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Depuis la ratification de la Convention relative aux droits de l’enfant des Nations unies en 1989, la participation de l’enfant dans les processus décisionnels qui le concernent ainsi que sa capacité à exprimer son point de vue sur le sens de sa propre existence sont de plus en plus reconnues à l’échelle internationale. Le domaine de la recherche ne fait pas exception à cette règle, puisque l’enfant y est désormais reconnu en tant qu’acteur social et non plus strictement comme un objet de recherche, entraînant un véritable changement sur le plan épistémologique. La recherche centrée sur l’enfant soulève plusieurs préoccupations à différents moments du processus de recherche, de la conception du devis à la restitution des résultats, en passant par l’obtention de l’assentiment des personnes mineures. Or, peu d’écrits présentent les enjeux que génère la recherche faite avec les enfants. Le présent ouvrage propose ainsi d’illustrer, à l’aide d’exemples concrets de recherches menées auprès d’enfants dans divers champs de savoirs, les défis éthiques et les innovations méthodologiques pouvant guider et inspirer quiconque s’intéresse à ce type de recherche.
Le terme promotion de la santé en Afrique, près de 30 ans après l'adoption de la Charte d'Ottawa, continue d'avoir des connotations complètement hors du sens que lui confère cette charte. Cela n'est pas étonnant quand on sait que la notion de santé dans ce contexte africain équivaut à la lutte contre la maladie à travers les soins de santé dispensés par des professionnels de la santé dans des formations sanitaires et les hôpitaux. L'évolution que connait le continent depuis quelques décennies est de donner un peu plus de place à la communauté à travers les relais communautaires dans une participation communautaire vidée de son contenu, car le pouvoir n'est jamais passé entre les mains des communautés.C'est au vu de tout ceci que le présent ouvrage à sa raison d'être pour expliquer les fondements de l'autonomisation communautaire et de la promotion de la santé avec leur importance pour la région africaine en proie aux mauvais indicateurs de santé comparativement aux autres régions du monde.
This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences. Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach. With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA. "If you’re not involving patients, you're not doing HTA!" - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA
Health technology is a pivotal locus of change and controversy in health care systems, and The Problem of Health Technology offers a comprehensive and novel analysis of the topic. The book illuminates the scientific and policy arguments that are currently deployed in industrialized countries by addressing the perspectives of clinicians, health care managers, scholars, policymakers, patients, and industry. And by establishing a dialogue between two interdisciplinary fields--Health Technology Assessment and Science and Technology Studies--Pascale Lehoux argues for re-centering the debate around social and political questions rather than questions of affordability, thereby developing an alternative framework for thinking about the implications of health technology.
Science and innovation have the power to transform our lives and the world we live in - for better or worse – in ways that often transcend borders and generations: from the innovation of complex financial products that played such an important role in the recent financial crisis to current proposals to intentionally engineer our Earth’s climate. The promise of science and innovation brings with it ethical dilemmas and impacts which are often uncertain and unpredictable: it is often only once these have emerged that we feel able to control them. How do we undertake science and innovation responsibly under such conditions, towards not only socially acceptable, but socially desirable goals and in a way that is democratic, equitable and sustainable? Responsible innovation challenges us all to think about our responsibilities for the future, as scientists, innovators and citizens, and to act upon these. This book begins with a description of the current landscape of innovation and in subsequent chapters offers perspectives on the emerging concept of responsible innovation and its historical foundations, including key elements of a responsible innovation approach and examples of practical implementation. Written in a constructive and accessible way, Responsible Innovation includes chapters on: Innovation and its management in the 21st century A vision and framework for responsible innovation Concepts of future-oriented responsibility as an underpinning philosophy Values – sensitive design Key themes of anticipation, reflection, deliberation and responsiveness Multi – level governance and regulation Perspectives on responsible innovation in finance, ICT, geoengineering and nanotechnology Essentially multidisciplinary in nature, this landmark text combines research from the fields of science and technology studies, philosophy, innovation governance, business studies and beyond to address the question, “How do we ensure the responsible emergence of science and innovation in society?”
As democracy faces increasing struggles around the globe, there has never been a more important time to talk about civic education and the core democratic purposes of schooling. What Kind of Citizen? asks readers to imagine the society they would like to live in and then shows how schools can make that vision a reality. This updated edition responds to the many challenges that have occurred since this book was first published, such as a global pandemic, social justice protests, a rise in autocratic leaders, anti-woke laws, and more. Westheimer brings his now-classic text up to date with groundbreaking analyses of current policies, including those in Florida, Texas, and Arizona; standardized testing; prohibitions on teaching about race and racism; plus a new section on teacher education. There are many ways to teach children and young adults to engage critically with their world, but instead teachers are forced to test-prep for a narrow set of academic subjects. This book shows readers how schools can get back on track by creating more engaging, more democratic learning. PRAISE FOR THE FIRST EDITION— “A timely and important book that will prove valuable to a wide audience . . . a valuable addition to teacher education programs that seek to challenge preservice teachers to understand themselves as stewards of democracy and justice.” —Jonathan Zimmerman, New York University “Highly recommended for anyone interested in Ôreconnecting education to democracy’. . . (Westheimer’s) constant connection with everyday experiences makes the reading very pleasurable, and reminds readers of the important place of emotion in education and politics.” —Nel Noddings, Stanford University “This book will have anyone with a vested interest in the future citizens of our world pausing to question the education system as we know it . . . A good read for teachers in need of some inspiration or for anyone looking for more insight into education in America.” —William Ayers, activist and author
Violence in families and intimate relationships affects a significant proportion of the population—from very young children to the elderly—with far-reaching and often devastating consequences. Cruel but Not Unusual draws on the expertise of scholars and practitioners to present readers with the latest research and thinking about the history, conditions, and impact of violence in these contexts. For this new edition, chapters have been updated to reflect changes in data and legislation. New chapters include an examination of trauma from a neurobiological perspective; a critical analysis of the “gender symmetry debate,” a debate that questions the gendered nature of intimate violence; and an essay on the history and evolution of the women’s movement dedicated to addressing violence against women, which advances theoretical developments that remind readers of the breadth of inclusivity that should be at the heart of working in this field.