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Sarah Kurchak is autistic. She hasn’t let that get in the way of pursuing her dream to become a writer, or to find love, but she has let it get in the way of being in the same room with someone chewing food loudly, and of cleaning her bathroom sink. In I Overcame My Autism and All I Got Was This Lousy Anxiety Disorder, Kurchak examines the Byzantine steps she took to become “an autistic success story,” how the process almost ruined her life and how she is now trying to recover. Growing up undiagnosed in small-town Ontario in the eighties and nineties, Kurchak realized early that she was somehow different from her peers. She discovered an effective strategy to fend off bullying: she consciously altered nearly everything about herself—from her personality to her body language. She forced herself to wear the denim jeans that felt like being enclosed in a sandpaper iron maiden. Every day, she dragged herself through the door with an elevated pulse and a churning stomach, nearly crumbling under the effort of the performance. By the time she was finally diagnosed with autism at twenty-seven, she struggled with depression and anxiety largely caused by the same strategy she had mastered precisely. She came to wonder, were all those years of intensely pretending to be someone else really worth it? Tackling everything from autism parenting culture to love, sex, alcohol, obsessions and professional pillow fighting, Kurchak’s enlightening memoir challenges stereotypes and preconceptions about autism and considers what might really make the lives of autistic people healthier, happier and more fulfilling.
An autistic writer's memoir of the detrimental effects of pretending to be normal, and her impassioned call to redefine what is considered a successful life.
A true story that is both uniquely moving and exceptionally inspiring, Emergence is the first-hand account of a courageous autistic woman who beat the odds and cured herself. As a child, Temple Grandin was forced to leave her "normal" school and enroll in a school for autistic children. This searingly honest account captures the isolation and fears suffered by autistics and their families and the quiet strength of one woman who insisted on a miracle.
An urgent, funny, shocking, and impassioned memoir by the winner of the Spectrum Art Prize 2018, How To Be Autistic presents the rarely shown point of view of someone living with autism. Poe's voice is confident, moving and often funny, as she reveals to us a very personal account of autism, mental illness, gender and sexual identity. As we follow Charlotte's journey through school and college, we become as awestruck by her extraordinary passion for life as by the enormous privations that she must undergo to live it. From food and fandom, to body modification and comic conventions, Charlotte's experiences through the torments of schooldays and young adulthood leave us with a riot of conflicting emotions: horror, empathy, despair, laugh-out-loud amusement and, most of all, respect.
Away at school, Sally Copeland has always dreamed of going home, but now that she’s there, she feels frightened and unsure of herself.Will her brother and sister accept her? Will she be able to do things for herself? And what will it be like to go to a regular school and be the only one with cerebral palsy?
For over a decade, Julie Lalonde, an award-winning advocate for women’s rights, kept a secret. She crisscrossed the country, denouncing violence against women and giving hundreds of media interviews along the way. Her work made national headlines for challenging universities and taking on Canada’s top military brass. Appearing fearless on the surface, Julie met every interview and event with the same fear in her gut: was he there? Fleeing intimate partner violence at age 20, Julie was stalked by her ex-partner for over ten years, rarely mentioning it to friends, let alone addressing it publicly. The contrast between her public career as a brave champion for women with her own private life of violence and fear meant a shaky and exhausting balancing act. Resilience sounds like a positive thing, so why do we often use it against women? Tenacity and bravery might help us survive unimaginable horrors, but where are the spaces for anger and vulnerability? Resilience is Futile is a story of survival, courage and ultimately, hope. But it’s also a challenge to the ways we understand trauma and resilience. It’s the story of one survivor who won’t give up and refuses to shut up.
