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Approximately 2.5 million people in the United States--one percent of the population--have an intellectual disability (previously referred to as mental retardation). These conditions range from genetic disorders such as Down syndrome to disabilities caused by infectious diseases and brain injury. Intellectual Disability: A Guide for Families and Professionals, by one of the country's foremost authorities on intellectual disability, is a comprehensive resource that will be of importance to anyone with a personal connection to a child or adult with a neurodevelopmental disorder. Emphasizing the humanity of persons with intellectual and related developmental disabilities, psychiatrist and pediatrician James Harris provides essential information on assessment and diagnosis of intellectual disability, treatments for specific disorders, and ways to take advantage of the wide array of services available today. The focus throughout is on the development of the person, the positive supports necessary for self-determination, and, to the extent possible, independent decision making. Harris also surveys historical attitudes toward intellectual disability, the medical community's current understanding of its causes and frequency, and the associated physical, behavioral, and psychiatric conditions (such as seizure disorder, depression, and autism) that often accompany particular types of intellectual disability. The book addresses legal, medical, mental health, and research-related issues as well as matters of spirituality, highlighting the ways in which individuals with intellectual disability can meaningfully participate in the spiritual lives of their families and their communities. Each chapter ends with a series of key points to remember, and the book concludes with a list of additional resources of further interest. Intellectual Disability is a must-read for parents and families of those with neurodevelopmental disorders, providing guidance and essential information to help their family members effectively, and to make a significant, positive difference in their lives now and in the future.
In a challenge to current thinking about cognitive impairment, this book explores what it means to treat people with intellectual disabilities in an ethical manner. Reassessing philosophical views of intellectual disability, Licia Carlson shows how we can affirm the dignity and worth of intellectually disabled people first by ending comparisons to nonhuman animals and then by confronting our fears and discomforts. Carlson presents the complex history of ideas about cognitive disability, the treatment of intellectually disabled people, and social and cultural reactions to them. Sensitive and clearly argued, this book offers new insights on recent trends in disability studies and philosophy.
Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.
Many practitioners within health and social care come into contact with people with intellectual disabilities and want to work in ways that are beneficial to them by making reasonable adjustments in order to meet clients’ needs and expectations. Yet the health and wellbeing of people with learning disabilities continues to be a neglected area, where unnecessary suffering and premature deaths continue to prevail. This text provides a comprehensive insight into intellectual disability healthcare. It is aimed at those who are training in the field of intellectual disability nursing and also untrained practitioners who work in both health and social care settings. Divided into five sections, it explores how a wide range of biological, health, psychological and social barriers impact upon people with learning disability, and includes: Six guiding principles used to adjust, plan and develop meaningful and accessible health and social services Assessment, screening and diagnosis of intellectual disability across the life course Addressing lifelong health needs Psychological and psychotherapeutic issues, including sexuality, behavioural and mental health needs, bereavement, and ethical concerns. The changing professional roles and models of meeting the needs of people with intellectual and learning disabilities. Intellectual Disability in Health and Social Care provides a wide-ranging overview of what learning disability professionals’ roles are and provides insight into what health and social care practitioners might do to assist someone with intellectual disabilities when specific needs arise.
Publisher Description
It is estimated that 7.2 million people in the United States have mental retardation or associated impairments - a spectrum now referred to as "intellectual disability." This book provides professionals with the latest and most reliable information on these disabilities. It utilizes a developmental perspective and reviews the various types of intellectual disabilities, discusses approaches to classification, diagnosis, and appropriate interventions, and provides information on resources that may offer additional help. Case examples are included in each section to highlight specific diagnostic and treatment issues. The emphasis in this book is on the development of the person, the provision of interventions for behavioral and emotional problems associated with intellectual disability, and the positive support necessary for self-determination. It discusses the facilitation of transitions throughout the lifespan from infancy to maturity and old age. Additionally, the book reviews evaluations for behavioral and emotional problems, genetic factors, appropriate psychosocial, medical, and pharmacological interventions, and family and community support.
This book examines how intellectual disability is affected by stigma and how this stigma has developed. Around two per cent of the world's population have an intellectual disability but their low visibility in many places bears witness to their continuing exclusion from society. This prejudice has an impact on the family of those with an intellectual disability as well as the individual themselves and affects the well-being and life chances of all those involved. This book provides a framework for tackling intellectual disability stigma in institutional processes, media representations and other, less overt, settings. It also highlights the anti-stigma interventions which are already in place and the central role that self-advocacy must play.
Intellectual disability is often overlooked within mainstream disability studies, and theories developed about disability and physical impairment may not always be appropriate when thinking about intellectual (or learning) disability. This pioneering book, in considering intellectually disabled people's lives, sets out a care ethics model of disability that outlines the emotional caring sphere, where love and care are psycho-socially questioned, the practical caring sphere, where day-to-day care is carried out, and the socio-political caring sphere, where social intolerance and aversion to difficult differences are addressed. It does so by discussing issue-based everyday life, such as family, relationships, media representations and education, in an evocative and creative manner. This book draws from an understanding of how intellectual disability is represented in all forms of media, a feminist ethics of care, and capabilities, as well as other theories, to provide a critique and alternative to the social model of disability as well as illuminate care-less spaces that inhabit all the caring spheres. The first two chapters of the book provide an overview of intellectual disability, the debates surrounding disability, and outline the model. Having begun to develop an innovative theoretical framework for understanding intellectual disability and being human, the book then moves onto empirical and narrative driven issue-based chapters. The following chapters build on the emergent framework and discuss the application of particular theories in three different substantive areas: education, mothering and sexual politics. The concluding remarks draw together the common themes across the applied chapters and link them to the overarching theoretical framework. An important read for all those studying and researching intellectual or learning disability, this book will be an essential resource in sociology, philosophy, criminology (law), social work, education and nursing in particular.
Responding to how little theological research has been done on intellectual (as opposed to physical) disability, this book asks, on behalf of individuals with profound intellectual disabilities, what it means to be human. That question has traditionally been answered with an emphasis on an intellectual capacity--the ability to employ concepts or to make moral choices--and has ignored the value of individuals who lack such intellectual capacities. The author suggests, rather, that human being be understood in terms of participation in relationships of mutual responsiveness, which includes but is not limited to intellectual forms of communicating. She supports her argument by developing a phenomenology of how an individual with a profound intellectual disability relates, drawn from her clinical experience as a physical therapist. She thereby demonstrates that these individuals participate in relationships of mutual responsiveness, though in nonsymbolic, bodily ways. To be human, to image God, she argues, is to respond to the world around us in any number of ways, bodily or symbolically. Such an understanding does not exclude people with intellectual disabilities but rather includes them among those who participate in the image of God.