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Drawing on input from people with long-term ailments, this book points the way to achieving the best possible life under the circumstances.
Chronic pain includes many types of conditions from a variety of causes. This book is designed to help those suffering from chronic pain learn to better manage pain so they can get on with living a satisfying, fulfilling life. This resource stresses four concepts: each person with chronic pain is unique, and there is no one treatment or approach that is right for everybody; there are many things people with chronic pain can do to feel better and become more active and involved in life; with knowledge and experimentation, each individual is the best judge of which self-management tools and techniques are best for him or her; and, the responsibility for managing chronic pain on a daily basis rests with the individual and no one else. Acknowledging that overcoming chronic pain is a daily challenge, this workbook provides readers with the tools to overcome that test. A Moving Easy Program CD, which offers a set of easy-to-follow exercises that can be performed at home, is also included.
Diabetes, referred to as an epidemic for more than a decade, remains one of our most significant health issues in the twenty-first century. Because self-management is an important component of living with the disease, the biomedical concept of patient agency has long stressed notions of individual responsibility and autonomy. However, dramatic shifts in both health care and cultural practices call for a reassessment of traditional definitions of patient agency. Lora Arduser's Living Chronic: Agency and Expertise in the Rhetoric of Diabetes answers this call with a unique rhetorical examination of one of the most critical issues in contemporary health: how we live and work with being chronic. Through her perceptive analysis of the discourse of both people with diabetes and health care providers, Arduser presents a new model for patient agency--one that advocates for a relational, fluid concept of agency that blurs the boundaries between medical experts and patients. Her thought-provoking use of bodily and rhetorical plasticity crafts a multidimensional picture of patient agency that profoundly affects how rhetorical scholars, people living with chronic illness, and health care providers can forge patient-centered discourse and practices.
Using mindfulness-based techniques and cognitive behavioral tools, a leading expert on the use of acceptance and commitment therapy (ACT) teaches readers to transcend the experience of chronic pain by reconnecting with other, more valued aspects of their lives.
In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.
Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.
Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
Grief and loss are burgeoning concerns for professional disciplines such as nursing, social work, family therapy, psychology, psychiatry, law, religion and medicine. Although understanding has increased in virtually all other areas of grief and loss, chronic sorrow has received scant attention. Chronic sorrow is a natural grief reaction to losses that are not final, but continue to be present in the life of the griever. This book views chronic sorrow in a life-span perspective, and reveals the effect on the griever and the people close to them. This book fills a void in the literature; and attempts to develop a comprehensive analysis of chronic sorrow that will secure its position within the field of grief and loss.
An inspirational, powerful, and funny manual for coping and living with devastating pain. For two decades, Karen Duffy —New York Times bestselling author, former MTV VJ, Revlon model, and actress— has managed to live an enriching life despite living in a state of constant pain. Duffy has sarcoidosis, a disorder that causes the growth of inflammatory cells on different organs of the body. In her case, her sarcoidosis is located in her brain, causing her unimaginable pain. In this powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, certified recreational therapist, and hospital chaplain to illuminate gratifying methods people can use to cope with chronic pain and reinforces the sentiment that "circumstances determine our lives, but we shape our lives by what we make of circumstances" (Sir John Wheeler Bennet). More than one-third of the US population—nearly 113 million Americans—is currently living with chronic pain, while another 133 million Americans live with some form of chronic illness. Half of the US population lives with the challenges of these invisible illnesses where their symptoms are not always obvious to the casual observer. Addressing a country ravaged by both chronic pain and opioid addiction, Backbone offers a salve of self-sufficiency, spunk, and perseverance. With a light tone, deft wordplay, and interactive gems such as the Bill Murray Pain Scale, Mastectomy Paper Dolls, and a crown to wear just for getting out of bed, Duffy's serious—and seriously funny—book is for the massive population living with chronic pain who are eager to be understood and helped, and sends the message that despite the pain, there is a way to a good life.
Fully updated and refreshed to reflect current knowledge, data and perspectives