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Even as life expectancies increase, increasing numbers of people are living with chronic illness and pain than ever before. Long-term self-management of chronic conditions involves negotiating the intersections of personal life choices, community and workplace structures, and family roles. Medical Humanism, Chronic Illness, and the Body in Pain: An Ecology of Wholeness proposes an ecological model of wholeness, which envisions wholeness in the dialogic engagement of the philosophical orientations of the biomedical and traditional medical systems. Vinita Agarwal proposes an integrative premise of being whole through revising the fundamental definitions of humanism, rethinking the self/body/environment, and thereby recognizing alternative ways of organizing knowledge and human experience as this model pushes the intersections of patient-centered care and sustainable health ethics. It is in the spaces of such intersections, Agarwal argues, that we accomplish healing as an integrative relationship of the individual with the multiple cultural logics underlying chronic conditions and the competing medical worldviews of our contemporary landscape. Scholars of communication, health, and medical humanities, along with practitioners working with patients who have chronic conditions, will find this book particularly useful.
"With case studies drawn from anthropological investigations of chronic pain sufferers and pain clinics in the northeastern United States, the authors attempt to invent new ways of writing about this language-resistant human experience. Focused on substantive issues in the study of chronic pain, their work explores the great divide between the culturally shaped language of suffering and the traditional language of medical and psychological theorizing. They argue that the representation of experience in local social worlds is a central challenge to the human sciences and to ethnographic writing, and that meeting that challenge is also crucial to the refiguring of pain in medical discourse and health policy debates. Anthropologists, scholars from the medical social sciences and humanities, and many general readers will be interested in Pain as Human Experience. In addition, behavioral medicine and pain specialists, psychiatrists, and primary care practitioners will find much that is relevant to their work in this book."--Jacket.
"This is an extraordinary book—riveting story, concise scholarship, experimental ethnography—and it is beautifully told. Greenhalgh makes a cogent and powerful analysis of the sociopolitical sources of pain through feminist, cultural, and political understandings of the nature of medical science and medical practice in the United States."—Sharon Kaufman, author of The Healer's Tale "Far above a simple telling of an illness, Greenhalgh takes the experience as a way to view gendered relations in medical care, the seduction of science for the physician and the patient, and the creation of facts and selves in the treatment of pain. She sets a new standard for the practice of autoethnography."—Virginia Olesen, Professor Emerita of Sociology, Department of Social and Behavioral Sciences, School of Nursing, University of California, San Francisco "A compellingly told story that advances our understanding of the meaning of chronic illness, particularly for women. This work adds a new dimension to the genre of illness narratives."—Susan DiGiacomo, Series Editor, Theory and Practice in Medical Anthropology and International Health "A very useful and very well written book. . . . It states the issues in the culture of biomedicine field effectively and makes them relevant."—Arthur Kleinman, author of Writing at the Margin: Discourse between Anthropology and Medicine "A deeply troubling, meticulous account about the chasm between medical orthodoxy and the subjective experience of chronic illness. This courageous book is essential reading for physicians and the public at large."—Margaret Lock, author of Encounters with Aging: Mythologies of Menopause in Japan and North America
This fourth volume in the Companion to Medical Humanities series contemplates the challenge of the prognosis, of looking ahead, wondering what will happen, and attempting to make sense of life and death.
