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This book investigates how being diagnosed with various disabilities impacts on identity. Once diagnosed with a disability, there is a risk that this label can become the primary status both for the person diagnosed as well as for their family. This reification of the diagnosis can be oppressive because it subjugates humanity in such a way that everything a person does can be interpreted as linked to their disability. Drawing on narrative approaches to identity in psychology and social sciences, the bio-psycho-social model and a holistic approach to disabilities, the chapters in this book understand disability as constructed in discourse, as negotiated among speaking subjects in social contexts, and as emergent. By doing so, they amplify voices that may have otherwise remained silent and use storytelling as a way of communicating the participants' realities to provide a more in-depth understanding of their point of view. This book will be of interest to all scholars and students of disability studies, sociology, medical humanities, disability research methods, narrative theory, and rehabilitation studies.
Easily digestible for even the busiest of readers, this book serves as a succinct, engaging, and informative guide on how the practice of painting can help improve or maintain health and wellbeing, both within and outside of professional settings.
Discover how to conduct qualitative nursing research with confidence Co-authored by experienced researchers Qualitative Research in Nursing and Healthcare offers practical and applied examples for those who carry out qualitative research in the healthcare arena. With clear explanations of abstract ideas and practical procedures, this updated edition incorporates recent examples in nursing research and developments in the qualitative field, providing readers with the latest approaches and techniques for gaining insight into people's attitudes, behaviours, value systems, concerns, motivations, aspirations, culture and lifestyles. From ethnographies to action research, readers will find explorations of data collection, sampling and analysis, including discussions of: Interviewing and participant observation, strategies, and procedures Trustworthiness and validity, and ensuring the credibility of qualitative research A variety of approaches in qualitative research, such as grounded theory, phenomenology and narrative inquiry Whether you're a postgraduate nursing student, a third-year nursing student on a pre-registration nursing programme, or a qualified nursing and healthcare staff member, Qualitative Research in Nursing and Healthcare is the perfect resource to help you conduct meaningful research with confidence.
Drawing on rich empirical work emerging from core conflict regions within the island nation of Sri Lanka, this book illustrates the critical role that women with disabilities play in post-armed conflict rebuilding and development. This pathbreaking book shows the critical role that women with disabilities play in post-armed conflict rebuilding and development. Through offering a rare yet important insight into the processes of gendered-disability advocacy activation within the post-conflict environment, it provides a unique counter narrative to the powerful images, symbols and discourses that too frequently perpetuate disabled women’s so-called need for paternalistic forms of care. Rather than being the mere recipients of aid and help, the narratives of women with disabilities reveal the generative praxis of social solidarity and cohesion, progressed via their nascent collective practices of gendered-disability advocacy. It will be of interest to academics and students working in the fields of disability studies, gender studies, post-conflict studies, peace studies and social work.
This book provides insight into the globally interlinked disability rights community and its political efforts today. By analysing what disability rights activism contributes to a global power apparatus of disability-related knowledge, it demonstrates how disability advocacy influences the way we categorise, classify, distribute, manipulate, and therefore transform knowledge. By unpacking the mutually constitutive relations between (practical) moral knowledge of international disability advocates and (formal) disability rights norms that are codified in international treaties such as the UN Convention on the Rights of Persons with Disabilities (CRPD), the author shows that the disability rights movement is largely critical of statements that attempt to streamline it. At the same time, cross-cultural disability rights advocacy requires images of uniformity to stabilise its global legitimacy among international stakeholders and retain a common meta-code that visibly identifies its means and aims. As an epistemic community, disability rights advocates simultaneously rely on and contest the authority of international human rights infrastructure and its language. Proving that disability rights advocates contribute immensely to a global culture that standardises what is considered morally and legally ‘right’ and ‘wrong’, thereby shaping the human body and the body politic, this book will be of interest to all scholars and students of critical disability studies, sociology of knowledge, legal and linguistic anthropology, social inequality, and social movements.
Focusing on the case of disability, this book examines what happens when previously marginalised individuals obtain the legal recognition of their equal citizenship rights but cannot fully enjoy these rights because of structural inequality. Bringing together disability and citizenship studies, it explores an original conceptualisation of disability as a distinct social division and approaches citizenship as a developing institution. In addition to providing innovative theoretical perspectives on citizenship and disability, this book is grounded in the empirical analysis of the claims of disability activists in Sweden. Drawing on a wide range of blog posts and debate articles, it sheds light upon the inequality and domination faced by disabled people in Sweden and underlines the disability activists’ proactive ideas and solutions for constructing a more equal citizenship. This book will be of interest to scholars, activists and policymakers in the fields of disability, citizenship, social inequality, human rights, politics, activism, social welfare and sociology.
Drawing upon vivid and harrowing life history narratives of people labelled intellectually disabled, this book examines the ways in which disabled subjects are constituted, regulated, governed, and violated through an account of abjection. Extending interdisciplinary dialogues and approaches, it abandons a construct of violence (which by law requires a stable notion of a victim and a perpetrator) and moves to a theorisation of abjection to explore the ways in which disabled subjects are (re)produced, constituted, and treated through time. Deploying a wide range of interdisciplinary approaches, this book sits at the intersections of criminology and sociology, re-thinks notions of dis/ability, violence, and subjectivity, and utilises crip and queer theory to imagine dis/ability differently. It will be of interest to all scholars and students of disability studies, sociology and criminology, and specifically those working the areas of life history work, post-structuralism, hate crime, and post-modern criminology.
This is a provocative look at writing by and about people with illness or disability—in particular HIV/AIDS, breast cancer, deafness, and paralysis—who challenge the stigmas attached to their conditions by telling their lives in their own ways and on their own terms. Discussing memoirs, diaries, collaborative narratives, photo documentaries, essays, and other forms of life writing, G. Thomas Couser shows that these books are not primarily records of medical conditions; they are a means for individuals to recover their bodies (or those of loved ones) from marginalization and impersonal medical discourse. Responding to the recent growth of illness and disability narratives in the United States—such works as Juliet Wittman’s Breast Cancer Journal, John Hockenberry’s Moving Violations, Paul Monette’s Borrowed Time: An AIDS Memoir, and Lou Ann Walker’s A Loss for Words: The Story of Deafness in a Family—Couser addresses questions of both poetics and politics. He examines why and under what circumstances individuals choose to write about illness or disability; what role plot plays in such narratives; how and whether closure is achieved; who assumes the prerogative of narration; which conditions are most often represented; and which literary conventions lend themselves to representing particular conditions. By tracing the development of new subgenres of personal narrative in our time, this book explores how explicit consideration of illness and disability has enriched the repertoire of life writing. In addition, Couser’s discussion of medical discourse joins the current debate about whether the biomedical model is entirely conducive to humane care for ill and disabled people. With its sympathetic critique of the testimony of those most affected by these conditions, Recovering Bodies contributes to an understanding of the relations among bodily dysfunction, cultural conventions, and identity in contemporary America.
Delivering holistic, person-centred care is at the heart of the nursing role. This book will develop your understanding of what person-centred care actually means and how to apply it to assessment and the planning, delivery and management of care, enhancing all aspects of your practice. Key features · Each chapter is mapped to the NMC Standards (2018) · Two parts take you from the underpinning theory and philosophy through to practical application and person-centred care in action. · Case studies and activities encourage you to reflect on your own experiences and how the themes of person-centred care are applied in practice.
Examines how civil rights legislation impacts the lives of ordinary Americans, drawing on the experiences of sixty interviewees that have been victims of discrimination to discuss how civil rights impacted their lives.