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The glamorous world of a silent film star’s wife abruptly crumbles when she’s forcibly quarantined at the Carville Lepers Home in this page-turning story of courage, resilience, and reinvention set in 1920s Louisiana and Los Angeles. Based on little-known history, this timely book will strike a chord with readers of Fiona Davis, Tracey Lange, and Marie Benedict. Based on the true story of America’s only leper colony, The Second Life of Mirielle West brings vividly to life the Louisiana institution known as Carville, where thousands of people were stripped of their civil rights, branded as lepers, and forcibly quarantined throughout the entire 20th century. For Mirielle West, a 1920’s socialite married to a silent film star, the isolation and powerlessness of the Louisiana Leper Home is an unimaginable fall from her intoxicatingly chic life of bootlegged champagne and the star-studded parties of Hollywood’s Golden Age. When a doctor notices a pale patch of skin on her hand, she’s immediately branded a leper and carted hundreds of miles from home to Carville, taking a new name to spare her family and famous husband the shame that accompanies the disease. At first she hopes her exile will be brief, but those sent to Carville are more prisoners than patients and their disease has no cure. Instead she must find community and purpose within its walls, struggling to redefine her self-worth while fighting an unchosen fate. As a registered nurse, Amanda Skenandore’s medical background adds layers of detail and authenticity to the experiences of patients and medical professionals at Carville – the isolation, stigma, experimental treatments, and disparate community. A tale of repulsion, resilience, and the Roaring ‘20s, The Second Life of Mirielle West is also the story of a health crisis in America’s past, made all the more poignant by the author’s experiences during another, all-too-recent crisis. PRAISE FOR AMANDA SKENANDORE’S BETWEEN EARTH AND SKY “Intensely emotional…Skenandore’s deeply introspective and moving novel will appeal to readers of American history.” —Publishers Weekly
Ami lives on Culion, an island for people who have leprosy. Her mother is infected. She loves her home - but then islanders untouched by sickness are forced to leave. Ami's desperate to return before her mother's death. She finds a strange and fragile hope in a colony of butterflies. Can they lead her home before it's too late?
Lying in a hospital bed, José P. Ramirez, Jr. (b. 1948) almost lost everything because of a misunderstood disease. When the health department doctor gave him the Handbook for Persons with Leprosy, Ramirez learned his fate. Such a diagnosis in 1968 meant exile and hospitalization in the only leprosarium in the continental United States—Carville, Louisiana, 750 miles from his home in Laredo, Texas. In Squint: My Journey with Leprosy, Ramirez recalls being taken from his family in a hearse and thrown into a world filled with fear. He and his loved ones struggled against the stigma associated with the term “leper” and against beliefs that the disease was a punishment from God, that his illness was highly communicable, and that persons with Hansen's disease had to be banished from their communities. His disease not only meant separation from the girlfriend who would later become his wife, but also a derailment of all life's goals. In his struggle Ramirez overcame barriers both real and imagined and eventually became an international advocate on behalf of persons with disabilities. In Squint, titled for the sliver of a window through which persons with leprosy in medieval times were allowed to view Mass but not participate, Ramirez tells a story of love and perseverance over incredible odds.
The Leper King is a story of authentic history and imaginative fantasy interwoven with faith and love, war and magic set amidst the turbulent times of the Crusades. Upon the premature death of his father, BALDWIN IV, stricken with leprosy from a young age, ascends to the throne of Jherusalem at the age of thirteen. Immediately, enemies threaten his reign as war looms with the great leader of Islam, SALEHDIN. Guided by his trusted friend and Chancellor, Archbishop WILLIAM of Tyre, the young leper sets out to prove himself worthy of the crown, despite the political intrigues of his own High Court. Among those at Court with whom he must contend are his recently returned mother, AGNES de Courtenay, a grasping woman of immoral character, and his sister, SIBYLLA, who comes to Court after spending most of her life shut away from the world in a convent to marry a Western lord against her will. Being a minor, Baldwin must submit to the Regency of his much older cousin, RAYMOND III of Tripoli; but the young king chaffs beneath the Regents authority, longing to put it behind him so he can pursue his own course of action against the enemy. While Raymond continually argues for peace with the Muslims, Baldwin and the new lord of Kerak, REYNALD de Chtillon, hope to bring the Sarrazins to war before the sultans power grows too strong to push back. Unbeknownst to the king and the lords of Outremer, an old and secret cabal of heretic conspirators known only as the Order of Sion led by one, AMALRIC de Lusignan, that seeks to gain control of the kingdom. Their purpose is to proclaim a new form of Christianity with Jherusalem as its ecclesiastical seat of power in opposition to Rome and to crown a sacred king of their own making. That sacred king is none other than Amalrics brother, GUION de Lusignan, whom they claim is a blood descendant of Jhsu Christ. In this conspiracy, two influential men of the kingdom aid them: HERACLIUS, Archbishop of Caesarea and OTHON de Saint-Amant, Master of the famed warrior-monks, the Knights Templar. Saint-Amant, however, is a deeply conflicted man who begins to question how Sion, and the secretive master he reluctantly follows, is manipulating him and his Order. With Agnes diseased son crowned king, it isnt long before Lusignan draws her into the intrigues of the conspiracy as well with the belief she can protect her son. Seeking divine guidance in the Church of the Holy Sepulcher in the aftermath of battle, Baldwin meets, by chance, an elderly woman who thanks him for a simple act of his kindness. He is astonished, though, when she casts aside her cloak and disguise, revealing to him that she is MARY MAGDALEN, a beautiful and immortal woman of Faerie who vows to guide and befriend him. Only later does she tell him that his leprosy is not the result of disease, but of a magic spell cast by an unseen enemy; a spell that not only devours the kings life, but also becomes the enemys own undoing. So begins a tale of history and fantasy, in which a young king must determine whether his faith or fate will guide him in the defense of his fragile kingdom. Visit the Authors Website at www.scottrezer.com to learn more about the novel and to read the prologue.
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John E. Davis was a Canadian Baptist missionary who spent many years working with lepers in India. His autobiography provides a moving account of his experiences, as well as insight into the social and cultural challenges faced by those with Hansen's disease. This work has been selected by scholars as being culturally important, and is part of the knowledge base of civilization as we know it. This work is in the "public domain in the United States of America, and possibly other nations. Within the United States, you may freely copy and distribute this work, as no entity (individual or corporate) has a copyright on the body of the work. Scholars believe, and we concur, that this work is important enough to be preserved, reproduced, and made generally available to the public. We appreciate your support of the preservation process, and thank you for being an important part of keeping this knowledge alive and relevant.