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BEST BOOK AWARD WINNER - WOMEN'S HEALTH (AMERICAN BOOK FEST) A knowledgeable handbook with a patient's perspective for women afflicted with the common, debilitating, painful disease known as endometriosis More than 176 million women worldwide suffer with endometriosis, a condition causing agonizing pelvic pain which affects every aspect of a woman’s life. While there is currently no cure for endometriosis, patients can take action to reduce their symptoms and improve their overall wellbeing by following a comprehensive wellness plan. Written by an experienced author who has lived with endometriosis for years, Living with Endometriosis includes expert advice drawn from doctors and researchers tackling this debilitative disease, along with tips for recognizing symptoms and getting the most effective help possible. Living with Endometriosis includes: • Up-to-date information on the latest hormonal and surgical treatment options • Information for a broad, full-body approach to wellness • Guidance on becoming an active advocate for your personal care • Valuable medical and community resources for endometriosis sufferers Learning to live with the chronic pain of endometriosis can seem overwhelming. Don’t let endometriosis defeat you; make the choice to seek out the best possible care that works for your needs and take your life back from endometriosis!
A complete guide to the side–effects and treatments – both conventional and alternative – for endometriosis, from a respected name in the field who also suffers from endometriosis. Endometriosis is a debilitating reproductive and immunological disease that affects 7–10 million American women each year. The disease occurs when the same kind of tissue that lines the walls of the uterus grows outside the uterus in the pelvic cavity or some other area of the body, usually significantly affecting the woman's fertility and often causing pelvic pain. And as with any condition that affects fertility, the results are often emotional and psychological as well as physical. As someone who suffers from endometriosis, and who has connections to a wide network of healthcare professionals, Morris is the perfect person to guide sufferers through diagnosis, treatment and living well with the condition. Like the previous titles in our successful Living Well series, this book will offer a holistic approach to living with the disease. The author will offer strategies for coping with the psychological aspects of endometriosis, including how best to tell others about the condition; treatment options including alternative and complementary treatment plans; dealing with infertility; and weighing the hysterectomy option. The author will draw on her relationship with fellow sufferers as well as medical professionals to help readers, making this the most comprehensive guide to endometriosis available. Kerry–Ann Morris was diagnosed with endometriosis in 1999. Since then she has become one of the most active members of the endometriosis community, and has started an outreach website for the disease. She has relationships with many fellow sufferers and experts in the medical community, making her the perfect author for a book on holistic treatment.
Learn how to navigate your life with endometriosis in this essential and hopeful guide--including tools and strategies to gain a deeper understanding of your body and manage chronic pain through diet, movement, stress management, and more. Endometriosis isn’t just about having “painful periods.” It can be a complex, debilitating, and all-encompassing condition that impacts one’s mental health, relationships, and career. Endo affects 1 in 10 women and girls across the globe, but even after receiving a diagnosis, many are still left in the dark about their condition. In Know Your Endo, Jessica Murnane breaks through the misinformation and gives essential guidance, encouragement, and practical lifestyle tools to help those living with endo have more control and feel better in their bodies. In this empowering and heartfelt guide, Jessica, who suffers from endo herself, shares a progressive five-week plan focused on learning a new management tool each week. Including sections on diet (with recipes!), movement, products, and personal-care rituals, Know Your Endo eases readers into a new lifestyle and arms them with the information needed to truly understand their condition. Insights and help from endometriosis doctors and experts are woven throughout, as well as first-person accounts of how endo can impact every aspect of your life. Finally, there’s a resource for all people suffering in silence from this chronic condition offering what they need most: hope.
From the award-winning Dr. Tamer Seckin comes a book written for all of the Endo Warriors out there, from the thirteen-year-old girl who is being told that her pain is “part of becoming a women,” to the woman who has been misdiagnosed for decades—and needs to know she is not alone. Every girl has the right to be pain-free. To live the life they want to live. The journey toward new and happy lives for young women begins now! Endometriosis is a physically and mentally debilitating disease that has tortured women for centuries. It currently affects 176 million of childbearing age worldwide, including one in ten in the U.S. Despite those startling statistics, this horrific and incurable ailment is still relatively unknown to the general population and medical professionals alike. Symptoms of heavy periods and excruciating pain most often begin in middle school or high school, yet doctors take an average of twelve years to diagnose it in a patient. As a result, these undiagnosed and misdiagnosed women suffer into at least their mid-twenties or early thirties, repeatedly told that the pain is in their minds, that it’s simply part of becoming a woman, or that it’s caused by some other disease or condition. That nonsense must stop, and it must stop now! This book will explain what endo is in terms that adolescents can understand, along with potential remedies, treatments to avoid, and how to manage the psychological and social effects of the disease. It will also include riveting stories from women in their teens and mid-twenties, and from those closest to them such as mothers, fathers, teachers, and coaches. One of the most terrifying aspects of having endo is feeling like nobody believes the pain is real or severe, which can cause a woman to feel scared, isolated, and depressed. This book will fully arm her with the truth and knowledge about the disease so that she can overcome her fears and confidently advocate for herself. If her cry for help has been dismissed by anyone, she will be able to educate them so that they can empathize with her and fully support her in her quest for healing.
