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Following criticisms of the traditionally polarized view of understanding suffering through either medicine or social justice, Lowe makes a compelling argument for how the medical humanities can help to go beyond the traditional biographical and epistemic breaks to see into the nature and properties of suffering and what is at stake. Lowe demonstrates through analysis of major healthcare workforce issues and incidence of burnout how key policies and practices influence healthcare education and experiences of both patients and health professionals. By including first person narratives from health professionals as a tool and resource, she illustrates how dominant ideas about the self enter practice as a refusal of suffering. Demonstrating the relationship between personal experience, theory and research, Lowe argues for a pedagogy of suffering that shows how the moral anguish implicit in suffering is an ethical response of the emergent self. This is an important read for all those interested in medical humanities, health professional education, person-centred care and the sociology of health and illness.
Following criticisms of the traditionally polarized view of understanding suffering through either medicine or social justice, Lowe makes a compelling argument for how the medical humanities can help to go beyond the traditional biographical and epistemic breaks to see into the nature and properties of suffering and what is at stake. Lowe demonstrates through analysis of major healthcare workforce issues and incidence of burnout how key policies and practices influence healthcare education and experiences of both patients and health professionals. By including first person narratives from health professionals as a tool and resource, she illustrates how dominant ideas about the self enter practice as a refusal of suffering. Demonstrating the relationship between personal experience, theory and research, Lowe argues for a pedagogy of suffering that shows how the moral anguish implicit in suffering is an ethical response of the emergent self. This is an important read for all those interested in medical humanities, health professional education, person-centred care and the sociology of health and illness.
Providing a critical humanities approach to ageing, this book addresses new directions in age studies: the meaning and workings of "ageism" in the twenty-first century, the vexed relationship between age and disability studies, the meanings and experiences of "queer" aging; the fascinating, yet often elided work of age activists; and, finally, the challenges posed by AI and, more generally, transhumanism in the context of caring for an ageing population. Divided into four parts: Part I: What Does It Mean to Grow Old? Part II: Aging: Old Age and Disability Part III: Aging, Old Age, and Activism Part IV: Old Age and Humanistic Approaches to Care the volume provides an innovative, two-part structure that facilitates rather than merely encourages interdisciplinary collaboration across the humanities and social sciences. Each essay is thus followed by two short critical responses from disciplinary viewpoints that diverge from that of the essay’s author. Drawing on work from across the humanities - philosophy, fine arts, religion, and literature, this book will be a useful supplemental text for courses on age studies, sociology and gerontology at both undergraduate and graduate levels.
This book explores how person-centred health care could be refined to help persons alleviate pain-related distress and construct pain as a potentially positive experience. Rethinking Pain in Person-Centred Health Care is a fascinating contribution to the multidisciplinary literature on person-centred health care, pain and ethics. Traditionally, Western intellectual culture has downplayed the intuitive and emotional, promoting instead rational, natural-scientific perspectives. Applied to pain, an instrumental approach promotes the immediate and effective relief of pain, due to the widespread suffering and expense it can cause. However, different persons experience pain in different ways and Buetow moves beyond a commitment to eliminate pain to exploring how benefits of pain could include creating and managing meaning from pain. Rather than always looking to put pain behind them, persons may flourish by moving around pain, through pain, into pain and above pain. Buetow argues that this model depends on adopting a person-centred approach to health care, focusing less on the condition of pain and more on mobilizing the persons who present with, and manage, pain. This book will be of interest to professionals and academics/researchers in the fields of psychology and psychiatry who have a special interest in people with persistent pain conditions. It will also be an invaluable resource for physiotherapists, chronic pain consultants in secondary care and GPs.
This book critically analyses how politics and power affect the ways that medicine is taught and learned. Challenging society’s historic reluctance to connect the realm of politics to the realm of medicine, Medical Education, Politics and Social Justice: The Contradiction Cure emphasizes the need for medical students to engage with social justice issues, including global health crises resulting from the climate emergency, and the health implications of widening social inequality. Arguing for an increased focus on community-based learning, rather than acute care, this innovative text maps the territory of medicine’s contradictory engagement with politics as a springboard for creative curriculum design. It demonstrates why the socially disempowered - such as political and climate refugees, the homeless, or those without health insurance should be primary subjects of attention for medical students, while exploring how political engagement can be refined, sharp, cultivated and creative, engaging imagination and demanding innovation Exploring how the medical humanities can promote engagement with politics to improve medical education, this book is a ground-breaking and inspiring contribution. It is an essential read for all those with a focus on medical education and medical humanities, as well as medical and healthcare students with an interest in the social determinants of health.
