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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
During the last decade, interoperability has emerged as a vivid research area in electronic business and electronic governance, promising a significant increase in productivity and efficiency of information systems, enterprises and administrations. Interoperability in Digital Public Services and Administration: Bridging E-Government and E-Business provides the latest research findings such as theoretical foundations, principles, methodologies, architectures, technical frameworks, international policy, standardization and case studies for the achievement of interoperability within the provision of digital services, from administration and businesses toward the user citizens and enterprises.
This book provides an introduction to health interoperability and the main standards used. Health interoperability delivers health information where and when it is needed. Everybody stands to gain from safer more soundly based decisions and less duplication, delays, waste and errors. The third edition of Principles of Health Interoperability includes a new part on FHIR (Fast Health Interoperability Resources), the most important new health interoperability standard for a generation. FHIR combines the best features of HL7’s v2, v3 and CDA while leveraging the latest web standards and a tight focus on implementability. FHIR can be implemented at a fraction of the price of existing alternatives and is well suited for use in mobile phone apps, cloud communications and EHRs. The book is organised into four parts. The first part covers the principles of health interoperability, why it matters, why it is hard and why models are an important part of the solution. The second part covers clinical terminology and SNOMED CT. The third part covers the main HL7 standards: v2, v3, CDA and IHE XDS. The new fourth part covers FHIR and has been contributed by Grahame Grieve, the original FHIR chief.
"This book provides a comprehensive collection on the overview of electronic health records and health services interoperability and the different aspects representing its outlook in a framework that is useful for practitioners, researchers, and decision-makers"--
In the e-government research community as well as in many national e-government programs, interoperability is widely seen as a key factor in developing effective and attractive e-services. There is also agreement that interoperability encompasses not only mere technical standards and interfaces, but also includes organizational, legal, and cultural aspects. Several interoperability frameworks have been introduced on national and international levels, and recommendations have been made for the adaptation of enterprise architectures in the public sector. Common to all these approaches is their top-down deductive procedure, which does not connect very well to the real world of e-government projects. In contrast, in this volume, which is based on empirical research, the authors introduce a bottom-up inductive approach to deal with the challenges of interoperability-related governance. Based on so-called “good-practice” cases of interoperability in e-government, they derive concepts and classifications that help to uncover and assess similarities and differences between the cases. As a result, they present an empirically based conceptual framework that details the options for IT governance of interoperability in government. In addition, their findings also make it possible to critically assess and improve other existing frameworks. With this work, which combines different thematic foci as well as a European and a US background the authors situate empirical results in the broader context of theoretical and political reflection. Thus they provide insights into strategic choices for CIOs in e-government at a national or regional level, experiences and lessons learned for managers and developers in e-government projects, and a huge set of empirical data for administrative and political scientists.
Interoperability of enterprises is one of the main requirements for economical and industrial collaborative networks. Enterprise interoperability (EI) is based on the three domains: architectures and platforms, ontologies and enterprise modeling. This book presents the EI vision of the “Grand Sud-Ouest” pole (PGSO) of the European International Virtual Laboratory for Enterprise Interoperability (INTEROP-VLab). It includes the limitations, concerns and approaches of EI, as well as a proposed framework which aims to define and delimit the concept of an EI domain. The authors present the basic concepts and principles of decisional interoperability as well as concept and techniques for interoperability measurement. The use of these previous concepts in a healthcare ecosystem and in an extended administration is also presented.
"This book focuses on the integration of new technologies into digital government, generating new insights into e-government interoperability"--Provided by publisher.
Proposes a new expert-led international instrument to address access to essential technical standards.
This book focuses on the development and use of interoperability standards related to healthcare information technology (HIT) and provides in-depth discussion of the associated essential aspects. The book explains the principles of conformance, examining how to improve the content of healthcare data exchange standards (including HL7 v2.x, V3/CDA, FHIR, CTS2, DICOM, EDIFACT, and ebXML), the rigor of conformance testing, and the interoperability capabilities of healthcare applications for the benefit of healthcare professionals who use HIT, developers of HIT applications, and healthcare consumers who aspire to be recipients of safe and effective health services facilitated through meaningful use of well-designed HIT. Readers will understand the common terms interoperability, conformance, compliance and compatibility, and be prepared to design and implement their own complex interoperable healthcare information system. Chapters address the practical aspects of the subject matter to enable application of previously theoretical concepts. The book provides real-world, concrete examples to explain how to apply the information, and includes many diagrams to illustrate relationships of entities and concepts described in the text. Designed for professionals and practitioners, this book is appropriate for implementers and developers of HIT, technical staff of information technology vendors participating in the development of standards and profiling initiatives, informatics professionals who design conformance testing tools, staff of information technology departments in healthcare institutions, and experts involved in standards development. Healthcare providers and leadership of provider organizations seeking a better understanding of conformance, interoperability, and IT certification processes will benefit from this book, as will students studying healthcare information technology.