Endometriosis materializes when the endometrium – the tissue that lines the inside of the uterus – sheds, but does not exit a woman’s body during her period. Instead, it grows outside of the uterus, spreading to organs and nerves in and around the pelvic region. The resulting pain is so physically and emotionally insufferable that it can mercilessly dominate a woman’s life. The average woman with endometriosis is twenty-seven years old before she is diagnosed. It is one of the top three causes of female infertility. The pain it emits can affect a woman’s career, social life, relationships, sexual activity, sleep, and diet. It is incurable, but highly treatable. Unfortunately, though, it is rarely treated in a timely manner, if at all, because of misdiagnoses and/or a lack of education among those in the medical community. This book gives hope to everyone connected to endometriosis. That includes every woman and young girl who has it, and the women and men in their lives – the mothers, fathers, husbands, children, and friends – who know something is wrong, but do not know what it is or what to do about it. This book is written at a level that everyone with ties to this disease can relate to and understand, but it is also for doctors with good intentions who lack the knowledge of how to diagnose or treat it. The Doctor Will See You Now is for women determined to let the world know their stories so that every woman with this disease – from the thirteen-year-old girl who is being told that her pain is “part of becoming a woman” to the woman who has been misdiagnosed for decades – knows she is not alone. Yes, her pain is real. No, she is not crazy. Yes, there is hope.
“In Vagina Problems...Lara Parker unpacks the personal and economic costs of endometriosis.” —Vanity Fair “A refreshingly honest read about living with chronic pain.” —Hello Giggles With unflinching honesty, Lara Parker, the Deputy Director for BuzzFeed, shares her day-to-day challenges of living, working, and loving with chronic pain caused by endometriosis in this raw, darkly humorous, and hopeful memoir. I wasn’t ready to be completely honest about my vagina yet, and the world wasn’t ready for that either. But I was getting there. I wanted the world to know that all of this pain I had been feeling...that it was related to my vagina. Thus, Vagina Problems was born. It was a cutesy name. It was my way of taking this pain and saying, “Whatever. I’m here. I have it. It sucks. Let’s talk about it.” In April 2014, Deputy Editorial Director at BuzzFeed Lara Parker opened up to the world in an article on the website: she suffers from endometriosis. And beyond that? She let the whole world know that she wasn’t having any sex, as sex was excruciatingly painful. Less than a year before, she received not only the diagnosis of endometriosis, but also a diagnosis of pelvic floor dysfunction, vulvodynia, vaginismus, and vulvar vestibulitis. Combined, these debilitating conditions have wreaked havoc on her life, causing excruciating pain throughout her body since she was fourteen years old. These are her Vagina Problems. It was five years before Lara learned what was happening to her body. Five years of doctors insisting she just had “bad period cramps,” or implying her pain was psychological. Shamed and stigmatized, Lara fought back against a medical community biased against women and discovered that the ignorance of many doctors about women’s anatomy was damaging more than just her own life. One in ten women have endometriosis and it takes an average of seven years before they receive an accurate diagnosis—or any relief from this incurable illness’ chronic pain. With candid revelations about her vaginal physical therapy, dating as a straight woman without penetrative sex, coping with painful seizures while at the office, diet and wardrobe malfunctions when your vagina hurts all the time, and the depression and anxiety of feeling unloved, Lara tackles it all in Vagina Problems: Endometriosis, Painful Sex, and Other Taboo Topics with courage, wit, love, and a determination to live her best life.
