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Parenting a child with a chronic illness is not simply a full-time job; it’s an all-time job. Quite unlike most other jobs in life, your first day as the parent of a child with juvenile arthritis usually begins with little or no training, no orientation, and no helpful coworkers or encouraging boss to lead you through the ropes. You’ll be required to gain confidence and comfort in this job, day by day, through your own research and discoveries, your intuition, your inner strength, and your enduring love for your child. Living with Juvenile Arthritis: A Parent’s Guide provides support to parents and caregivers of children with juvenile arthritis through helpful tips and guidance from a parent who has successfully navigated the challenges of raising two children with juvenile idiopathic arthritis. Allow author Kimberly Poston Miller to help you and your family find your path. Learn more about arthritis, its symptoms, diagnosis scenarios, treatment options, managing pain, and handling flare-ups. Discover strategies for dealing with the unpredictability and individuality of your child’s condition. Build a support team of health-care professionals, cultivate healthy relationships within your family, and focus on what’s most important—raising a happy, well-adjusted child.
A self-help guide for youth, Juvenile Arthritis: The Ultimate Teen Guide is also useful to family members, friends, and caregivers of those suffering from the disease. Author Kelly Rouba has prepared a truly comprehensive resource without making it overwhelming, in order to help those who have the disease lead the best life possible. As someone diagnosed with a severe form of juvenile arthritis at the age of two, Rouba is very familiar with how difficult—physically and emotionally—it can be to live with this chronic illness. Readers get an overview of juvenile arthritis from the point of view of teenagers and their parents, and the book also includes discussions related to diagnosis, symptoms of the disease, its history, and various related conditions. Treatment options are also provided, as well as tips on how to adapt to life with the disease including exercise, diet and therapy. A list of applicable Web sites and other helpful resources is included at the end of most chapters.
Paediatric Rheumatology is an indispensible resource for the identification and management of specific rheumatological disorders. As well as covering common and rare rheumatological problems, there are also chapters on investigations and emergencies, designed for quick reference. The handbook includes dedicated topics on systemic diseases affecting rheumatology; the relevant clinical guidelines and information needed for a rheumatologist to successfully management a young patient; and, a coloured section for guidance on rash-related investigations. Paediatric Rheumatology is also fully endorsed by the British Society for Paediatric and Adolescent Rheumatology and the UK Paediatric Rheumatology Clinical Studies Group.
Are you the parent or caregiver of a child who has been diagnosed with juvenile arthritis (often called JA or JIA)? This beautifully written children's story introduces the reader to seven year old Alex. Through colorful illustrations and easy to read text, we meet a boy who has fun doing lots of things, but he doesn't like having JA. Alex shares his "ups and downs" with the reader, but he continues to maintain a positive attitude throughout the story.Alex gently emphasizes the importance of taking his prescribed medication and the need to stay active in order to live well with JA. A great story to share with siblings, family members and friends of those living with juvenile arthritis. A useful Q & A section and a section for further reading is included at the end of the story.
This concise guide takes a practical approach to adolescent and young adult (AYA) rheumatology, aiming to cover the needs of any healthcare professional dealing with young people aged 10-24 years. Each chapter contains key management points for readers to readily access disease-specific management as well as highlighting specific AYA issues which differ from pediatric and adult practice. The coverage is comprehensive but concise and designed to act as a primary reference tool for subjects across the field of rheumatology. The book is designed for pediatric/adult rheumatologists, primary care physicians, nurses, allied health professionals and other professionals to understand each topic covered and to take a practical approach to delivering developmentally appropriate rheumatology health care.
Discusses the symptoms, causes, and treatments for juvenile rheumatoid arthritis.
Packed with information, hope, and encouragement.
Covers the causes and symptoms of arthritis; offers tips on pain control, diet, and exercise; and describes such treatment options as medications, surgical procedures, and alternative therapies.
An essential survival guide for parents whose children suffer with persistent and often debilitating pain Approximately ten million children are living with chronic pain. Most people would be surprised at such numbers, but for the parents of these children, the challenge of helping a pain-stricken child live a normal life is a frightening and frustrating reality. Chronic pain in children can manifest as abdominal, migraine, or facial pain. It also stems from a wide variety of disorders such as juvenile rheumatoid arthritis, cystic fibrosis, hemophilia, and childhood cancers. No matter what type of chronic pain the child suffers with, a parent must be armed with an understanding of how a child's expression and experience of pain differs from an adult's. Trained in pediatric anesthesia and intensive care at Boston Children's Hospital, Dr. Elliot Krane has devoted his entire professional life to refining and innovating techniques, strategies, and therapies to relieve the suffering of children with pain. In his book, Relieve Your Child's Chronic Pain, parents will find the information and tools they need to get the very best care for their child. It will help you: Recognize, measure, and evaluate your child's pain properly Learn about the many alternative pain-management approaches that can be used at home Dispel fears about addiction if your child is prescribed a narcotic Find an appropriate pain-management clinic for your child Reduce the stress and anxiety in the home in a way that benefits the entire family You may not always be able to eliminate chronic pain entirely, but you can succeed in minimizing your child's suffering.