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The day after Thanksgiving of 2016, the author was diagnosed with stage 4 cancer. He has undergone various forms of treatment, including therapies at the Mayo Clinic in Minnesota where he began a routine of sending updates and essays to friends and family every two weeks. In the first paragraph or two of each essay, he reported on his medical situation, grounding the essays in real time and in an ambiguous but life-affirming struggle. This was followed with an essay on meaning-making-how he was trying to make sense of the experience and what helped him cope. In some of these, he focuses on advice to people who have a chronically ill friend; an example is the essay, "Awkward! What to Say (or Not Say) to Friends with a Life-threatening Disease." On other occasions, he reflects on the experience of having a life-threatening disease and addresses others in that situation with essays like "Planning for the Future When 'Planning the Future' Feels like an Oxymoron." The reflections are sometimes informed by philosophical or theological analyses but more often by a sociological lens. The result is a musing of remarkable depth. For more information and updates on Keith Roberts, please visit: https://www.caringbridge.org/visit/keithroberts2
This book provides a comprehensive, state-of-the-art overview on palliative care for patients with hematologic malignancies and other serious blood disorders. The text reviews the unique needs of this patient population, management strategies for hematologists/oncologists and palliative care clinician collaboration, and issues salient to the provision of palliative care, including communication, decision-making, advance care planning, symptom management, ethics, and nursing considerations. The book also spotlights special hematology populations, such as pediatric and older adult patients, and issues pertaining to the care of patients with blood disorders at the end of life. Divided into four sections, this book provides a comprehensive, state-of-the-art overview on palliative care for patients with hematologic malignancies and other serious blood disorders. Written by experts in the field, Palliative Care for Hematologic Malignancies and Serious Blood Disorders: A Clinical Guide is a valuable resource that will support and guide clinicians as they care for this patient population and address their particular needs.
‘This book creates new ground for all health professionals working in cancer care to read, enjoy, look at and question their practice.’ Caroline Adcock, Clinical Practice Educator – Haematology and Oncology, Royal Shrewsbury Hospital Cancer and Cancer Care is a complete study of cancer, the care of people with the disease and its impact on everyday life. Addressing the physical and psychosocial aspects of the illness in detail, it covers all fundamental aspects of cancer diagnosis, treatment, survival and aspects of psychosocial support for all those affected by cancer: patients, their families, and their healthcare providers. Chapters include: - A review of the latest theory and evidence on over 30 separate topic areas - Reflective questions which challenge readers to reappraise what they have learned - Chapter overviews and chapter summaries which highlight the key points The book is essential reading for all those on cancer care courses at undergraduate and postgraduate level. It will be valuable reading for nurses, oncologists, psychologists, social workers and all healthcare practitioners and researchers working with people affected by cancer.
This book addresses the unmet needs of the medical community in dealing with the psychological problems, particularly anxiety and depression, of patients diagnosed with cancer. Providing a scholarly review of the impact of cancer diagnosis on patients’ emotional and psychological status, as well as the evidence that psychological factors impact cancer occurrence and biological behavior, this book explores the therapeutic implications of such converse dynamics. Chapters review financial toxicity, eHealth, palliative care, mindfulness, sleep and cancer, social support and cancer, cultural diversity, pediatric and adolescent oncology, and geriatric oncology. While intended primarily for the professional readership of oncologists, psychologists, psychiatrists, social workers, and palliative care physicians, a final chapter also provides practical information on available resources for patients. This fully updated and expanded new edition of Psychological Aspects of Cancer: A Guide to Emotional and Psychological Consequences of Cancer, Their Causes, and Their Management provides practitioners with cutting edge knowledge as well as practical information that translates into better care for patients with cancer.
This title was first publihsed in 2000: Confronting Icarus, is the first book to bring together all of the original research that has been published to date on the psycho-social aspects of Haematological malignancies. This is a practical book to be used by health care practitioners and researchers interested in Haematological malignancies. Clearly written summaries of the findings from a wealth of original research are organised into ten distinct topic areas so that the reader can quickly and easily access an overview of the work completed in the area. For more detailed reference, each chapter includes, in chronological and alphabetical order, full descriptions of the relevant research. This book provides a constructive way forward to addressing the extensive literature that is concerned with the problems inherent in the biomedical perspective that presently predominates in oncology. A remedy, it is argued, is to build into our response to disease a sophisticated understanding of the human experience of illness through psycho-social research.
This book provides a contemporary and comprehensive examination of cancer in everyday life, drawing on qualitative research with people living with cancer, their family members and health professionals. It explores the evolving and enduring affects of cancer for individuals, families and communities, with attention to the changing dynamics of survivorship, including social relations around waiting, uncertainty, hope, wilfulness, obligation, responsibility and healing. Challenging simplistic deployments of survivorship and drawing on contemporary and classical social theory, it critically examines survivorship through innovative qualitative methodologies including interviews, focus groups, participant produced photos and solicited diaries. In assembling this panoramic view of cancer in the twenty-first century, it also enlivens core debates in sociology, including questions around individual agency, subjectivity, temporality, normativity, resistance, affect and embodiment. A thoughtful account of cancer embedded in the undulations of the everyday, narrated by its subjects and those who informally and formally care for them, Survivorship: A Sociology of Cancer in Everyday Life outlines new ways of thinking about survivorship for sociologists, health and medical researchers and those working in cancer care settings.
There is an urgent need to understand how private and public organisations can play a role in promoting human values such as fairness, dignity, respect and care. Globalisation, technological advance and climate change are changing work, organisations and systems in ways which foster inequality, alienation and collective risk. Against this backdrop, organisations are being urged to make their contribution to the common good, take account of the interests of multiple stakeholders, and respond ethically as well as efficiently to complex challenges which transcend traditional organisational and state boundaries. Ethics, Meaningfulness, and Mutuality poses critical questions related to organisational design by challenging limits to current thinking, such as the neglect by political philosophers of markets, firms and stakeholders, or by organisational theorists of business ethics. In so doing, the book advances our understanding of the theory and practice of ethical organising. Specifically, meaningfulness and mutuality will be used to yield values and principles for a philosophy of ethical organising which includes an account of human values in morally desirable collective action, and examines the relationship of collective action to the contested concept of shared value creation. Within a philosophy of ethical organising, mutuality permits an examination of the unavoidable relational nature of collective action, whereas meaningfulness addresses fundamental human concerns for significance and leading a life we have reason to value. By addressing our status as relational beings with human needs for meaning, a philosophy of ethical organising brings critical thinking to the creation of morally informed organisational practices which are not only instrumentally beneficial for addressing wicked problems, but are normatively desirable for human flourishing.
The growing number of cancer survivors presents a new challenge to generalists and specialists involved in their care. Prior cancer treatments may compound known comorbidities or contribute to future health risks. The ultimate success of cancer treatments ultimately depends on the meticulous management of post-cancer care, and this requires a clinical workforce that is engaged and ready. Cancer survivorship has now become recognized as an independent field of research and clinical practice. This new concise guide is intended for cancer clinicians as well as generalists and specialists who meet cancer survivors in their practices for routine check-ups or specialized consultations. With an expanding population known to have complex medical, psychosocial and emotional needs, we hope this book sparks interest and provides answers for those involved in their care.