In 1958 100 women were written up in the literature with endometriosis on the lung causing it to fill up with fluid and collapse. Catamenial pneumothorax was considered extremely rare, but actually an under-recognized manifestation of catamenial ectopic endometriosis. 2016 record numbers of women have been diagnosed globally with menstrual lung collapse and other presentations referred to as Thoracic Endometriosis Syndrome. KIRKUS REVIEW A plainspoken chronicle of living with a dreadful case of a difficult-to-diagnosis disease. What started as a minor pain just below her ribs would soon begin to impact the authors breathing, and she was eventually diagnosed with pulmonary endometriosis. Endometriosis usually affects the mucous membrane of the uterus, but it can also be a traveler, with endometrial implants attaching themselves to the colon and the lungs. The tissue of the implants sheds, causing a monthly flow of blood that can lead to lung collapse. Desiring to call attention to the little-known disease, the author vibrantly recalls her 13-year struggle with the illness, the three major surgeries she underwent (in Army, Navy and Air Force hospitals) and the seven chest-tube procedures. She charts her progress and backslides, the expression of her symptoms and her close brushes with death. She also includes the surgeons narrative summaries of her operations. During her protracted battle with the disease, she faced countless debilitating procedures, including colonic resections and an abdominal hysterectomy with bilateral salpingo-oophorectomy. Though it may be expected that a military officer address each piece of new bad news with dignity and resolve, readers will still be impressed by Wallaces fortitude, as well as the thoughtful, caring impulse that prompted her to write this book: to alert other women to this obscure, diagnostic nightmare of an illness. A slim but sharp and valuable little book that will go a long way toward helping those who suffer from pulmonary endometriosis. Kirkus Discoveries August 31, 2006 First book published on Pulmonary Endometriosis/Catamenial Pneumothorax
A vibrant, empowering guide to surviving and thriving with endometriosis, from triple j presenter and endometriosis advocate Bridget Hustwaite. After years of dismissive doctors and misinformation, Bridget Hustwaite finally received a diagnosis for her intensely heavy periods, pulsing headaches and the excruciating abdominal pain that makes her ovaries feel like they are on fire. She has endometriosis - hard to pronounce, hard to diagnose and even harder to live with. Two excision surgeries and one thriving endo Instagram community later, Bridget knows firsthand how much personal research and self-advocating endo sufferers have to do just to have their pain acknowledged. With her trademark enthusiasm, Bridget has blended her own experience with a raft of tips and strategies from health experts and endo warriors to help you thrive whenever you can, and survive on days when you just can't. Covering everything from diet to acupuncture, fertility to mental health, and surgery to sex, How to Endo is the essential guide to navigating this sucker punch of a chronic illness. Inspiring, vivacious and completely honest, Bridget's book is for everyone on the endo spectrum: the battle-hardened warriors, the newly diagnosed and those still searching for answers. 'Compassionate, informed, inclusive. This is a book generations of endo sufferers have been crying out for.' Zara McDonald, co-founder of the Shameless podcast 'Sensitive, inclusive and eminently readable . . .Essential reading for anyone with endometriosis and those who love them.' Gabrielle Jackson, author of Pain and Prejudice 'An essential to add to your endometriosis management toolbox.' Jessica Taylor, QENDO
From two of the world’s leading experts in endometriosis comes an essential, first-of-its kind book that unwraps the mystery of the disease and gives women the tools they need to reclaim their lives from it. Approximately one out of every 10 women has endometriosis, an inflammatory disease that causes chronic pain, limits life’s activities, and may lead to infertility. Despite the disease’s prevalence, the average woman may suffer for a decade or more before receiving an accurate diagnosis. Once she does, she’s often given little more than a prescription for pain killers and a referral for the wrong kind of surgery. Beating Endo arms women with what has long been missing—even within the medical community—namely, cutting-edge knowledge of how the disease works and what the endo sufferer can do to take charge of her fight against it. Leading gynecologist and endometriosis specialist Dr. Iris Kerin Orbuch and world-renowned pelvic pain specialist and physical therapist Dr. Amy Stein have long partnered with each other and with other healthcare practitioners to address the disease’s host of co-existing conditions—which can include pelvic floor muscle dysfunction, gastrointestinal ailments, painful bladder syndrome, central nervous system sensitization—through a whole-mind/whole-body approach. Now, Beating Endo formalizes the multimodal program they developed, offering readers an anti-inflammatory lifestyle protocol that incorporates physical therapy, nutrition, mindfulness, and environment to systematically addresses each of the disease’s co-conditions on an ongoing basis up to and following excision surgery. This is the program that has achieved successful outcomes for their patients; it is the program that works to restore health, vitality, and quality of life to women with endo. No more “misdiagnosis roulette” and no more limits on women’s lives: Beating Endo puts the tools of renewed health in the hands of those whose health is at risk.