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Maria was born and raised in a beautiful northern Spanish village on the coast with a close loving family and a college degree, ostensibly she appears to have a very comfortable lifestyle.
Maria was born and raised in a beautiful northern Spanish village on the coast with a close loving family and a college degree, ostensibly she appears to have a very comfortable lifestyle.
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD. Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.
In 1660, at the age of thirteen, Maria Sibylla Merian (1647-1717) began her study of butterfly metamorphosis—years before any other scientist published an accurate description of the process. Later, Merian and her daughter ventured thousands of miles from their home in the Netherlands into the rainforests of South America seeking new and amazing insects to observe and illustrate. Years after her death, Merian’s accurate and beautiful illustrations were used by scientists, including Carl Linnaeus, to classify species, and today her prints and paintings are prized by museums around the world. More than a dozen species of plants and animals are named after Merian. The first Merian biography written for ages 10 and up, this book will enchant budding scientists and artists alike. Readers will be inspired by Merian’s talent, curiosity, and grit and will be swept up in the story of her life, which was adventurous even by today’s standards. With its lively text, quotations from Merian’s own study book, and fascinating sidebars on history, art, and science, this volume is an ideal STEAM title for readers of all ages and interests.
Discusses 4 Chicana poets' "dilemmas of their dual relationship to American and Mexican societies and of their dual identity as Chicanas and as women writing in a contemporary setting."
Roger Ebert has been writing film reviews for the Chicago Sun-Times for nearly forty years. And during those four decades, his wide knowledge, keen judgment, prodigious energy, and sharp sense of humor have made him America's most celebrated film critic. He was the first such critic to win a Pulitzer Prize - one of just three film critics ever t...
The Iliad: Join Achilles at the Gates of Troy as he slays Hector to Avenge the death of Patroclus. Here is a story of love and war, hope and despair, and honor and glory. The recent major motion picture Helen of Troy staring Brad Pitt proves that this epic is as relevant today as it was twenty five hundred years ago when it was first written. So journey back to the Trojan War with Homer and relive the grandest adventure of all times. The Odyssey: Journey with Ulysses as he battles to bring his victorious, but decimated, troops home from the Trojan War, dogged by the wrath of the god Poseidon at every turn. Having been away for twenty years, little does he know what awaits him when he finally makes his way home. These two books are some of the most import books in the literary cannon, having influenced virtually every adventure tale ever told. And yet they are still accessible and immediate and now you can have both in one binding.
Presents a collection of the critic's most positive film reviews of the last four decades, arranged alphabetically from "About Last Night" to "Zodiac."
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