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Islamic Ethics and the Genome Question is one of the very first academic works, which examine the field of genomics from an Islamic perspective. This twelve-chapter volume presents the results from a pioneering seminar held in 2017 at the Research Center for Islamic Legislation & Ethics, College of Islamic Studies, Hamad Bin Khalifa University, in Qatar. The contributors to this volume, coming from different disciplines and specializations, approached the key ethical questions raised by the emerging field of genomics, viz. the Genome Question (GQ), from various angles and perspectives. Their shared thesis is that the breadth and depth of both the GQ and the Islamic tradition necessitate going beyond just producing quick answers in response to immediate questions. In order to accommodate the complexity and wide scope of the GQ, the volume included critical analyses of the ethical discourse on genomics, from outside the Islamic tradition. Within the Islamic tradition, the contributing authors explored how the QG can be better explored by involving insights from various disciplines including Quran exegesis, Islamic jurisprudence, philosophy and theology. Besides its interest for researchers and students specialized in ethics, bioethics and Islamic studies, this volume will be a source of important information for geneticists, genomicists and social scientists who are interested in the ethical discourse about genomics in the Muslim world. Contributors include Arzoo Ahmed, Abbas Amir, Saadia Bendenia, Mohammed Ghaly, Mutaz al-Khatib, Amara Naceur, Aasim I. Padela, Ayman Shabana, Trevor Stammers, Mehrunisha Suleman and Hub Zwart.
In search of principles of health care in Islam -- Health and suffering -- Beginning of life -- Terminating early life -- Death and dying -- Organ donation and cosmetic enhancement -- Recent developments -- Epilogue.
An anthropological study based on ethnographic work in Israel and Qatar explores the relationship between science, particularly genetics, and national identity. Based on ethnographic work in Israel and Qatar, two small Middle Eastern ethnonations with significant biomedical resources, Genomic Citizenship explores the relationship between science and identity. Ian McGonigle, originally trained as a biochemist, draws on anthropological theory, STS, intellectual history, critical theory, Middle Eastern studies, cultural studies, and critical legal studies. He connects biomedical research on ethnic populations to the political, economic, legal, and historical context of the state; to global trends in genetic medicine; and to the politics of identity in the context of global biomedical research. Genomic Citizenship is more an anthropology of scientific objects than an anthropology of scientists or an ethnography of the laboratory. McGonigle bases his untraditional project on traditional anthropological methods, including participant observation. Some of the most persuasive data in the book are from public records, legal and historical sources, published scientific papers, institutional reports, websites, and brochures. McGonigle discusses biological understandings of Jewishness, especially in relation to the intellectual history of Zionism and Jewish political thought, and considers the possibility of a novel application of genetics in assigning Israeli citizenship. He also describes developments in genetic medicine in Qatar and analyzes the Qatari Biobank in the context of Qatari nationalism and state-building projects. Considering possible consequences of findings on the diverse origins of the Qatari population for tribal identities, he argues that the nation cannot be defined as either a purely natural or biological entity. Rather, it is reified, reinscribed, and refracted through genomic research and discourse.
The anthropological demography of health, as a field of interdisciplinary population research, has grown from the 1990s, extending to a remarkable range of key human and policy issues, including: genetic disorders; nutrition; mental health; infant, child, and maternal morbidity; malaria; HIV/AIDS; disability and chronic diseases; new reproductive technologies; and population ageing. By observing group formation and change over time, tracking people's networks, and observing variance between what people say and do, anthropological demography goes beyond the characteristically top-down formal methodologies of most mainstream socio-economic demography and population health. This path-breaking volume charts and integrates the growing body of research that combines ethnography with quantitative models and methods in the field of population health. It offers a clear agenda based on important conceptual and methodological advances, and often working in close collaboration with medical and historical research. Approaches to population that are grounded in sustained ethnographic and historical research provide more than substantive knowledge of how cultural and social formations interact with health. They enable understanding of how local institutions and experience of vital events come to be translated into the demographic and health measures on which survey and clinical programmes rely. This, in turn, makes possible critical evaluation of the empirical adequacy of such translation, reflection on what happens when these models and measures become standardised evaluations of health statuses, and what this implies for governance. The combination of anthropological, demographic, historical, and biological research has gone beyond the initial demographic prioritisation of fertility regulation, to take on an expanded range of key health policy issues, and locate them in the context of the inequalities that so frequently give rise to major health differentials. The Anthropological Demography of Health offers a clear agenda for the application and extension of combined anthropological and demographic thinking in population health, and will provide a point of reference for the field.
