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In 1932, the U.S. Public Health Service recruited 623 African American men from Macon County, Alabama, for a study of "the effects of untreated syphilis in the Negro male." For the next 40 years -- even after the development of penicillin, the cure for syphilis -- these men were denied medical care for this potentially fatal disease. The Tuskegee Syphilis Study was exposed in 1972, and in 1975 the government settled a lawsuit but stopped short of admitting wrongdoing. In 1997, President Bill Clinton welcomed five of the Study survivors to the White House and, on behalf of the nation, officially apologized for an experiment he described as wrongful and racist. In this book, the attorney for the men, Fred D. Gray, describes the background of the Study, the investigation and the lawsuit, the events leading up to the Presidential apology, and the ongoing efforts to see that out of this painful and tragic episode of American history comes lasting good.
Utopia should be understood as a method rather than a goal. This book rehabilitates utopia as a repressed dimension of the sociological and in the process produces the Imaginary Reconstitution of Society, a provisional, reflexive and dialogic method for exploring alternative possible futures.
Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Do parents have the authority to volunteer their children for research projects? How should children participate in the decision to be involved in research? How should research risks be assessed and balanced? These perplexing questions and others are addressed by a distinguished group of experts in the field of biomedical and behavioral research with children. This book adopts an integrated multidisciplinary approach which uses science, ethics, and law as guides for exploring these most difficult issues. The tension between acquiring important new knowledge and fulfilling the obligation to protect children from exploitation and harm is a recurring theme. As the first book to be devoted solely to the science, ethics, and law of research with children, it is an indispensable resource to physicians, psychologists, educators, lawyers, ethicists, Institutional Review Board members, child advocates and others involved in performing or reviewing research with children.
Gender, Race, Class, and Health examines relationships between economic structures, race, culture, and gender, and their combined influence on health. The authors systematically apply social and behavioral science to inspect how these dimensions intersect to influence health and health care in the United States. This examination brings into sharp focus the potential for influencing policy to improve health through a more complete understanding of the structural nature of race, gender, and class disparities in health. As useful as it is readable, this book is ideal for students and professionals in public health, sociology, anthropology, and women’s studies.