This book explores previously unexamined overlaps between the poetic imagination and the medical mind. It shows how appreciation of poetry can help us to engage with medicine in more intense ways based on ‘de-familiarising’ old habits and bringing poetic forms of ‘close reading’ to the clinic. Bleakley and Neilson carry out an extensive critical examination of the well-established practices of narrative medicine to show that non-narrative, lyrical poetry does different kind of work, previously unexamined, such as place eclipsing time. They articulate a groundbreaking ‘lyrical medicine’ that promotes aesthetic, ethical and political practices as well as noting the often-concealed metaphor cache of biomedicine. Demonstrating that ambiguity is a key resource in both poetry and medicine, the authors anatomise poetic and medical practices as forms of extended and situated cognition, grounded in close readings of singular contexts. They illustrate structural correspondences between poetic diction and clinical thinking, such as use of sound and metaphor. This provocative examination of the meaningful overlap between poetic and clinical work is an essential read for researchers and practitioners interested in extending the reach of medical and health humanities, narrative medicine, medical education and English literature.
As nurses, we hear about mindfulness all the time, but what does that actually mean in practice? In this book readers are invited into conversation to explore how mindfulness influences palliative care nurses’ approaches to caring for themselves and others through experiences of living-dying. Under the guise of stress reduction and self-care, the assumption often made is that mindfulness can smooth out difficult experiences. Instead, the objective of this inquiry is not to bypass the practice of caring in those spaces that are really hard, but to understand how nurses are working directly within them. Calling out from the shadows—and our bodies—the intensity of palliative care nursing practice arises. In this text, a dialogue unfolds of nurses caring in deeply meaningful practice environments while searching for ground that is perpetually shifting, uncertain, and fraught with suffering and strong emotion. Integrating literature across nursing, sociology, and contemplative scholarship, evocative stories from palliative care nurses lead in this conversation—their words in italics—showing how they are guided into action through connection with-in their bodies. At other times, stories show how nurses are taking pause and drawing on various somatic practices to unravel entanglements that touch on their own humanity. These stories also offer insight into how systemic forces, across educational and organizational institutions, are either enhancing or constraining the way nurses engage mindfulness as a relationally embodied ethic of care. This insightful volume is not a how-to guide, rather it is a timely resource exploring approaches for palliative care nurses to care for themselves and others with mindfulness and compassion. Those seeking nuanced perspectives, particularly in relation to embodying mindfulness through suffering and strong emotion, will be drawn to this text. Qualitative researchers studying emotionally sensitive topics may also find inspiration in the narrative, arts-based, and embodied methods that shape this inquiry.
This book examines the phenomenon of physician-authors. Focusing on the books that contemporary doctors write--the stories that they tell--with contributors critically engaging their work. A selection of original chapters from leading scholars in medical and health humanities analyze the literary output of doctors, including Oliver Sacks, Danielle Ofri, Atul Gawande, Louise Aronson, Siddhartha Mukherjee, and Abraham Verghese. Discussing issues of moral meaning in the works of contemporary doctor-writers, from memoir to poetry, this collection reflects some of the diversity of medicine today. A key reference for all students and scholars of medical and health humanities, the book will be especially useful for those interested in the relationship between literature and practising medicine.
This book builds on the person-centred medicine movement to promote a shift in the philosophy of care of distress. It discusses the vital importance of whole person health, healing and growth. Developing a new transdisciplinary concept of sense of safety, this book argues that the whole person needs to be understood within their context and relationships and explores the appraisal and coping systems that are part of health. Using clinical vignettes to illustrate her argument, Lynch draws on an understanding of attachment, and trauma-informed approaches to life story and counsels against an over-reliance on symptom-based fragmentation of body and mind. Integrating literature from social determinants of health, psychology, psychotherapy, education and the social sciences with new research from the fields of immunology, endocrinology and neurology, this broad-ranging book is relevant to all those with an interest in person-centred healthcare, including academics and practitioners from medicine, nursing, mental health and public health.
This thought-provoking book explores the connections between health, ethics, and soul. It analyzes how and why the soul has been lost from scientific discourses, healthcare practices, and ethical discussions, presenting suggestions for change. Arguing that the dominant scientific worldview has eradicated talk about the soul and presents an objective and technical approach to human life and its vulnerabilities, Ten Have and Pegoraro look to rediscover identity, humanity, and meaning in healthcare and bioethics. Taking a mulitidisciplinary approach, they investigate philosophical, scientific, historical, cultural, social, religious, economic, and environmental perspectives as they journey toward a new, global bioethics, emphasizing the role of the moral imagination. Bioethics, Healthcare and the Soul is an important read for students, researchers, and practitioners interested in bioethics and person-centred healthcare.