This book discusses the common principles of morality and ethics derived from divinely endowed intuitive reason through the creation of al-fitr' a (nature) and human intellect (al-‘aql). Biomedical topics are presented and ethical issues related to topics such as genetic testing, assisted reproduction and organ transplantation are discussed. Whereas these natural sources are God’s special gifts to human beings, God’s revelation as given to the prophets is the supernatural source of divine guidance through which human communities have been guided at all times through history. The second part of the book concentrates on the objectives of Islamic religious practice – the maqa' sid – which include: Preservation of Faith, Preservation of Life, Preservation of Mind (intellect and reason), Preservation of Progeny (al-nasl) and Preservation of Property. Lastly, the third part of the book discusses selected topical issues, including abortion, assisted reproduction devices, genetics, organ transplantation, brain death and end-of-life aspects. For each topic, the current medical evidence is followed by a detailed discussion of the ethical issues involved.
By using a creative approach that focuses on a single extended family as a case example to illustrate each chapter's key point, the authors elucidate ethical issues arising in the genetics clinic and laboratory surrounding many timely issues.
People have always sought medical care that is tailored to every individual patient. Alongside with the historical development of institutions of care, the vision of personal and 'holistic' care persisted. Patient-centred medicine, interpersonal communication and shared decision making have become central to medical practice and services. This evolving vision of 'personalized medicine' is in the forefront of medicine, creating debates among ethicists, philosophers and sociologists of medicine about the nature of disease and the definition of wellness, the impact on the daily life of patients, as well as its implications on low-income countries. Is increased 'precision' also an improvement on the personal aspects of care or erosion of privacy? Do 'precise' and 'personalized' approach marginalize public health, and can this care be personalized without attention to culture, economy and society? The book provides a multidisciplinary and interdisciplinary discussion of the ethos and ethics of precision/personal medicine, involving scientists who have shaped the field, in dialogue with ethicists, social scientists and philosophers of science. The contributing scholars come from all over the world and from different cultural backgrounds providing reflective perspectives of history of ideas, critical theory and technology assessment, together with the actual work done by pioneers in the field. It explores issues such as global justice, gender, public health, pharmaceutical industry, international law and religion, and explores themes discussed in relation to personalized medicine such as new-born screening and disorders of consciousness. This book will be of interest to academicians in bioethics, history of medicine, social sciences of medicine as well as general educated readers.
This volume tackles a quickly-evolving field of inquiry, mapping the existing discourse as part of a general attempt to place current developments in historical context; at the same time, breaking new ground in taking on novel subjects and pursuing fresh approaches. The term "A.I." is used to refer to a broad range of phenomena, from machine learning and data mining to artificial general intelligence. The recent advent of more sophisticated AI systems, which function with partial or full autonomy and are capable of tasks which require learning and 'intelligence', presents difficult ethical questions, and has drawn concerns from many quarters about individual and societal welfare, democratic decision-making, moral agency, and the prevention of harm. This work ranges from explorations of normative constraints on specific applications of machine learning algorithms today-in everyday medical practice, for instance-to reflections on the (potential) status of AI as a form of consciousness with attendant rights and duties and, more generally still, on the conceptual terms and frameworks necessarily to understand tasks requiring intelligence, whether "human" or "A.I."
Advanced technology-driven globalization has not only revolutionized world economic growth but has also improved cross-border research methods, inevitably influencing ethical behaviors. Increases in interdisciplinary and cross-cultural research collaboration have further enhanced issues surrounding ethical research and practice. Contemporary Issues Surrounding Ethical Research Methods and Practice identifies the impact of globalization, advanced technology, and international collaboration on ethical research methods and practice. This comprehensive reference work serves as a critical resource for institutions, organizations, and individuals seeking further understanding of ethical research practices. This publication reveals the numerous issues in research ethics and practice including, but not limited to, law and economics of integrity as social capital, ethical research issues in Africa, research issues in Saudi Arabia, ethical issues in qualitative research methods, research with teen mothers and IRBs, ethical research and decision making models, a framework for ethical decision making in cross-cultural settings, and research ethics education.