As a child, Claire's big brother Ray was always bright and inquisitive, and she looked up to him. But as the two became teenagers, Ray struggled to acquire the social skills that came more easily to Claire and their friends. Claire tried to help, pointing out what he should or shouldn't have said or done. Ray insisted that he wasn't the problem--"On my planet...", he would explain, there were no social climbers, no cocktail parties, no subtle hints or subliminal messages to miss. On his planet, the telling of little white lies would be a capital offence. At sixteen, sitting with him in the high school cafeteria, Claire vowed to find Ray's "planet." After graduation, Ray took a job as a letter carrier with Canada Post, but after thirty-three years on the job he had developed plantar fasciitis, his feet so painful he couldn't walk. Instead of seeking medical help, he began leaving mail in his truck overnight--a serious dereliction of duty. He was fired, blew his appeal, and spiralled into a suicidal depression. Claire didn't know he was in trouble until he reached out to her by email. Thus began a remarkable email correspondence that pulled back the curtain on an inner life Claire couldn't have imagined. Where in-person interactions plunged him into hot water, by email, Ray's writing revealed a compassionate, funny, sad man who showed extraordinary insight into his often self-destructive way of navigating the world. Ray was fifty when Claire realized he might have Autism Spectrum Disorder (ASD), but by then, having survived without a diagnosis his whole life, Ray was reluctant to have a label pinned on him and resisted Claire's efforts to fix him by trying, in all sincerity, to make him more like her. Dispatches From Ray's Planet draws on Ray and Claire's correspondence to tell the story of two siblings from two very different planets. There are thousands of Rays in our world, hiding in basements or holding up walls at social functions. In this collective memoir, Claire and Ray share their journey with the hope that others can also learn that we all perceive the world in different ways, and that "different" does not necessarily mean dangerous.
This straightforward guide offers a complete overview of Pathological Demand Avoidance Syndrome (PDA) and gives practical advice for overcoming the difficulties it poses in a wide range of contexts from diagnosis through to adulthood. Starting with an exploration into the background of PDA that answers many of the immediate questions triggered when a child is first diagnosed, the book goes on to look at the impact of the condition on different areas of the child's life and what can be done to help. The authors present useful information on early intervention options and workable strategies for managing PDA positively on a day-to-day basis. They also examine ways to minimize common difficulties that may be encountered at home and school, making life easier for the child, family and peers. The final chapters tackle new problems that can arise when the teenage years hit and how to assist a successful transition from adolescence to adulthood. Illustrative case examples are included throughout, and the book concludes with a list of valuable resources for further information and advice. Full of helpful guidance and support, this user-friendly introductory handbook is essential reading for anyone caring for, or working with, children with PDA.
'It has taken me several years of exploration, but I am at a place now where I see autism as neither an affliction nor a superpower. It's just the blueprint for who I am. There is no cure, but that's absolutely fine by me. To cure me of my autism would be to cure me of myself.' During the first thirty years of her life, comedy script writer Sara Gibbs had been labelled a lot of things - a cry baby, a scaredy cat, a spoiled brat, a weirdo, a show off - but more than anything else, she'd been called a Drama Queen. No one understood her behaviour, her meltdowns or her intense emotions. She felt like everyone else knew a social secret that she hadn't been let in on; as if life was a party she hadn't been invited to. Why was everything so damn hard? Little did Sara know that, at the age of thirty, she would be given one more label that would change her life's trajectory forever. That one day, sitting next to her husband in a clinical psychologist's office, she would learn that she had never been a drama queen, or a weirdo, or a cry baby, but she had always been autistic. Drama Queen is both a tour inside one autistic brain and a declaration that a diagnosis on the spectrum, with the right support, accommodations and understanding, doesn't have to be a barrier to life full of love, laughter and success. It is the story of one woman trying to fit into a world that has often tried to reject her and, most importantly, it's about a life of labels, and the joy of ripping them off one by one.
"This book is a message from autistic people to their parents, friends, teachers, coworkers and doctors showing what life is like on the spectrum. It's also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language." With a reporter's eye and an insider's perspective, Eric Garcia shows what it's like to be autistic across America. Garcia began writing about autism because he was frustrated by the media's coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn't look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don't need to be fixed. In We're Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.