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In this powerful story, told in his own words, Jasper explains what it means to grow up with cystiuc fibrosis. Read about what cystic fibrosis is, the treatment he receives and how it affects his daily life.
“THE WONDER OF LOST CAUSES is equal parts heart wrenching and heartwarming as Trout pulls you onto an emotional rollercoaster that is sure to leave your heart filled to the brim. A true testament to the power of love in its purest and most absolute form.” — Rachael Lippincott, New York Times bestselling author of Five Feet Apart In this unforgettable novel, perfect for fans of An Unexpected Grace and A Dog’s Way Home, a single mom and her chronically ill child receive a valuable lesson from an unlikely source—a very special dog who unexpectedly enters their lives and shows them that one person’s lost cause can be another’s greatest gift . . .Dr. Kate Blunt will do anything for her son, Jasper. Well, almost anything. Since Jasper has the incurable lung disease cystic fibrosis, Kate’s always told him he couldn’t get a dog. It’s a tough call, but she’s a single mom taking care of a kid who fights for every breath he takes. The daily medical routine that keeps Jasper alive is complicated enough. Worse still, Kate’s personal resolve runs contrary to her work as the veterinarian in charge of a Cape Cod animal shelter, where she is on a mission to find forever homes for dogs in desperate need. The scarred, mistreated wreck of a dog that turns up doesn’t stand a chance. Named Whistler, he’s too old, too ugly. But the dog forms an instantaneous bond with Jasper. Whistler never makes a sound, yet he speaks to Jasper in a myriad of mysterious ways. The clock’s ticking, the dog’s future hangs in the balance, and Jasper would do anything to find him a home; but Whistler has chosen them—for a reason.
This book uses both oral and conventional historical methods to describe and analyze the history of lung transplantation in the US. While drawing on accounts from doctors and other specialists, it primarily focuses on the experiences of patients and explores themes of uncertainty, timing, identity, coping, and quality of life.
From award-winning author Beth Vrabel comes a powerfully moving story about a magical friendship, coping with disability, and the pains of growing up and growing apart. Twelve-year-old Caleb is shorter, frailer, and more protected than most kids his age. That's because he has cystic fibrosis, a diagnosis meaning lungs that fill with mucus and a shortened lifespan. Caleb tries not to let his disorder define him, but it can be hard with an overprotective mom and a perfect big brother. Then Caleb meets Kit -- a vibrant, independent, and free girl -- and his world changes instantly. Kit reads Caleb's palm and tells him they are destined to become friends. She calls birds down from the sky and turns every day into an adventure. Her magic is contagious, making Caleb question the rules and order in his life. But being Kit's friend means embracing deception and danger, and soon Caleb will have to decide if his friendship with Kit is really what's best for him -- or her.
Writing as A. Deborah Baker, New York Times bestselling and award-winning author Seanan McGuire introduces readers to a world of talking trees and sarcastic owls, of dangerous mermaids and captivating queens in Over the Woodward Wall, an exceptional tale for readers who are young at heart. If you trust her you’ll never make it home... A 2021 Locus Award Finalist! Avery is an exceptional child. Everything he does is precise, from the way he washes his face in the morning, to the way he completes his homework – without complaint, without fuss, without prompt. Zib is also an exceptional child, because all children are, in their own way. But where everything Avery does and is can be measured, nothing Zib does can possibly be predicted, except for the fact that she can always be relied upon to be unpredictable. They live on the same street. They live in different worlds. On an unplanned detour from home to school one morning, Avery and Zib find themselves climbing over a stone wall into the Up and Under – an impossible land filled with mystery, adventure and the strangest creatures. And they must find themselves and each other if they are to also find their way out and back to their own lives. At the Publisher's request, this title is being sold without Digital Rights Management Software (DRM) applied.
Eleven-year-old Bailey believes in miracles. She has to; it will take a miracle to keep her warring parents together. This summer they are at a Marriage Counselling camp, leaving Bailey and her little brother Kevin with their estranged grandmother in the island town of Felicity Bay. There, an eccentric deposed minister makes a prophecy that a stranger from the sea will change everything. When Bailey discovers a mermaid-shaped piece of driftwood, she begins to believe that the mermaid is this stranger from the sea. Then, when a dolphin becomes stranded on the beach, Bailey forgets her own troubles and rouses the reluctant locals into action. Written in light and lyrical free verse, Shari Green’s warm and wistful novel brings Bailey face to face with both hard and beautiful truths about growing up and growing into her own ability to shape the world.
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
This book gives a practical focus to the underpinning theory of nursing in order to help students through the academic part of their undergraduate course as well as their placement. The book is based on the activities of living model so each activity has its own chapter, allowing readers to dip in and out. It is essential reading for students, enabling them to understand and manage the many clinical issues they face on a daily basis when nursing adults on wards, in clinics and in the community setting.
A rich collection of writing from those negotiating disability in their lives - a group whose voices are not heard often enough My body and its place in the world seemed normal to me. Why wouldn’t it? I didn’t grow up disabled; I grew up with a problem. A problem that those around me wanted to fix. We have all felt that uncanny sensation that someone is watching us. The diagnosis helped but it didn’t fix everything. Don’t fear the labels. That identity, which I feared for so long, is now one of my greatest qualities. I had become disabled – not just by my disease, but by the way the world treated me. When I found that out, everything changed. One in five Australians has a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature. In Growing Up Disabled in Australia – compiled by writer and appearance activist Carly Findlay OAM – more than forty writers with a disability or chronic illness share their stories, in their own words. The result is illuminating. Contributors include senator Jordon Steele-John, paralympian Isis Holt, Dion Beasley, Sam Drummond, Astrid Edwards, Sarah Firth, El Gibbs, Eliza Hull, Gayle Kennedy, Carly-Jay Metcalfe, Fiona Murphy, Jessica Walton and many more.
If you have ever forgotten to pick up your kids, accidentally worn two different shoes to the grocery store, or lost your cool over a messy house, YOU ARE NOT ALONE! In No More Perfect Moms, Jill Savage says it how it is: All moms struggle. We fall short of our own standard of excellence, and then we feel insecure about not being the perfect wife with the perfect kids, perfect husband, perfect home, perfect friends, perfect marriage, and perfect body… Jill speaks to the root of the insecurities mothers feel and points to a better way. No More Perfect Moms will help a mom: Change her unrealistic expectations to realistic hopes Give grace and love to her husband and children even during struggles, and discover the beauty of grace when she stops judging herself and others Find freedom from disappointment when she embraces her real family, her real challenges, and her real, but imperfect, life With refreshing honesty, Jill exposes some of her own parental shortcomings and helps mothers everywhere shelve their desires for perfection and embrace God’s beautiful grace. When moms do this, they can learn to love their real but imperfect lives. GROUP RESOURCES: FREE video curriculum, a leader’s guide, and additional group resources are available for No More Perfect Moms at www.NoMorePerfect.com.