The studies of the human being in health and illness and how he can be cared for is concerned with more than the biological aspects and thus calls for a broader perspective. Social sciences and medical humanities give insight into the context and conditions of being ill, caring for the ill, and understanding disease in a respective socio-cultural frame. This book brings together scholars from various countries who are interested in deepening the interdisciplinary discourse on the subject. This book is the outcome of the 4th global conference on "Making Sense of: Health, Illness and Disease," held at Mansfield College, Oxford, in July 2005. This volume will be of interest to students in the medical humanities, researchers as well as health care provider who wish to gain insight into the various perspectives through which we can understand health, illness and disease. It has been brought to our attention that in a chapter in this volume "Media Treatment of Organ Donation: A Case Study in Switzerland" By Peter J. Schulz direct reference and citation of the works of other scholars is often inconsistent and in some cases totally lacking. While we do not believe that it was the intention of the author of the article to misappropriate other persons' material, we do admit that the chapter does not meet standards currently expected of an academic publication. We regret any misappropriation of another author's language, thoughts, ideas, or expressions in our publications and will remain vigilant to prevent this recurring in the future. We give notice that the chapter has been retracted and will not appear in any future editions of the book. Brill, February 2016
The Nature of Suffering underscores the change that is taking place in medicine from a basic concern with disease to a greater focus on the sick person. Cassell centers his discussion on the problem of suffering because, he says, its recognition and relief are a test of the adequacy of any system of medicine. He describes what suffering is and its relationship to the sick person: bodies do not suffer, people do. An exclusive concern with scientific knowledge of the body and disease, therefore, impedes an understanding of suffering and diminishes the care of the suffering patient. The growing criticism that medicine is not sufficiently humanistic does not go deep enough to provide a basis for a new understanding of medicine. New concepts in medicine must have their basis in its history and in the development of ideas about disease and treatment. Cassell uses many stories about patients to demonstrate that, despite the current dominance of science and technology, there can be no diagnosis, search for the cause of the patient's disease, prognostication, or treatment without consideration of the individual sick person. Recent trends in medicine and society, Cassell believes, show that it is time for the sick person to be not merely an important concern for physicians but the central focus of medicine. He addresses the exciting problems involved in such a shift. In this new medicine, doctors would have to know the person as well as they know the disease. What are persons, however, and how are doctors to comprehend them? The kinds of knowledge involved are varied, including values and aesthetics as well as science. In the process of knowing the experience of patient and doctor move to center stage. He believes that the exploration of the person will engage medicine in the 21st century just as understanding the body has occupied the last hundred years.
Pain is felt by everyone, yet understanding its nature is fragmented across myriad modes of thought. In this compact, yet thoroughly integrative account uniting medical science, psychology, and the humanities Ronald Schleifer offers a deep and complex understanding along with possible strategies of dealing with pain in its most overwhelming forms. A perfect addition to many courses in medicine, healthcare, counseling psychology, and social work.
This provocative and moving work explores concepts of body and space to better understand the daily lives and struggles of women with chronic illness. Moss and Dyck show how such women--coping with associated notions of illness, health, and being female--restructure their physical and social environments through the strategies they choose to accommodate disabling illnesses such as chronic fatigue syndrome, multiple sclerosis, or rheumatoid arthritis. Strategies might include disclosing or concealing illness from employers and friends; seeking or rejecting emotional support through old friends and new contacts; and pursuing or resisting specific diagnoses from the biomedical community. Featuring a wealth of original research and personal stories, Women, Body, Illness tells the tales of chronically ill women forging networks of support, redefining themselves, and challenging what it is to be ill.
Pain research is still dominated by biomedical perspectives and the need to articulate pain in ways other than those offered by evidence based medical models is pressing. Examining closely subjective experiences of pain, this book explores the way in which pain is situated, communicated and formed in a larger cultural and social context. Dimensions of Pain explores the lived experience of pain, and questions of identity and pain, from a range of different disciplinary perspectives within the humanities and social sciences. Discussing the acuity and temporality of pain, its isolating impact, the embodied expression of pain, pain and sexuality, gender and ethnicity, it also includes a cluster of three chapters discusses the phenomenon and experience of labour pains. This volume revitalizes the study of pain, offering productive ways of carefully thinking through its different aspects and exploring the positive and enriching side of world-forming pain as well as its limiting aspects. It will be of interest to academics and students interested in pain from a range of backgrounds, including philosophy, sociology, nursing, midwifery, medicine and gender studies.
This exciting book draws on the insight and experience of 21 medical practitioners and researchers in the wider field of the medical humanities to ask fundamental questions related to illness, bodily experience, the experience and role of medical and healthcare professionals, and the contribution of language and communication to enable understanding. It opens up a range of conversations, reflections and research to present an innovative approach to the field of body studies, investigating complex questions that are associated with self and body and medical and healthcare professionals who work with bodies that are ill. Areas of pain, disability, vulnerability, life experienced through chronic conditions and the insights of listening to the ill and the dying are examined within the individual contributions. The chapters explore a range of key spaces, gaps and tensions between talk and bodies, from embodied experiences and patient-doctor relationships to negotiating institutional constraints and reading, looking and enacting as methods of improving intersubjective, relational and ethical practices.