psychotherapy arena. Chapters are written by leading researchers and the editors are experienced qualitative researchers, clinical trainers, and mental health practitioners Provides chapter-by-chapter guidance on conducting a qualitative study from across a range of approaches Offers guidance on how to review and appraise existing qualitative literature, how to choose the most appropriate method, and how to consider ethical issues Demonstrates how specific methods have been applied to questions in mental health research Uses examples drawn from recent research, including research with service users, in mental health practice and in psychotherapy